Cystic Fibrosis Trust
Donate to the UK’s only national charity dealing with all aspects of Cystic Fibrosis: http://www.cftrust.org.uk/help/howtodonate
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Founded:
1964
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YOUNG SINGER SONGWRITERS TEAM UP TO SEE OFF CF
2 Nov 2009, 10:02 am
Another person on the plinth!
6 Oct 2009, 11:36 am
Big Bounce for the CF Trust
1 Oct 2009, 10:12 am
Oxygen on flights
19 Aug 2009, 4:45 pm
Get your running shoes on for the CF Trust
4 Aug 2009, 3:26 pm
Water Baby Eva
30 Jul 2009, 9:40 am
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Extended Info

CF Trust on the web:

CF Trust Blog

CF Trust Flickr group

CF Trust on YouTube

 

When Luke met Joe Cole...:
Joe Cole made a young boy's Christmas dreams come true
as he visited budding footballer Luke Phair at the Royal Brompton Hospital. More videos about Cystic Fibrosis can be found on the BBC News website

 

Dance for CF!: Thanks to our dancing stars Kelli, Jay and Sam who are in The Sun talking about why they love to dance.

 

Fundraise while you search the web: www.everyclick.com

 

Join our forums:
Want to discuss something about CF? Join our forums:
http://www.cftrust.org.uk/forum

Events

2 upcoming eventsSee All

 
Katie Bailey

Katie Bailey im 19 and was diagnosed with cf at 3 after my sister....my annual review monday and had a lung function of 97% :D (touch wood it stays that way!) never really tell people i have cf as i dnt want people to treat me carefully as im as fit as themselves...i live everyday to the full as you never know what is around the corner!!
lets hope i stay strong for another 19yrs

Chloe

Chloe i' ve got cf xx

Joanne 'Rigby' Brayshaw

Joanne 'Rigby' Brayshaw Hi - Has anyone out there experienced discrimation when trying to get there CF affected child into primary school? Any comments/advice/experience sharing welcomed.........

Elaine Butler

Elaine Butler
Hi, I am after some advice if anyone can help - my husband has CF and our 2 year old daughter has just been diagnosed with Swine flu. We are concerned that my husband may catch it and our CF consultant has advised that he should have the swine flu immunisation however our GP has said that they immunisations are not ava...ilable until December. Does anyone know if this is true? The GP has a sign up in their surgery saying that they wuill have the vaccination from October and we now dont know what to do. ThanksRead More

StrongThunderbird April

StrongThunderbird April big props to this trust my niece has CF.

Cystic Fibrosis Trust

Cystic Fibrosis Trust We are looking for someone to take part in article who had life saving treatment in time for Christmas (e.g. a transplant), or whose partner/child had life saving treatment in time for Christmas. Please contact gfoy@cftrust.org.uk with some more info about yourself if you are interested.

Yesterday at 3:23am
Simon Parker

Simon Parker i am just wonderin if there are any lads or girls out there that are in the same boat as me. i am in a relationship with someone who suffers with cf. and just wants too know how other couples where one person has it how the other one finds it copin and stuff

Jaynee Harsum

Jaynee Harsum
thank you for this page it has made me smile laught and cry ... from a mother of 3 beautiful daughter ...leanne passed away age 10 weeks of CF... charlotte 20 has CF and is getting married in wow 10 weeks ...and lily who is a carrier ... sometimes the tears we have shed as a family could fill every ocean. but the me...mories that we have made as a family are lite by every star that glows in a beautiful clear summer sky love you my beautiful daughters x x xRead More

Mon at 2:26pm · Report
Charlotte
Charlotte
Love youtoo mum...xx
Yesterday at 4:49am
Cystic Fibrosis Trust

Cystic Fibrosis Trust Christmas is coming! Buy your CF Trust Christmas cards today and help raise vital funds http://www.cftrust.org.uk/cfshop/

Source: www.cftrust.org.uk
Registered Charity No. (England and Wales) 1079049 Registered Charity No. (Scotland) SC40196Registered Company No. 3880213
Karen Elizabeth Brownson
Karen Elizabeth Brownson
just got mine , thanks all for reminding me x
Yesterday at 5:29am
Jayne Dutton
Jayne Dutton
got two lots of cards and wrapping paper hope its enough
3 hours ago
David McGow

David McGow I am nearly 43 years old and still doing quite well and my next achievement would be to reach my 50th!!

Mon at 3:31am · Report
Julie Mollitor
Julie Mollitor
wow! that gives me hope! My 7 year old granddaughter has cf
Yesterday at 2:23pm
Cystic Fibrosis Trust

Cystic Fibrosis Trust 's feed: CF Trust Blog

YOUNG SINGER SONGWRITERS TEAM UP TO SEE OFF CF
A charity single and album are set to raise vital funds for the Cystic Fibrosis Trust. The project has been masterminded by manager and promoter Lee Robson from Rochdale, who wanted to do something for the charity after meeting one of its young ambassadors who has Cystic Fibrosis, Kelli Gallache...

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Karen Ratcliffe

Karen Ratcliffe Halloween Ball in Tadcaster raised £800 for Cystic Fibrosis on Saturday. Check out the photos at http://www.wallworksphotography.co.uk/HALOWEENBALL.aspx

Mon at 2:49am · Report
Cystic Fibrosis Trust

Cystic Fibrosis Trust A charity album featuring young talented singer-songwriters will raise vital funds for the CF Trust. Find out more http://tiny.cc/a3gRc

Lorraine Barnes

Lorraine Barnes GET IT OFF YOUR CHEST t-shirts, hoodies and tote bags on sale NOW. Ideal Christmas presents. Log on to http://www.mrblippy.co.uk for more details.

http://www.onetruemedia.com/shared?p=867e97d547f20a2a20203d&skin_id=601&utm_source=otm&utm_medium=text_url

Ivana Atanasoska

Ivana Atanasoska Hello all. I am from Macedonia, I'm 18 years old and I have Cf. I want to ask whether there is a chance to live longer than 35 years... I am a bit scared :S

Sorry for my bad English

October 31 at 11:09am · Report
Cystic Fibrosis Trust
Cystic Fibrosis Trust
Hi there – the current media predicted survival for people with CF in the UK is 35. This means that half of those with CF will die before 35 years old and half will live longer. In fact there are lots of people with CF living into their 40s, 50s and beyond. Click here http://www.cftrust.org.uk/aboutcf/publications/cftoday/CFToday-Autumn09.pdf and ... Read Morego to page 13 to to read a recent article from CF Today about life expectancy. Hope that helps and try not to worry, every person with CF is very different. If you have concerns speak to your CF doctor.
Mon at 4:09am
Louise
Louise
Hi ya Ivana, dont be scared, this life is what you make it......I have CF I'm 37 yrs old will be 38 at Christmas, I have two kids 18 and 16.....I live my life to the full, I have good times and bad times.....there will be challenges in your life but dont let them get you down, just keep smiling and enjoying each and every day :-) x
Yesterday at 6:19am