Website:
http://www.epilepsy.org.uk
Follow us on Twitter:
http://twitter.com/epileps
UK freephone helpline: 0808 800 5050
International helpline: +44 113 210 8850
Email helpline: helpline@epilepsy.org.uk
http://www.epilepsy.org.uk
Follow us on Twitter:
http://twitter.com/epileps
UK freephone helpline: 0808 800 5050
International helpline: +44 113 210 8850
Email helpline: helpline@epilepsy.org.uk
Information
- Founded:
- 5 September 1950
Fay Higgins I have just registered to climb Mount Kilimanjaro in September next year! Our son was diagnosed with epilepsy at the age of 10 , 2 years ago. Like many people we didn't know much about the condition so I am very happy to be raising awareness and cash for this worthy cause.
Briony McStea
i found this on yahoo news, it's probaby one of the sickest things i've ever read http://uk.news.yahoo.com/22/20091120/tuk
Source: uk.news.yahoo.com
An epilepsy sufferer has courted controversy in Britain by creating a public performance in which she will attempt to bring on a seizure and allow the audience to film it on their
Epilepsy Action The new UK Epilepsy Research Network would like to hear your views on epilepsy research, the formation of the network and how people with epilepsy can be involved
Source: www.epilepsy.org.uk
Over the past three years there have been discussions about the formation of a UK Epilepsy Research Network (UKERN). The network would be open to all epilepsy researchers.
Epilepsy Action We're opening an Epilepsy Action branch in Plymouth, offering support and advice for people with epilepsy. If you'd like to get involved, there will be a volunteer interest day on Monday 7 December
Source: www.epilepsy.org.uk
Epilepsy Action, the UK's largest member-led epilepsy organisation is setting up a branch in Plymouth to support local people affected by epilepsy. In partnership with local volunteers, the charity is organising a variety of events in the area.
Epilepsy Action Take part in the latest epilepsy research: What information about our medicines do we need if we are going to make informed decisions about our medicine taking?
Source: www.medicines.org.uk
What information about our medicines do we need if we are going to make informed decisions about our medicine taking?There is surprisingly little consensus on this very important question. But what we ...
Epilepsy Action We've updated ot events pages and added more running and trekking events for 2010. Are you interested in raising money for Epilepsy Action? You could be trekking to the top of Ben Nevis!
Source: www.epilepsy.org.uk
Do you fancy a fun and exciting challenge with the added bonus of making a difference at the same time?
Epilepsy Action Epilepsy seminar is being held in Truro on Monday 30 November. Guest speakers include Mary Parrett, an epilepsy specialist nurse and Steve McCarthy, secretary of our North Devon branch. The event is open to anyone with an interest in epilepsy
Source: www.epilepsy.org.uk
National charity Epilepsy Action is holding a seminar in Truro on Monday 30 November to help support people living with epilepsy in the area. The seminar will take place at Truro Town Hall, Boscawen Street, from 6.00pm to 9.00pm. The event is open to
Epilepsy Action Question for Danny: Can wearing sunglasses decrease the risk or prevent the lights from causing a seizure? Find out Danny's answer and ask him a question of your own.
Epilepsy Action Live #epilepsy advice and information online between 12pm and 2 pm today (UK time) http://www.epilepsy.org.uk/liveadvice
Source: www.epilepsy.org.uk
Epilepsy Action's weekly live online advice session, running each Wednesday from 12 noon to 2pm UK time
Sharan King Have just found this site, after being siezure free for nearly two years, I had yet another one... thankfully only small, but did feel very down afterwards. Knowing there is a site like this will help me, as when I was diagnosed many years ago, you were on your own, and it was never spoken about in public. I have had to over come many difficulties with having Epilepsy.
Kathryn Wright
Hi there,
I'm the fiancee of someone who was recently diagnosed with epilepsy. He has unexplained epilepsy, where he just seems to "faint"
We have been together about 2 years, and are very happy together, but whenever he is at work, and I am not with him, I am petrified as I don't know what is going on with him. I'm begi...nning to feel depressed with the constant worry about him.
So I want to ask if anyone else felt the same way as I do.
I think it's partly because they've never found a cause or a sign for his epilepsy, and so we don't know when he's going to have a fit, I am so frightened that he'll need to go to hospital, and I won't be there. He has memory loss and will get very stressed if I'm not nearby. Someone please tell me the way I feel is normal?
I am going out of my mind!Read More
I'm the fiancee of someone who was recently diagnosed with epilepsy. He has unexplained epilepsy, where he just seems to "faint"
We have been together about 2 years, and are very happy together, but whenever he is at work, and I am not with him, I am petrified as I don't know what is going on with him. I'm begi...nning to feel depressed with the constant worry about him.
So I want to ask if anyone else felt the same way as I do.
I think it's partly because they've never found a cause or a sign for his epilepsy, and so we don't know when he's going to have a fit, I am so frightened that he'll need to go to hospital, and I won't be there. He has memory loss and will get very stressed if I'm not nearby. Someone please tell me the way I feel is normal?
I am going out of my mind!Read More
Scott Weimer
For National Epilepsy Awareness Month "One son’s story: Getting to know my father thanks to advances in epilepsy medication" (http://tinyurl.com/y9g67t8)
Tell Your Story at healthespace.com
One son’s story: Getting to know my father thanks to advances in epilepsy medication. | engage , edu
Source: tinyurl.com
Sharing stories of personal experiences is such an important part of National Epilepsy Awareness Month. Here is a great new blog post at http://childrenshospitalblog.org written by the son of an epileptic farther:
Conrad Wace Re Dean Henshall In just 2 weeks Dean has got 4,365 fans - which means an extra £436 for the IDEA League who support families affected by Dravet Syndrome. Dean's page sponsor will continue to donate an extra 10p for every new fan - so please continue to suggest that your friends become fans. It will cost them nothing, will raise extra money & continue to raise epilepsy awareness. Thank you.
RECENT ACTIVITY
Epilepsy Action discussed performace on the Epilepsy Action discussion board.
Epilepsy Action discussed Dancer Rita Marcolo to have epileptic fit on stage on the Epilepsy Action discussion board.
