Fanconi Hope helps those affected by Fanconi Anaemia, a genetic condition causing bone marrow failure and a significantly increased risk of cancer. We are raising money for family support and help to fund research. www.fanconihope.org
Notes
Photos
2 of 4 albumsSee All
Family and Clinicians MeetingCreated about 2 months ago
Charity Film Quiz NightCreated about 2 months ago
Events
1 past eventSee All
- Fanconi Family Meeting
Derbyshire (tbc)
Friday, September 18 at 12:00pm
Fanconi Hope Charity
Bob Dalgleish from Fanconi Hope was invited to attend this Human Fertilisation and Embryology Authority (HFEA) Consultative Meeting on 1st Dec 2009 to review the licensing conditions for PGD for HLA tissue typing (and also for later onset, lower penetrance conditions)...
An HFEA Consultative Meeting was held on 1st Dec 2009 to review the licensing conditions for PGD for later onset, lower penetrance conditions and for HLA tissue typing...
Fanconi Hope is affiliated to CheckOrphan, a non-profit organisation located in Basel, Switzerland and Santa Cruz, California that is dedicated to rare, orphan and neglected diseases...
Christine Westmoreland will be fundraising for Fanconi Hope at the Christmas Evenings at Floralands Garden Villlage near Nottingham on 2nd and 10th December, 5.30 -8.30pm. She will be delighted to see anyone who can make it there...
We are delighted to welcome Dr Helen Walden from the Protein Function Research Laboratory at the London Research Institute in Lincoln’s Inn Fields to the UK FA Research Network. See Research Network list for further details. ...
An Information Sheet on Insurance for families affected by Fanconi Anaemia has just been added to the website. Share this article:
Dr. Spencer J. Collishas become a member of the UK FA Research Network Dr Collis has worked in Fanconi Anaemiaresearch for several years and has recently moved to Sheffield’s Institute for Cancer studies to set up his own lab. ...
UK and Ireland Fanconi Anaemia Clinicians/Family Meeting. The first UK and Irish FA combined family and clinicians meeting, organised by Fanconi Hope was held in the grounds of Chatsworth House, the ancestral home of our patron, the Duchess of Devonshire...
Your fundraising effortsin recentmonths have been magnificent, bringing in over £10,000! Here are some of the larger donations in August and September: Our Patron, the Duchess of Devonshire nominated us as her charity for the Chatsworth Country Fair, raising £4000. ...
Fanconi Hope Charity A selection of (not very good!) photos from the 2 days of the meeting. If you have better ones please send them to rad at fanconihope dot org
29 new photos
Several new information sheets are now available. For Families: An information sheet on Head and Neck Cancers by Thomas Carroll, and a sheet on Advice on Nutritional Problems for patients with FA prepared by Ms Evelyn Ward, Paediatric Dietician, St James’ Hospital, Leeds. ...
Fanconi Hope Charity Thanks to Val Taylor for organising this brilliant event which raised over £2000
37 new photos
Fanconi Hope Charity
Fanconi Hope on the Plinth. Jules did her stuff at 3 this morning doing a great job for Fanconi Hope. You can see her performance at http://www.oneandother.co.uk/participant
Well done Jules!
www.oneandother.co.uk
This is a live webstream that may contain offensive content. The actions/opinions featured are the participants', and are not endorsed by Artichoke or Sky Arts.
Would you like to remember a loved one with a free online tribute page? Fanconi Hope has partnered with Much Loved – a charity working to help bereaved people – to enable you to create a sensitive, personalised and lasting online memorial to your loved one. Th...
Jules Sanders goes on the ‘Plinth’ in Trafalgar Square in London for Fanconi Hope at 3am on Sept 16th. You can see her ‘live’ on the webcam atwww.oneandother.co.uk “I always try to do at least one thing a year that is completely different and does some good somewhere. I have d...
