Cystic Fibrosis Foundation
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Flickr pictures by Cystic Fibrosis Foundation | Showing 8 photos within the 2009 GREAT STRIDES Lafayette set

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Carolanne

Carolanne Is CFF going to be involved in the CHASE COMMUNITY GIVING on facebook?

30 minutes ago · Report
Carin Schwartz

Carin Schwartz GREAT NEWS.....Prevacid is now over the counter....our daughter takes it to help w/ the enzymes...we pay $50 a month and now it is $12.99. I put a call into the clinic to see if we can use it...the Pharmacist said it was exactly the same.

2 hours ago · Report
Robert Brown

Robert Brown
I would tell anyone to look into the clinical trials for vx-770 many states are recruiting for the phase 3 trials. This could be a huge breakthrough for anyone with cf if the treatment works. For those of you who are not familiar with it, google vx-770 clinical trials and it will tell you all about the drug. I myse...lf am waiting to hear back from my doctor about joining the trials when recruitment in Ann Arbor Michigan begins.Read More

2 hours ago · Report
Karin Wetterberg

Karin Wetterberg I was just wondering, where does everybody live?? I'm 15 years ol whit CF, and I'm from Sweden. ♥ !!

3 hours ago · Report
Angela Bastedo
Angela Bastedo
Pennsylvania
about an hour ago
Shelley Cunningham
Shelley Cunningham
Washington state
49 minutes ago
Becca

Becca i'm 21 with CF! hope everyone is managing to stay healthy! it's that time of the year =/ seems like any time this year hasn't been the best though..

5 hours ago · Report
Megan Mobley
Megan Mobley
Im with ya sista!! Lets just hope the new year will have new cf meds and equipment and a cure!!
5 hours ago
Christy Parrish-Burns

Christy Parrish-Burns The doc told me today that my daughters throat culture says she has MRSA what does that mean?

6 hours ago · Report
Jennie
Jennie
a bactiera infection common to cf paitents. it is why cf people are no longer allowed around each other without wearing gloves and masks. those who dont have it dont want it. i am sure your doctor will take an active stankd and keep an eye on her. good luck and God Bless
5 hours ago
Mariah Anderson

Mariah Anderson who is going to the cf walk?

6 hours ago · Report
Melissa Bowman McFadden

Melissa Bowman McFadden
Does anybody else have problems with getting their children to eat? My daughter is 16 months old and she is not interested in eating. She will good some times but mostly she spits it out. We can usually get her to drink her Pediasure but some times she will not even drink that. She has not gained weight in a few mo...nths but the clinic does not seem especially concerned. I know that weight is very important for CFers but I am at a loss. We have tried several different things and numerous different foods with her but she is not interested in any of it. Any advise would be GREAT!!!!Read More

7 hours ago · Report
Melissa Bowman McFadden
Melissa Bowman McFadden
Thank you. I know that we all try to avoid the G-Tubes but everything that I have heard about them is good. I am really glad that they are available and I can only imagine the stress that would be lifted if I did not have to constantly worry about the amount of calories that she is getting in a day!!!!
6 hours ago
Shannon Dietz Vaughn
Shannon Dietz Vaughn
My 2 year old daughter has had a low appetite her whole life. I pack in as much fat and calories as I can into what she is willing to eat. I use high cal butter, heavy cream, canola oil, Duocal and whatever else I can think of. It's a daily challenge. Leah is also on an appetite stimulant called Periactin. This has helped, too. I have been talking to her docs about a g tube but they don't think she needs it yet.
5 hours ago
Stephy Dorvinen

Stephy Dorvinen Have a question for you married CFers. Did you getting married affect your insurance? I have Medicaid, my fiancé and I have been together for almost three years and we have a son together but have always been worried that getting married would not be worth it financially? I live in MI and trying to get answers from my social worker at DHS or anyone else is like trying to nail jello to a tree...

