National Multiple Sclerosis Society

Nap to avoid family... I love this idea LOL Don't stress on everyone elses standards. Easier said than done I know. What was your reply to the boots straps comment? That is a new 1 to me.

good for u to be able to fall asleep so easily! I can't but I can always pretend to fall asleep in mid conversation. Actually I can blame all my blunders on MS!! LOL

Welcome Maryjane - I'm not on this part of FB as often as I should be, but these are the greatest people I have been blessed to have gotten to know and that make me feel so welcome and not alone in this journey.

Very true, Lisa. Thanks for sharing!

I'm on Copaxone too, since June... This has happened to me twice right after my inj... But I have this chest tightness often with difficulty breathing... I think it's common to MSr's, called the "Bear Hug"... Not fun! I usually just sit or stand and take several deep breaths & try to relax my body so it doesn't turn into a full on panic attack! Hope that helps?!

I called shared soulutions this morning and they told me that is my injection was at 8:30 and this happened hrs later its not a noted side affect and to call the dr before anymore injections. Does the bear hug pain come and go? Should I be seen by the dr or can nothing be done to prevent it?

Talk to your dr regardless!! Please :-) ALthough many here are more than willing to help, they do not have and should not be given final authority in regards to your health. Hope u feel better soon.

Everyone is different, that's for sure. My husband was dx in Sept and I have been overwhelmed with sadness, just as if it were me that was diagnosed! We have 2 adult sons on the other hand that are in denial about it. That to me, is VERY sad. I am left to be my husband's only "rock", it would sure be nice to have my sons there for the both of us ... Read Morethough. I have found that I need to move past that and find my own support system. I can't tell you how much I've gotten from this site!!!! If it weren't for many of you on here I'd be a MESS!!!! So for those of you that need support, you may need to look "outside the box" to get yours. It's not easy but with determination you can do it.

Lynn "YOU ARE NOT THE ONLY ONE" what you are experiencing is sadly all to common with many of us with any serious life threatening/incurable illness! My husband was with me through everything from the beginning but, as soon my neurologist handed down the final confirmed diagnosis 5 yrs ago, he looked like the blood rushed out of his face and froze... Read More. On the other hand I came home and told him he was free, I wanted a divorce! I said, I was too independent and did not want him to see me waste away! He told me that we were in this together and he wasn't going anywhere! Since that time it has all been up to me, to learn, research, do whatever would help me out. He sits back and doesn't ever talk about it. Thankfully I have experienced little to no symptoms during the entire 5 yrs but, if I mention anything he just listens and doesn't say anything. I Need a wife like MELANY lol who has been an incredible angel of support for her husband. My husband is so confident that I have everything under control, I worry about what will happen when I cant do all the things he takes for granted. However, I have started to leave more up to him and not be super woman but, it isn't easy. All I want is for him to help me reduce the amount of stress he puts me through. Right from the beginning I also refused to talk to our family about my diagnosis because I knew no one would give me the support I needed. Most of our family is gone now and the ones who remain are not worth informing, so I have received far more support and friendship from new friends.

Your right Tamara it will end up being up to us to force our doctors to take charge and provide us with the correct treatment.

Stephanie, I was diagnosed with MS in 2000. I watched the video. There is hope! I wonder how much this procedure cost because I am very interested....

Good morning Mary. Have a good Monday! Blessings abound.

Good Morning Mary Elizabeth, may your day be filled with smiles and love. hugs, patty ♥

Yeap Hurricane Mary blew past cleaning everything in her path as the skies opened up to a new sunny day. lol Have a good one sweetie.

Stress brings out many weird MS symptoms

Liz could be side affect of your meds and stress.

Someone correct me if i'm wrong,but my husbands Dr at Univ Va Med Cntr stated after the 1st disappointing 3-day Steroid infusions (w/not enough info,support & our own high hopes) that the treatment is helpful not in preventing or curing but in slowing the progression,the goal to help it not get worse. Whatever the outcome,hope you benefit from treatment too!

We have been told that it is used to slow it down, not stop it or cure it. The daily treatment should start next week.

Good morning, Monica! Have a great day.

Thanks Monica. Same to you!!

good morning

Yeah did you ever hear of the kids book series. Nate the Great. He wheres his patriots jersey the next day to school every game. Moss of course. Because he wanted to be a wide receiver, but is a running back.

Yahoooo Patriots! I was wearing my Moss jersey too, love it!