Fanconi Hope helps those affected by Fanconi Anaemia, a genetic condition causing bone marrow failure and a significantly increased risk of cancer. We are raising money for family support and help to fund research. www.fanconihope.org
Notes
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- Insurance Information Sheet 4:51am Oct 25
- Dr Spencer J. Collis joins UK FA Research Network 2:11pm Oct 21
- Report on Clinicians/Family Meeting at Chatsworth 18th & 19th Sept 09 10:43pm Oct 6
Photos
2 of 4 albumsSee All
Family and Clinicians MeetingCreated about a month ago
Charity Film Quiz NightCreated about a month ago
Events
1 past eventSee All
- Fanconi Family Meeting
Derbyshire (tbc)
Friday, September 18 at 12:00pm
Fanconi Hope Charity
An Information Sheet on Insurance for families affected by Fanconi Anaemia has just been added to the website. Share this article:
Dr. Spencer J. Collishas become a member of the UK FA Research Network Dr Collis has worked in Fanconi Anaemiaresearch for several years and has recently moved to Sheffield’s Institute for Cancer studies to set up his own lab. ...
UK and Ireland Fanconi Anaemia Clinicians/Family Meeting. The first UK and Irish FA combined family and clinicians meeting, organised by Fanconi Hope was held in the grounds of Chatsworth House, the ancestral home of our patron, the Duchess of Devonshire...
Your fundraising effortsin recentmonths have been magnificent, bringing in over £10,000! Here are some of the larger donations in August and September: Our Patron, the Duchess of Devonshire nominated us as her charity for the Chatsworth Country Fair, raising £4000. ...
Fanconi Hope Charity A selection of (not very good!) photos from the 2 days of the meeting. If you have better ones please send them to rad at fanconihope dot org
Several new information sheets are now available. For Families: An information sheet on Head and Neck Cancers by Thomas Carroll, and a sheet on Advice on Nutritional Problems for patients with FA prepared by Ms Evelyn Ward, Paediatric Dietician, St James’ Hospital, Leeds. ...
Fanconi Hope Charity Thanks to Val Taylor for organising this brilliant event which raised over £2000
Fanconi Hope Charity
Fanconi Hope on the Plinth. Jules did her stuff at 3 this morning doing a great job for Fanconi Hope. You can see her performance at http://www.oneandother.co.uk/participant
Well done Jules!
Source: www.oneandother.co.uk
This is a live webstream that may contain offensive content. The actions/opinions featured are the participants', and are not endorsed by Artichoke or Sky Arts.
Would you like to remember a loved one with a free online tribute page? Fanconi Hope has partnered with Much Loved – a charity working to help bereaved people – to enable you to create a sensitive, personalised and lasting online memorial to your loved one. Th...
Jules Sanders goes on the ‘Plinth’ in Trafalgar Square in London for Fanconi Hope at 3am on Sept 16th. You can see her ‘live’ on the webcam atwww.oneandother.co.uk “I always try to do at least one thing a year that is completely different and does some good somewhere. I have d...
There is still time to register for the UK FA Family/Clinicians meeting in the grounds of Chatsworth House on Sept 18th and 19th 2009, organised by Fanconi Hope, the UK FA Support Group...
September 18th/19th Family/Clinician Meeting Update We have around 11 families confirmed so far (a total of around 30 adults and children), but are hoping for more, so please come...
Donate while using eBay Now you can donate between 10% and 100% of the price of anything you sell on eBay. Once you’re ready to sell your item, go to the Sell hub and select ‘Advanced Sell’. As you’re filling out the details, look out for the charity box just below where you set your price. Select...
The US Guidelines for Diagnosis and Management of Fanconi Anemia , 3rd Edition, published by FARF is now available and can be downloaded here Share this article:
One recent stem cell science development that has future clinical relevance for the gene therapy of FA-affected individuals is induced pluripotent stem cell (iPS) technology...
