Come join Team Browne at the annual LA MPS Walk/Run - October 17, 2009
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- Courage on The London Garcia Show 12:57am Jul 25|1 Comment
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Courage Los Angeles MPS Walk/Run tomorrow! We hope to see everyone there! - www.mpsrun.com
Source: www.mpsrun.com
MPS LA Walk/Run Annual Event. The National MPS Society's LA Run is one of over 20 runs nationwide. Started in 2001, when there was no treatment available for any child with an MPS or ML disorder. Most all children died before adulthood from the devastating effects of this disease. ...
Monica Daebritz Sharon is an amazing teacher and mom. Thanks to Jonathon for making their story know. Never, never, never give up. Winston Churchill.
Linds Way to go Jonathon! You rock!
Dave Great job Jonathan, keep it going!!
Kristi Eickmeier Sheehan-Pizillo Can't wait to purchase the dvd. My daughter and I went to the courage event, but I would really like the rest of my family to see about this disease and how Sharon rocks!!!!!
Courage
Join Russell, Alex, Sharon, and the rest of Team Browne as they walk to fund research for treatments and a cure.
Benefiting the National MPS Society the WALK & RUN L.A. (as featured in "Courage") is a 5K race and 1 mile family fun walk to heighten public awareness and raise money to fund research. Although there is curr...ently no cure for MPS, research is making great strides. Carrier detection, the development of replacement enzymes, and the possibility of gene therapy are among today's research themes and treatment options. We've made major advancements in research thanks to our Walk/Run events!
Register online now at http://www.mpsrun.comRead More
Benefiting the National MPS Society the WALK & RUN L.A. (as featured in "Courage") is a 5K race and 1 mile family fun walk to heighten public awareness and raise money to fund research. Although there is curr...ently no cure for MPS, research is making great strides. Carrier detection, the development of replacement enzymes, and the possibility of gene therapy are among today's research themes and treatment options. We've made major advancements in research thanks to our Walk/Run events!
Register online now at http://www.mpsrun.comRead More
Courage
Read a special update from Sharon Browne & register for the 2009 MPS Walk/Run - http://www.jonathanformica.com/courage/s
Source: www.jonathanformica.com
Super Cool Little Sister, Awesome Daughter (At least that’s what I hear my mom say), She Curls Up Her Cute Little Button Nose Every Time She Smiles And When She Smiles Her Entire Little Face Lights Up! ...
Nelly Clarice They must bring courage back 2 the hit
Rudy
Hats off to you Jonathan! My wife and I have started a journey of raising awareness about MPS diseases and started The Emma-Rose Fund. It's main purpose is to educate people about MPS diseases and ultimately raise dollars to support those parents in need of additional funding. The Fund is a 100% non-profit initiative. ...With much research and dialogue with experts, healthcare providers, and families of children with MPS, the Emma-Rose Fund will donate its proceeds to SickKids Foundation and the Canadian MPS Society. Here is your opportunity to become an Emma-Rose Champion! Visit our site and lets help find a cure for MPS. http://www.emma-rose.caRead More
Source: www.emma-rose.ca
The Emma-Rose Fund (Non-Profit Initiative) is inspired by Emma-Rose Grenon-Lemaitre, a beautiful little girl with Hurler Syndrome (MPS I), and her family, to support children with Mucopolysaccharide diseases (MPS).
Tami Hey Johnathan, I have the GDLA on DVD if you would like it?
Tami Great Job! Thank you both so much for everything you do for. You are making a difference for all our babies!!
Joshua Odoom
WOW,thanks
Sheryl Family It's amazing how many outlets of information are on facebook!
The “Courage” is now spreading to “The London Garcia Show” on LA Talk Radio. You can listen to a live interview with Sharon Browne and Jonathan Formica at 3:00 PM PST this Sunday, July 26th by visiting www.latalkradio.com and clicking on “Channel 2” live feed. We'll be t...
