Cystic Fibrosis Foundation

Pennsylvania

Washington state

Im with ya sista!! Lets just hope the new year will have new cf meds and equipment and a cure!!

a bactiera infection common to cf paitents. it is why cf people are no longer allowed around each other without wearing gloves and masks. those who dont have it dont want it. i am sure your doctor will take an active stankd and keep an eye on her. good luck and God Bless

Thank you. I know that we all try to avoid the G-Tubes but everything that I have heard about them is good. I am really glad that they are available and I can only imagine the stress that would be lifted if I did not have to constantly worry about the amount of calories that she is getting in a day!!!!

My 2 year old daughter has had a low appetite her whole life. I pack in as much fat and calories as I can into what she is willing to eat. I use high cal butter, heavy cream, canola oil, Duocal and whatever else I can think of. It's a daily challenge. Leah is also on an appetite stimulant called Periactin. This has helped, too. I have been talking to her docs about a g tube but they don't think she needs it yet.

I am 25 and married. I also have medicaid. When I got married and we had our son, the only thing that changed for me was the amount I had to pay per year. Because I know have a larger family but my income hasnt really changed from work, I have to pay a little less. Its really almost nothing... its like 150 a year or somthing stupid. It did ... Read Morehelp that my wife already had her own insurance through work, which is the insurance our son is on. Im not sure if your fiance has insurance or not, but that would make a big difference.

I will add u..My 11 yr old son has CF.

Hey!! Im 22 with CF its always nice to have someone to talk to!

I have the same problem with coughing so hard I vomit. I was prescribed Zofran for the nausea, which comes and goes. I have yet to find something that calms my cough and most doctors don't want it to be toned down because of the mucus issue. Most of the time it isn't even a productive cough, more annoying than anything...

I notice a more productive cough if I am well hydrated. I think some of the problem may be I feel constant drainage down my throat and like Lee was saying, my stomach may have a lot in there and then I vomit?

Hey Adam! I am a mother of two cfers. My first is 16 months and my second is 5 months. Add me as a friend if you would like to talk. I am from Ohio and it looks like you may be as well.