The Cystic Fibrosis Foundation is committed to advancing the search for a cure for CF.
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Flickr pictures by Cystic Fibrosis Foundation | Showing 8 photos within the 2009 GREAT STRIDES Lafayette set
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Jimmy Lee Johnson It is possible some CF patients only have digestive problems or respiratory problems - some have both. My son Jarrod had both - he passed away 2/3/2001 after battling for 21 years. I know how you feel. My son was diagnosed at approx. 22months age.
Amy Kirkland Thomas I have a 2 month old daughter with CF who is only showing digestive problems so far. I was wondering if anyone could tell me at what age children normally start showing lung issues. I think I'm still in denial that anything is wrong with her since she seems so normal!
Norma Jean
I am so encuraged with the advances in treatments for CF and the possible cure in the near future. At least treatments that will make this a disease one can live with rather than die with. But I just celebrated my 65th birthday and was not diagnosed until age 53 although I was ill all my life starting school at age o...f almost 7 due to being too ill to start at age 6 and I was tutored durng part of the 4th grade and always missed a lot of school. I knew I was ill but we had no idea why other than extremely severe sinusitis. Finally at the age of 53 I was referred to HUP (Pennsyania) where a great ENT first suspected CF due to pseudonomas and my history among other signs. The sweat test was positive and the DeltaF508 gene was found. Later a 5T allele was found. I do have minor lung disease now but my sinus disease is much better due to the CF treatments and the ENT treatments. Long story.Read More
Megan Clancy Im wondering if anyone needs my help writing anything about CF? Im a journalist with a masters degree in genetics so let me know
Sherry hey all! I know that no two cases of CF are the same (even with the same genetic combo), but our eight month old has DF508/1717~1G>A mutations and I was wondering if there is anyone else out there with this make-up and how you are doing? Sadie is doing well right now, she's mostly digestive issues so far.
Kelly Geist
CFF Iowa Chapter held its 7th annual Wine Opener last evening and it was a SMASHING success! Keep the faith as we march towards the cure!!
http://www.facebook.com/pages/West-Des-M
Elaine Nolan
Just joined page and think its great, my daughter is 8 years old and has cf she is doing very well. looking at these comments about screening and sweat test just brought back all the feelings and thoughts we had when our daughter was diagnosed, it was the worst time of our lives.But we got over it and battled on and he...re we are now 8 years on and having the time of our lives. After getting over the intial shock we decided this disease was not going to beat us and it certainly has not. Ruth lives a perfectly normal life and there is no stop in her,we have never treated her any different to any of my other three chrilden .Her favourite hobby is swimming and she swims four nights a week one and a half hour sessions great form of phiso but good fun.She also enjoys horse riding,dance and diving lessons . hope this is some incourgeing info for parents who are and have only had their children diagnosed it can be a scary and lonely time.Elaine.Read More
Elizabeth Kempton My son just had a sweat test done today. The dr called and said that one on his levels were too high and that he had to do another one. Does anyone know the chances of him having CF? He is almost 3 and half and just now testing him.
Daniel Robles
SLC UTAH!
Utah Xtreme Paintball is having their first ever Paintball fundraiser with proceeds donated to Cystic Fibrosis! If you live near or in SLC come out and have a good time for a good cause.
http://www.facebook.com/event.php?eid=16
Helen Anyone have any tips for helping with the enzyme damage done to the bum? Our three week old son's bottom is red raw. We've been using the extra strength zincofax but now his wee bottom is breaking down. We've used the cholostyrene(sp?) but it just seems to get absorbed in his diaper.... It breaks my heart to see how sore it is.....Any advice is appreciated.
Jennifer Anybody out there familiar with the 507 mutation?
Leah Therese Kappelman This cause is very close to my heart and our family, as a little girl we love has CF. We would love to find a cure.
Tammy I added this page to learn more about CF as my Nephew who is 14 month's old has CF. I would love to see a cure.
