Working to make CFS widely understood, diagnosable, curable and preventable. Visit our web sites at www.cfids.org and www.solvecfs.org.
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- Founded:
- 1987
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Wall PhotosUpdated about a week ago
Banbury Research MeetingUpdated about 2 months ago
Claire Is there an association similar to CFIDS in Australia do you know. This site and this Association has made such a difference to me since I was introduced to it and I would really like to know if there was something here in Australia but cant seem to find out.
Gloria Fernandez Allen Need a good CFS Doctor for a teen possibly from Children's Hospital in Dallas or Dallas area, any suggestions?
Desiree I have 3 hours of church on Sundays so I have to budget my energy well and not be up late on Saturadys.
Teresa FoleyPsyd For me they are the sam. I live with the envelope theory. If I start getting tired, sore throat, then I stay indoors and rest/sleep. I can feel when I am comming out of an envelope, I slowly re-enter life.
The CFIDS Association of America Monday, Monday. How do weekdays differ from weekends, in terms of activity levels, energy levels, routine, etc.? Do you "budget" your energy for the week or weekend? Or does it all just blur together?
Bennett Gordon
Belgium Health Authority rejects CBT & GET for ME/CFS
We conclude that it is unethical to treat patients with ME/CFS with ineffective, non-evidence-based and potentially harmful “rehabilitationt herapies”, such as CBT/GET.
This can be explained by findings that exertion may amplify pre-existing pathophysiological abnorma...lities underpinning ME/CFS, such as inflammation, immune dysfunction,oxidative and nitrosative stress, channelopathy, defective stress response mechanisms and a hypoactive hypothalamic-pituitary-adrenal axis.
http://www.investinme.org/Article-342%20
We conclude that it is unethical to treat patients with ME/CFS with ineffective, non-evidence-based and potentially harmful “rehabilitationt herapies”, such as CBT/GET.
This can be explained by findings that exertion may amplify pre-existing pathophysiological abnorma...lities underpinning ME/CFS, such as inflammation, immune dysfunction,oxidative and nitrosative stress, channelopathy, defective stress response mechanisms and a hypoactive hypothalamic-pituitary-adrenal axis.
http://www.investinme.org/Article-342%20
Annika Petzäll I live in Sweden and tomorrow there is a small ME coference here. The speakers will be Kenny De Meirleir from Belgium and Dr. Byron Hyde from Canada. I´m thinking about smart questions for them. Anyone??
Tacita Woods
Hi everyone. I have a question that I am hoping some of you may have information on. I am getting put to sleep to be examined (but not operated on) and I am terrified that the anaethesitc may have an effect on ME patients, and of course the doctors (espoecially here in New Zealand) would have no bloody idea. I have had... ME for 9 years, the first 5 much more severely, now I fluctuate between being house bound and beng able to make short walks on 'good' days. I apologise for bringing this up when so many of you are so severely ill.Read More
Teri Cordaro
Can anyone direct me to info about a new symptom?-----there are so many it's no wonder they think were nuts. I feel like I Just Can't get Enough Air.I'm not stuffy and can breathe just fine but get times when I like walk up the steps or just for no reason- my Respiration gets very very shallow and I have to lay right d...own on the floor cause I'm so dizzy and weak(but not muscle weak) something else. ThanksRead More
Jane Merrifield-beecher
i have had cfids for 25 years, getting much worse after having fillings drilled out,not a good idea. two years ago, i was diagnosed with lyme disease. i also have rocky mountain fever and erlichia, two other bacterias from the tick. the idsa does not believe in treating chronic lyme patients, so i am spending ou...t of pocket ...getting worse from die off, and it is hard to keep going with people expecting me to get better. they say most people who have had it as long as i, remain chronically ill. i also have hpv6, so that is another fight, and i bet i have the retrovirus they are talking about now. i am just tire of feeling so awful. i have environmental illness too...this makes it harder. i keep as busy as possible with my health. luckily, i am married, i could not get disability!! does anyone else have these problems? thanks. jane in tucsonRead More
Matthew know, I'm starting to believe I don't in fact have CFIDS, rathersomething else. I was attempting to lift weights earlier and my rightarm started tremoring really bad when I was grabbing the bar between sets. Just my right, the stronger arm... *sigh*
Andrea Any news in dr. Klimas talk
Mary Murphy JUST WANT TO TELL EVERYONE HOW MUCH YOU HAVE HELPED ME ..... I KNOW I'M NOT ALONE ANYMORE.......THANK ALL OF YOU!!!!!!!!!!!!!
RECENT ACTIVITY
The CFIDS Association of America discussed Belgium Health Authority rejects CBT & GET for ME/CFS on the The CFIDS Association of America discussion board.
