Alliance for Lupus Research

Angie-All people are at different levels in their lupus where they say do not have kids. I personally had to be in remission for 2 years before I could have the kids. There were genetics testing and a whole process before you can do it. If a doc told me I could never have kids I would find a new one. I am so blessed to have a woman who understands ... Read Morethe needs of a woman and who also has been through everything I have and seen it done with others too. I interviewed doctor after doctor before making a decision in having a child and about who I trust with my life. So, I say that if she is sick she should wait, but I would investigate further before giving up. At first when I was diagnosed I was 18 and had a lot of other problems before being diagnosed,but she said after I am healthy eventually I could in my future as long as I was completely healthy. I have always had rhumeys (3 because of moving) but have been researchers in lupus. So I suggest that for your friend. I just re-read your responce it sounds like she is really lucky and really sick. God bless her. I hope she does have good doctors I can't imagine having a child and have to watch my husband raise her. How truly painful. This is the kind of thing that scares me into just being grateful for my family and makes me feel selfish for wanting more. I just have an unrest in my soul to raise a little girl. Thank you for your addition to my quest. ~Autumn~

Gina- I can't do surrogacy because the reason that your lupus comes out of remission is because of hormones from the pregnancy. My doctor said that it would take more then that to put in my body to produce more eggs (yes, I have asked) So that is what is the reason you have to be careful. I have considered adoption because I really just want to ... Read Moreknow what it feels like to raise a little girl, and not necessarily have to be genetically linked to me, but hubby isn't sure he can do that.Thanks for your input too. ~Autumn~

Morty's Gang!!!! All right!

Getting ready to leave the house for the LA walk! Go TEAM TARA!

Well, sometimes, when I forget my meds, (but think that I HAVE taken them), towards the middle of the day, the pain sets in and I don't feel well. (In my mind....I have taken my meds)...That should be a 'sort of" placebo..Later when I realize I didn't take them, I'm always happy, because there is a reason for the discomfort. I'm not arguing one ... Read Morepoint or the other..I'm just giving my opinion...And I know 3 people, very close to me, that would be dead if they were taking a placebo..With some people, I do believe that placebo can work...Thanks for listening..

@Lettuce - you are right that "it is what it is" and I do my best and of course positive thoughts & meditation do not handle things 100% but either do my meds. Some days we just can't win, but we get to go on and that's all we can ask for most days!

Lets hope AND pray so!!! :)

Yes we will. Walk #3 for Las Vegas was incredible. We went into the walk with our goal already raised. Yes, pray we lots of prayer for a cure.

What a great event! I was honored to be a part of the walk on November 7th in Las Vegas!

Looking forward to flying out to LA from the ATL for the LA Walk on Saturday! Go TEAM TARA! Way to go San Luis Obispo!

Great posts here. Glad you could start such a constructive conversation Brett!

Dot....that all sounds GREAT, but I do not see free healthcare coming in my lifetime......I have paid as much as right at $1000 a month for my daughter and I to have health insurance and it was the best plan offered under the company we had.....but, once my job was gone, and I had to switch to Cobra, things have been a NIGHTMARE!!! I haven't been ... Read Morecovered by anything since the end of August, EVEN THOUGH I am making my payments......so, if someone has ties with Mr. Obama, please tell me how to contact him and maybe, just maybe he can tell me what/how to get my insurance coverage back........after all, I am the one whose disease just continues to ravage my body on a daily basis, while the "higher ups" play games with my life!!!

i was just about to lose it...thanks goodness!

Awesome!

My prayer is that a cure will be found before anyone else in my family has to suffer, especially with the blood disorder part of this insidious disease......I support any of the research. I have been in one medical research study and will do it again in a heartbeat!!!

i wish i could go. i live in south florida

See you all there! I am getting super excited.. You are a great group of women and I am so glad that our paths have crossed!!