Welcome to the ''Like' page of the charity Contact a Family. You can ask questions, take part in discussions, listen to our podcasts and find out more about us. The page is managed by our New Media Adviser, Steve, with help from a Parent Adviser.
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Disclaimer
Contact a Family has tried to ensure that the contents of our websites are accurate. However, Contact a Family does not represent or warrant that the information accessible via our websites is accurate, complete or up to date. Price and availability of information is subject to change without notice.
Our social networking websites are made available for public use solely on the basis that Contact a Family excludes to the extent lawfully permitted all liability whatsoever for any loss or damage arising out of use of our websites or reliance upon their contents.
Contact a Family is not a medical organisation, therefore we can only provide general information that is not intended to be a substitute for a proper medical assessment. If you have a specific question about a condition, we recommend that you obtain further information from your medical practitioner.
The information contained on our social networking websites was correct at the time of writing. However, due to research and medical advances, the content may not be completely up to date.
Our social networking websites are made available for public use solely on the basis that Contact a Family excludes to the extent lawfully permitted all liability whatsoever for any loss or damage arising out of use of our websites or reliance upon their contents.
Contact a Family is not a medical organisation, therefore we can only provide general information that is not intended to be a substitute for a proper medical assessment. If you have a specific question about a condition, we recommend that you obtain further information from your medical practitioner.
The information contained on our social networking websites was correct at the time of writing. However, due to research and medical advances, the content may not be completely up to date.
Helen Prescott
Hi im new to all this but looking for people or some1 who has the same condition as my 18month old son M-CMTC syndrome: Macrocephaly - Cutis Marmorata Telangiectasia Congenita syndrome.
Were in kent uk as this is a really condition there isnt much info so would really like to talk to others.xx
Toni Bewley Sorry no idea why it posted so many times
Toni Bewley Forgot to say blog is lifesupportathome.blogspot.com. I have found breath on support group for pArents and cares with children and young people on life support very useful
Toni Bewley Hi I am mum to a ventilator dependent daughter . I am also a nurse lecturer, at present I am trying to find out important issues relating to basic communication that you would like me to pass on to new health care students. These include nurses, midwives, operating department practitioners and paramedics. I also have ...blog about our personal experiences of life support .
Daniel Known As Eddie
We have got members together and we have used the membership base to allow bulk buys of a product.
The Seat belt safety guard gives a solution to the problem of children undoing there seat belt.
We have been given a massive discount on this product and can now sell this product at £4.25 rather than the RRP of over £14
Thi...s offer will sell out soon so be quick and buy a seatbelt guard today
http://www.parentsofdisabledchildren.co.
Contact a Family - For Families With Disabled Children
The Research Centre at the National Children's Bureau (NCB) is looking to recruit 15 children and young people aged between 11-16 years to become Young NCB Research Advisers.
Each young adviser will receive a £20 shopping voucher each time they attend one of the three meetings to prepare them to do this job. The deadlin...e for applications is Monday 20 September 2010.
If you have any questions please email rkingston@ncb.org.uk
Andi Weaver
Hello! Hoping this information may be of help to some families in the Cheshire area.
Cheshire Centre for Independent Living (CCIL) has been commissioned to provide a new form of Direct Payments Pilot project, known as Aiming High Individual Payments (AHIPS). For those families living in the Cheshire West & Chester or C...heshire East local authority areas, receiving the higher rate of DLA for either the mobility or care component, and do not currently have an open case with Social Care services; families will be offered four hours funding per week, per family, until the 31st March 2011. The purpose is to empower children to participate in short breaks of their choice within their local community without the need for further assessment. For further information contact: CCIL: www.cheshirecil.org Telephone 01606 872760
Contact a Family - For Families With Disabled Children
The Family Justice Review was set up earlier this year by the Ministry of Justice and is investigating how to improve the family justice system. The Review particularly wants to hear from people who have had experience or been affected by divorce, child contact or residence issues or care proceedings for children.
If y...ou would like to have your say, follow the link below.
Lesley Fox would like some advise on special walkers for rehabilitation. the one my daughter currently has not really suitable. any ideas would be appreciated - may fund raise to buy it. currently has corocodile but she rests arms on it when walking so not natural walking. she wants to go to the next step of walking unaided but normal frame not enough support
Contact a Family - For Families With Disabled Children
Good morning all! Have you visited fSDC's diary project yet? There are some great blog posts being written by families, recording their views and experiences. Some of the contributors are visitors here too! I really recommend checking these blogs out.
Steve
Contact a Family - For Families With Disabled Children
The Adfam Grandparent Carers Project and Grandparents Plus are celebrating Grandparents’ Day 2010 at an event for grandparent carers and the professionals who work with them, in London on 13 September. For more details please contact Vicky Brooks at v.brooks@adfam.org.uk or call 020 7553 7652.
And remember, there is lo...ts of grandparenting info on our site: http://www.cafamily.org.uk/grandparents.
Alison Wiles
Benefit cuts will have a catastrophic effect on our children and adults with Autism PLEASE ACT NOW - the cuts are already a reality for many of us! http://actnow01.web.officelive.com/Signt
Sandile Msizi Im alse disabled
Contact a Family - For Families With Disabled Children More from our West Mids Office: A transition workshop for parents/carers and their young person (secondary school age) is taking place on 27 November at Coventry Parent Partnership Service. Spaces are limited, so please call Katherine on 024 7669 4307 to book your place. This is primarily for families in Coventry, howe...ver, if there is interest we hope to offer the workshop in other areas.
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Contact a Family - For Families With Disabled Children discussed PCH on the Contact a Family - For Families With Disabled Children discussion board.
