MS keeps people from moving. We exist to make sure it doesn't.
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- Founded:
- 1946
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National Multiple Sclerosis Society
Mark. BrewerTillotson Day 6 shot in the left arm of Copaxone was the least side effected/painful yet. No burning itching stinging. Ivan really feeling quite happy about this choice of treatment. What a happy evening!
Jacqueline Clark Hi my name is jackie was dx in may 08 is anyone having pains in there lower back and have major migrains. I've been taking avonex and doc say it should help but my body is killing me.
Mary Elizabeth-Jane I hope everyone had a good day.............off to kick back, chill and relax on the couch!
Mayra
Source: www.ctv.ca
Amid the centuries-old castles of the ancient city of Ferrara is a doctor who has come upon an entirely new theory about how to treat Multiple Sclerosis, one that may profoundly change the lives of patients.
Wayne
Finally some action from an MS Society on the ground breaking work from Dr. Zamboni. Hope you find it interesting.
http://www.mssociety.ca/en/releases/nr_2
Multiple Sclerosis Society of Canada - National News Releases - MS Society marks first anniversary o
Source: www.mssociety.ca
Toronto, ON – November 23, 2009 – The Multiple Sclerosis Society of Canada announced it will request research operating grants related to chronic cerebrospinal venous insufficiency (CCSVI) and MS.
Kathie Ann Harris I was diagonised with Primary Progressive M.S. a year and a half ago! It has taken me almost all that time to come to terms with it! I really need people to talk to that have this, because I feel so alone with this disease.
Felicia Hello all...does anybody else experience "spots" in their eyesight? I swear my vision is getting worse by the minute. It's like there are white "spots" in my line of sight and I can only see things if I look sideways...this is a new one.
Romi
Today I would like to post a tribute to my loving bf Ram aka Romi.
Around June of last year I was diagnosed with MS, a chameleon-like demon. Ram and I had been dating about 2 yrs at the time. I expected him to leave me when I told him what a life with MS could mean and would mean for me as a patient and him as a caregi...ver. I even gave him the option to leave me, saying I would understand and not hold it against him. He became angry that I'd even think that he would desert me. He went with me to my MRI appointments, to get my Spinal Tap, and everytime I've ended up in the ER due to immense pain he's been there right beside me as my rock, my pillar.
I'm a young Indian female, and although I speak my native language of Punjabi fluently, making my family understand my fatigue, my pain, my stress is beyond me. Because I look "normal", they disregard the seriousness of my disability. MS is rare in Asians so there is not much awareness of it in our community, if at all. Whenever I get frustrated at the lack of understanding and compassion from family members, Ram reminds me of how loved I am. My Ram has put up with my anger, dried my tears, and given me a reason to fight this monster called MS.
God has given me a lot, but my biggest blessing is Ram's companionship. He's not my fiancé yet, he's not my husband...he couldve left a long time ago with no guilt because honestly, there was no huge committment to hold him back. But he stayed...for me, for us.
I'd go through all of life's pains all over again if it meant I'd be rewarded with the gift of Ram.
Just as I'm lucky, I'm sure all of you have someone(s) in your life who gives you the strength to go on, to keep fighting. Whether that someone is your child, your spouse, your parents, your friends, or all of the above...it is important that we take time to direct our love and attention towards them. They are God-sent, they are angels that are always with us, sometimes physically and at other times in spirit.
I love you so much, babe. :-) Thank you for everything.
-Pam aka Skanduluz, age 26, NJ Read More
Around June of last year I was diagnosed with MS, a chameleon-like demon. Ram and I had been dating about 2 yrs at the time. I expected him to leave me when I told him what a life with MS could mean and would mean for me as a patient and him as a caregi...ver. I even gave him the option to leave me, saying I would understand and not hold it against him. He became angry that I'd even think that he would desert me. He went with me to my MRI appointments, to get my Spinal Tap, and everytime I've ended up in the ER due to immense pain he's been there right beside me as my rock, my pillar.
I'm a young Indian female, and although I speak my native language of Punjabi fluently, making my family understand my fatigue, my pain, my stress is beyond me. Because I look "normal", they disregard the seriousness of my disability. MS is rare in Asians so there is not much awareness of it in our community, if at all. Whenever I get frustrated at the lack of understanding and compassion from family members, Ram reminds me of how loved I am. My Ram has put up with my anger, dried my tears, and given me a reason to fight this monster called MS.
God has given me a lot, but my biggest blessing is Ram's companionship. He's not my fiancé yet, he's not my husband...he couldve left a long time ago with no guilt because honestly, there was no huge committment to hold him back. But he stayed...for me, for us.
I'd go through all of life's pains all over again if it meant I'd be rewarded with the gift of Ram.
Just as I'm lucky, I'm sure all of you have someone(s) in your life who gives you the strength to go on, to keep fighting. Whether that someone is your child, your spouse, your parents, your friends, or all of the above...it is important that we take time to direct our love and attention towards them. They are God-sent, they are angels that are always with us, sometimes physically and at other times in spirit.
I love you so much, babe. :-) Thank you for everything.
-Pam aka Skanduluz, age 26, NJ Read More
Shyvonne Walker
I was so disappointed when I called Avonex and they said the auto-injector for Avonex is not available in the US. Why not? It's been available in Europe since at least 2004! I told her I was going to stop using Avonex and go to one of the ones that does have an auto-injector in the US. I'm really not because I love... Avonex only once a week and it doesn't hurt and I have not side effects. I just have this phobia of sticking myself lately. Funny the phobia didn't come until after the 8th shot! Oh well. I'll have to find someone to always give it to me. So disappointing!Read More
Liz Haga
got this email today. scared me enough to not get the vaccine for myself or children. anyone else hear anything like this or is it false?
http://www.citizensreport.org/2009/11/23
Source: www.citizensreport.org
Some people who have received the vaccine for the H1N1 “swine flu” virus have developed a potentially fatal muscle disorder called Guillain-Barre syndrome (GBS) and other serious side effects.
Cherie White Hi all!!! I am new to this site but 10 years with MS. I came on to spread some hopeful news. Canadians with MS were able to get the attention of the President of their MS society and now people are listening. There is a procedure CCSVI. Please just go to this site and watch the videos and read the article. If I knew how to post it I would. Go to CTV.ca The Liberation Treatment. IT's AMAZING!
Karen Hannah Hello Family, went to school today for Comp 1. Have class tomorrow night and am done until Monday morning. Have a final the 11 th and the 15 th. And am working on my online classes. I also walked about a mile. Walked up to a resale shop and it was nice out. When my husband and I came out the wind had changed and it was chilly and sprinkling.
Rae
I was talking to someone about my beautiful dream last night, about the place where I was with someone who was more than a care taker, I had NO PAIN, NO MS, I could Walk WITHOUT PAIN, beautiful meadows and rivers, saw my mom who will be gone 3 years Dec 3. Then some type of " police " told me I had to GO, I begged to s...tay , they escored me away, and I woke up. The person I talked to about it, told me It sounded like I was in heaven. If i was , i cant wait till I get there for real. But for now I will enjoy my kids.Read More
Eileen Tilley Hi new to this
