At the Cornea Research Foundation of America, we are developing solutions and inspiring hope. www.cornea.org
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5 กิจกรรมที่ผ่านมาดูทั้งหมด
- Focus on Education seminar for...
Ritz Charles Event Center
7 พฤศจิกายนเวลา 8:00 น. - Most Beautiful Eyes Contest
world wide web
21 สิงหาคมเวลา 0:00 น. - Keratoconus Seminar
Ritz Charles Event Center
29 สิงหาคมเวลา 8:00 น. - 12th Annual Cornea Golf Classic
Wood Wind Golf Club
11 มิถุนายนเวลา 11:30 น. - CRFA Annual Women's Luncheon &...
The Propylaeum Club
22 เมษายนเวลา 11:30 น.
วิดีโอ
2 จากวิดีโอ 3 เรื่องแสดงทั้งหมด
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Gabriela
My son is 14 years , we just discover that he has bilateral PPCD, I would like to know if is there any corneal specialist that focus on this only, or if there is any current research, that can may be help us avoid the corneal transplant when this progresses??
Thanks
The annual Torchbearer Award recognizes individuals whose lifetime service and commitment to the field of vision care have helped light the way for others. We are pleased to announce the first recipient of the Torchbearer Award is Jorge Alio, M.D...
On November 4, the Foundation hosted the first collaborative meeting of the Alliance at the Renaissance Hotel in Carmel, IN...
Pranveer Singh Rao We were discussing the corneal transplant..... and the awareness related issues among friends.... when a friend of mine suggested why not artificial cornea..... We googled it..... and whoa........amazing. You guys have done an incredible job.... congrats.
Manish Jain I am an Ophthalmologist. i need to contact Dr. Price or someone actually in R & D.
Cornea Research Foundation of America Thank you for sharing this story, Mrs. Bebble, and we wish you and your son all the best. Your ideas are innovative and show what can result when you think creatively and give loving support to someone you care about. Best wishes, Elaine
Regan Bebble
Hello All
- I have a 10 year old son that was involved in a traumatic eye injury while playing at the neighbor's house about 10 months ago to the day. A babysitter threw a bamboo skewer across the living room and it struck my son in his left eye. The laceration was a corneal stellate (star shape) with leaking fluid, h...is eye was completely milky covered within 10 hours. The first surgery was tedious and done to stabilize the cornea. Our amazing doctor carefully extracted miniscule wood shavings from the inner eye and performednothing short of a miracle accordin to all the eye doctors we have seen. AJ was sewn up with 10 sutures , and a partial iris removal was done. 2 days later he was in surgery to remove a complex cataract, and implanted with an IOL. AJ has made remarkable progress, and I know how extremely lucky we are. However, his outlook for the future remains the same and it appears that this may be as good as its going to get. His vision currently stands at 50/20, ( which is a huge feat in itself) however he no longer has the ability to focus, he lost all his peripheral vision, and due to the nature of the scarring, his vision is like viewing life through a pinhole. He has daily migraines, extreme sensitivity to light, also, he has developed extreme caution and fearfulness that not only reinjury to his eye could occur, but worse, that something may happen to the other eye as well.
We are currently in a lawsuit with the homeowners insurance of the babysitter. We understand accidents happen and we are not angry with the babysitter, however this is something my son will live with for the rest of his life, and he has begun to feel hopeless. I struggled with what a fair amount of compensation would be for what my son is going through. I feel I am not asking for the world. To help me decide what to do I asked my son a simple question. If you had a choice between half a million dollars ( a random amount ) and no improvement in your vision, would you take it?
His answer was quick and simple. "Mom, all the money in the world won't take away this feeling" I would rather donate whatever money comes from this to a research place so that maybe they could fix me to the way i was before, and other kids. I don't want anyone to ever have to feel the way I feel.
