Feb 29th is Rare Disease Day
Information
Category:
Common Interest - Health & Wellness
Description:
This group is using the power of social networking to promote Rare Disease Day http://www.rarediseaseday.org
a day promoted by Eurordis

Tell all your Facebook friends.
Social Networking for Patient Advocacy.
Privacy Type:
Open: All content is public.

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Feb 29th is Rare Disease Day

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Basic Info
 

Name:
Feb 29th is Rare Disease Day
Category:
Common Interest - Health & Wellness
Description:
This group is using the power of social networking to promote Rare Disease Day http://www.rarediseaseday.org
a day promoted by Eurordis

Tell all your Facebook friends.
Social Networking for Patient Advocacy.
Privacy Type:
Open: All content is public.

Contact Info
 

Email:
Location:
Paris, France

Recent News
 

News:
Why Rare Disease Day?

Because we all need to know more about Rare Diseases.

Because a day focused on rare diseases can bring hope and information to people living with rare diseases, their carers and their families

Because we need an action that can bring all stakeholders of the rare disease community together with the same goal

Because we need more funds for research and care, and more research and efforts directed towards rare diseases

Because we need to keep fighting for rare disease patients…