CdLS-KIDS Facebook
Information
Category:
Organizations - Community Organizations
Description:
A supplement to the CdLS Online Support Group Email Discussion list. For all parents, caregivers and people who love someone with Cornelia de Lange Syndrome.
Privacy Type:
Open: All content is public.

Admins

Officers

Kimberly
Admin
Carrie
Admin
Members

6 of 673 membersSee All

Vonda
Vonda
Jessie
Jessie
Anita
Anita
Stacey Kerstetter
Stacey Kerstetter
Emma
Emma
Missy
Missy
Events

4 past eventsSee All

Video

3 of 8 videosSee All

Dana-May's sports day 2008 [HQ]
0:17 Added about 5 months ago
Jun 11, 2009 7:02am
0:15 Added about 5 months ago
My dancing kids, its so funny [HQ]
0:56 Added about 11 months ago
Report Group
 

Basic Info
 

Name:
CdLS-KIDS Facebook
Category:
Organizations - Community Organizations
Description:
A supplement to the CdLS Online Support Group Email Discussion list. For all parents, caregivers and people who love someone with Cornelia de Lange Syndrome.
Privacy Type:
Open: All content is public.

Recent News
 

News:
CdLS is a congenital syndrome, meaning it is present from birth. Most of the signs and symptoms may be recognized at birth or shortly thereafter. A child need not demonstrate each and every sign or symptom for the diagnosis to be made.

As with other syndromes, individuals with CdLS strongly resemble one another. Common characteristics include: low birthweight (often under five pounds), slow growth and small stature, and small head size (microcephaly). Typical facial features include thin eyebrows which frequently meet at midline (synophrys), long eyelashes, short upturned nose and thin, downturned lips.

Other frequent findings include excessive body hair (hirsutism), small hands and feet, partial joining of the second and third toes, incurved fifth fingers, gastroesophageal reflux, seizures, heart defects, cleft palate, bowel abnormalities, feeding difficulties, and developmental delay. Limb differences, including missing limbs or portions of limbs, usually fingers, hands or forearms, are also found in some individuals.