The ALS Association
November is National Family Caregivers Month. Thank you, Caregivers!

http://www.alsa.org/patient/nfcm/default.cfm
Information
Location:
Calabasas, CA,
Causes
 
Ellen Kohler

Ellen Kohler My friend who is 36 was just diagnosed with ALS. He is mostly scared of leaving his children behind, He is being brave an I don't know how he is coping. I love him and wish that they would find a cure for this disease in time to help him.

Fri at 9:48pm · Report
Ira Spears

Ira Spears My 84-year-old mother received a diagnosis of ALS on Monday. She knows the road ahead will not be easy, but what an inspiration she is to all her family and friends.

Fri at 6:36am · Report
Steve Krontz

Steve Krontz Just came across this while watching MSNBC. A 1 million dollar prize for the discovery of a biomarker for measuring disease progression in ALS. Please Pass it along. You never know who will come up with the next step in fighting this horrible disease.

http://www.prize4life.org/

www.prize4life.org
Join the fight against Amyotrophic Lateral Sclerosis (ALS).
The ALS Association
ALS can affect a person’s ability to speak, and this can without a doubt be one of the most frustrating and challenging issues to face. People with ALS can suffer from impairments ranging from slurred and slowed speech to a total inability to speak. It’s easy to lose hope. Wi...
Liz Dahl Merchant
Liz Dahl Merchant
My late husband's "talking" computer was marvelous. As a caregiver and as someone who shared a life with him, it was so isolating as he lost his ability to communicate through speech. The computer-generated conversations were great for two reasons: First, so that he could tell me what he needed me to do to care for him, and secondly - at least ... See Moreas important - so that we could maintain our relationship as long as possible through conversation. He named his computer "Harry" and Harry was a companion with us until my husband's death. My hardest moment after my husband's death was giving the computer to the ALS Assoc. lending closet. It was such an important connector between my husband and me during his illness. My late husband even entered a "speech" that was delivered at his memorial service. The first use of the communication device was to deliver a speech at the AZ going-away luncheon for Curt and Shonda Schilling, as they were moving to Boston.
November 24 at 7:14pm
Lisa Bushnell
Lisa Bushnell
Oh, what sweet memories. I hope my dad will start using his soon. I tried to get him to record my name, at least, so that when he wanted me I could hear his voice call my name. But he just never got to it. Pretty sure that this is all happening so fast he's just not sure what to invest his time in learning. You should see him in his new Quantum 6000z though. Oh boy, he loves that and he zooms over to the senior center. It's a blessing to see his smile then.
Sat at 11:16pm
Keri Sims Garcia

Keri Sims Garcia In loving memory of my grandmother, Gigi, who lost the battle against ALS in 2004.

November 20 at 5:27pm · Report
Colleen Rafael Hauptman

Colleen Rafael Hauptman My mom had her first feeding tube installed yesterday. She is still in the hospital in a lot of pain.. Thought it was a fairly easy procedure... Dr. thinks she has too much air in her stomach. Any related stories?

Tina Turk- Langley
Tina Turk- Langley
How long has she been diagnosed with ALS,my brother has it,he is starting to have trouble breathing,and walking.
November 23 at 5:17pm
The ALS Association

The ALS Association Smoking May Now be Considered an Established Risk Factor for ALS

www.alsa.org
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
Darin Miller
Darin Miller
Diagnosed at age 38. Never even took as much as a drag from a cigarette my whole life. Also grew up in a non smoking home and have always attempted to avoid cigarette smoke when ever I could.
November 21 at 5:16pm
Lisa Bushnell
Lisa Bushnell
My dad never smoked and didn't hang around people who did. But he falls into the category of not knowing whether it's familial or not because his mother passed away very young.
November 25 at 5:56pm
Dianne Kelley Rodak

Dianne Kelley Rodak In memory of my mom Veronica Kelley, died at age 51 from ALS, 18 yrs ago..still very missed

November 19 at 10:27am · Report
Shawn Schulte
Shawn Schulte
I thank you for your warm and loving memorial to your mother...you do her honor...
November 20 at 12:39pm
The ALS Association

The ALS Association New caregiver webinars added to our schedule for December!

www.alsa.org
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
The ALS Association

The ALS Association 's feed: Recent Headlines

Elizabeth Skinner

Elizabeth Skinner In memory of the best dad ever - Chuck Skinner - we lost way too early from ALS in 1979. He was 50 years old. Brave to the end!

November 18 at 3:02am · Report
Shawn Schulte
Shawn Schulte
beautiful way to give praise to your father...
November 20 at 12:39pm
The ALS Association
The ALS Association encourages people with ALS who are enrolled in Medicare to take advantage of the annual Open Enrollment period to make sure they have the best coverage available to meet their prescription drug and health care needs in 2010...
The ALS Association

The ALS Association The Role of The ALS Association’s Certified Centers

www.alsa.org
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
Patty

Patty

Mary Corso

Mary Corso in remembrance of ken norton who died aug 2004 of als the greatest man ever love you.

Shawn Schulte
Shawn Schulte
keep the love alive...
November 20 at 12:40pm
Mary Corso
Mary Corso
we do but its hard we miss him so much (:
November 20 at 4:19pm