Pretty powerful. I was speechless, humbled but more than that, I felt that he might be onto something. And it sparked an idea...I told my son, what if you did just that. What if you donated a portion of the money to research? Which brings me to the idea my son and I came up with to raise money and awareness for this cause. My son doesn't believe a ten year old has the ability to do much of anything, but I completely disagree. Once in awhile a rare person comes along who is willing to give of themselves so completely and selflessly, those are the people that affect the greatest change. Since his injury we have picked up different collectibles with eyeballs on them. Aj made a decision that if this was going to be his lot in life than he was going to "own it" and make it his own.
He has been on a mission to collect eyeball art, anything from bottles, to photos, but we really love the original artworks we've found in different places. This is where the idea started...Just recently I asked my artsy family members to design the most awesome, colorful, and original artworks for my son this Christmas in lieu of gifts. This is more special I thought and he would love it.
But why couldn't it be more than that...what if people all over started sending him pieces. I would love for him to start receiving these pieces just to kick start his hope again. He told me that seeing the pictures in his room everyday reminds him of what he went through, but more importantly what he has overcome. Powerful...he would like to one day be in the Guinness Book of World Records for Largest Collection of Eyeball Art. Funny, right...stranger things have happened...
He wants to house his collection somewhere "cool" someday and charge a donation to view these pieces with the money to go to research. We also had the idea of selecting a winner each month and making t-shirts to sell to donate...the ideas keep ballooning.
I am a proud, proud mother, with an amazing son and a Call to Action. Let's see what happens. We would like to call it the "One Eye Open Project" because AJ used to console me when I would get down or feeling guilty. He would tell me,"mom, I only need one eye to see." It used to make me smile with sadness at what that would feel like...so in honor of my son and his amazing attitude toward making his situation better and the lives of others ... we would like to invite anyone interested to take part in the "One Eye Open Project" ...sometimes only one eye open can change your whole perspective.
Thank you sincerely, Regan Bebble
Please let me know if anyone is interested...we have many more ideas ... thank you.
Daisy Mann
Hello there!
Can anyone tell me how you treat grade four staining? Ive been putting chloramphenicol & Systane drops in my right eye for over three weeks and it still hasnt cleared. until it clears up my optician cannot give me my prescription for my new specs :(
Cornea Research Foundation of America Focus on Education was begun by the Foundation in1992 and has continued as an annual event for optometrists moderated by Kathy Kelley, O.D. Speaker presentations are included along with lunch, informal networking and a vendor product display area. Participants complete 6 or more hours of instruction approved for contin...uing education credits, COPE. The 2009 program will complete 7 COPE hours.
Continuing Education for Optometrists
เวลา:7 พฤศจิกายน 2009 8:00
สถานที่::Ritz Charles Event Center
Cornea Research Foundation of America Greetings friends and fans! If you missed our annual Golf Classic this year, check out our video under the "MY STUFF" tab or thumb through our photo album! Hope to see you next year!
Cornea Research Foundation of America
The National Keratoconus Foundation and the Cornea Research Foundation of America are pleased to co-sponsor this free seminar in Indianapolis, Indiana.
Topics include updates on keratoconus research studies, medical and genetic aspects, contact lenses, Intacs, transplants and a patient panel, an opportunity to network a...nd establish a patient support group for attendees.
When: Saturday August 29, 2009
Who: Keratoconus patients and family (children over age of 14 are welcome)
Cost: Free, but registration is required.
How to Register:
email Elainevoci@cornea.org or call 317-814-2993.
For overnight accommodations, a block of rooms has been reserved at Homewood Suites at the Crossing located at 2501 East 86th Street in Indianapolis, IN 46240 at the rate of $99 per night for a King or Twin Master Suite. Call 317-253-1919 and ask for the "Price Vision Group Keratoconus Seminar" rate. The hotel will provide a shuttle to the Event Center on Saturday morning.
An inspirational and educational event for patients and families
เวลา:29 สิงหาคม 2009 8:00
สถานที่::Ritz Charles Event Center