Robert Brown
Robert Brown
I am 25 and married. I also have medicaid. When I got married and we had our son, the only thing that changed for me was the amount I had to pay per year. Because I know have a larger family but my income hasnt really changed from work, I have to pay a little less. Its really almost nothing... its like 150 a year or somthing stupid. It did ... Read Morehelp that my wife already had her own insurance through work, which is the insurance our son is on. Im not sure if your fiance has insurance or not, but that would make a big difference.
3 hours ago
Cystic Fibrosis Foundation

Cystic Fibrosis Foundation Great news! CVS/pharmacy and Warner Home Video are donating $5 of every DVD sale from these videos to the Cystic Fibrosis Foundation: "How the Grinch Stole Christmas," "The Year Without A Santa Claus," and "Jack Frost.” Have you gotten yours yet? Let us know! http://bit.ly/5pc2mt

8 hours ago
Paul OLeary

Paul OLeary
My music group, Future Now, just uploaded a video on our song "ObamaNation." Since so many have such diverse views, we gave the video's initial release an interesting twist, "add your own background to the Green Screen." It starts and ends with instructions on how to participate with the video. We got the idea from the... time during the election... when John M released an ad/speech with only a green screen behind him. It was so odd. But, this time we have a real reason for utilizing the green screen. Hope you like it. Thanks, Paul. Find the video at
http://vids.myspace.com/index.cfm?fuseaction=vids.individual&videoid=100857866
Read More

Yesterday at 11:13pm · Report
Angela Bastedo

Angela Bastedo Hi everyone! I am 25 with CF and CFRD. I have two children and despite some complications with CF I live a good life! I like to talk to others about their relationships with CF. I think its encouraging to see how others cope and progress. I like to encourage others with CF in their lives! Add me as a friend if youd like to have a CF friend! Take care and hope for everyone to stay in good health!

Yesterday at 8:31pm · Report
Shannon Barrett-Batayiannis
Shannon Barrett-Batayiannis
I will add u..My 11 yr old son has CF.
7 hours ago
Megan Mobley
Megan Mobley
Hey!! Im 22 with CF its always nice to have someone to talk to!
6 hours ago
Nolan Courchesne

Nolan Courchesne Hey everyone i'm Nolan i'm 18 soon to be 19 i have cf and i just want to say i hope everyone is doing well :)

Yesterday at 7:55pm · Report
Jessy Pratt

Jessy Pratt
I am 31, 5'6, finally up to 124 lbs after starting small amounts of insulin 3 years ago. My fev1 is around 58%. For about 3 weeks now, I have been vomiting after coughing, and I have coughed much much harder in the past. Does anyone else vomit more than once a day and not even cough that much? I'm not nauseous righ...t now (go through bouts of that), so I don't know where this is coming from. Does anyone else have any light on this? I'm worried about losing all the weight I gained!Read More

Yesterday at 7:48pm · Report
Stephy Dorvinen
Stephy Dorvinen
I have the same problem with coughing so hard I vomit. I was prescribed Zofran for the nausea, which comes and goes. I have yet to find something that calms my cough and most doctors don't want it to be toned down because of the mucus issue. Most of the time it isn't even a productive cough, more annoying than anything...
7 hours ago
Jessy Pratt
Jessy Pratt
I notice a more productive cough if I am well hydrated. I think some of the problem may be I feel constant drainage down my throat and like Lee was saying, my stomach may have a lot in there and then I vomit?
about an hour ago
Adam

Adam Hello everybody! I have a 6 month old daughter diagnosed with CF at 2 weeks old. Always looking for some new friends to share stories with and offer any support to! Anyone on this page is welcome to friend me :)

Yesterday at 7:42pm · Report
Melissa Bowman McFadden
Melissa Bowman McFadden
Hey Adam! I am a mother of two cfers. My first is 16 months and my second is 5 months. Add me as a friend if you would like to talk. I am from Ohio and it looks like you may be as well.
7 hours ago