National Multiple Sclerosis Society
MS keeps people from moving. We exist to make sure it doesn't.
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1946
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0:32 Added about 5 months ago

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2:47 Added about a week ago
 
Mark. BrewerTillotson

Mark. BrewerTillotson Day 6 shot in the left arm of Copaxone was the least side effected/painful yet. No burning itching stinging. Ivan really feeling quite happy about this choice of treatment. What a happy evening!

Jacqueline Clark

Jacqueline Clark Hi my name is jackie was dx in may 08 is anyone having pains in there lower back and have major migrains. I've been taking avonex and doc say it should help but my body is killing me.

about an hour ago · Report
Mary Elizabeth-Jane

Mary Elizabeth-Jane I hope everyone had a good day.............off to kick back, chill and relax on the couch!

2 hours ago · Report
Mayra

Mayra

Source: www.ctv.ca
Amid the centuries-old castles of the ancient city of Ferrara is a doctor who has come upon an entirely new theory about how to treat Multiple Sclerosis, one that may profoundly change the lives of patients.
Mayra
Mayra
Note: To anyone watching this video for the first time, make sure you watch all of it, there are many segments so watch the whole thing.
about an hour ago
Wayne

Wayne Finally some action from an MS Society on the ground breaking work from Dr. Zamboni. Hope you find it interesting.

http://www.mssociety.ca/en/releases/nr_20091123.htm

Source: www.mssociety.ca
Toronto, ON – November 23, 2009 – The Multiple Sclerosis Society of Canada announced it will request research operating grants related to chronic cerebrospinal venous insufficiency (CCSVI) and MS.
Wayne
2 hours ago
Kathie Ann Harris

Kathie Ann Harris I was diagonised with Primary Progressive M.S. a year and a half ago! It has taken me almost all that time to come to terms with it! I really need people to talk to that have this, because I feel so alone with this disease.

3 hours ago · Report
Cindy Acosta
Cindy Acosta
Dont feel alone... there are soooo many people with this disease just be grateful that you are alive, i know that it is hard and its diffucult to see it this way, but your not alone :D
2 hours ago
Joey Koochek
Joey Koochek
Hey Kathie, I was just diagnosed about 6wks ago.
I know I am not the only one but I feel your anger.
Cindy is right about us not being the only ones.
Be Well,
Joe
about an hour ago
Melany Enstad Anaya
Melany Enstad Anaya
Hi Kathie, you're not alone!!! There are many people here who are willing to be there for you.....all you have to do is ask. Welcome to the group!
about an hour ago
Felicia

Felicia Hello all...does anybody else experience "spots" in their eyesight? I swear my vision is getting worse by the minute. It's like there are white "spots" in my line of sight and I can only see things if I look sideways...this is a new one.

3 hours ago · Report
Felicia Sexton
Felicia Sexton
i have that happen a lot i do not know why this happens. It gets worse when i am walking or have a headache.
about an hour ago
Romi

Romi
Today I would like to post a tribute to my loving bf Ram aka Romi.

Around June of last year I was diagnosed with MS, a chameleon-like demon. Ram and I had been dating about 2 yrs at the time. I expected him to leave me when I told him what a life with MS could mean and would mean for me as a patient and him as a caregi...ver. I even gave him the option to leave me, saying I would understand and not hold it against him. He became angry that I'd even think that he would desert me. He went with me to my MRI appointments, to get my Spinal Tap, and everytime I've ended up in the ER due to immense pain he's been there right beside me as my rock, my pillar.

I'm a young Indian female, and although I speak my native language of Punjabi fluently, making my family understand my fatigue, my pain, my stress is beyond me. Because I look "normal", they disregard the seriousness of my disability. MS is rare in Asians so there is not much awareness of it in our community, if at all. Whenever I get frustrated at the lack of understanding and compassion from family members, Ram reminds me of how loved I am. My Ram has put up with my anger, dried my tears, and given me a reason to fight this monster called MS.

God has given me a lot, but my biggest blessing is Ram's companionship. He's not my fiancé yet, he's not my husband...he couldve left a long time ago with no guilt because honestly, there was no huge committment to hold him back. But he stayed...for me, for us.

I'd go through all of life's pains all over again if it meant I'd be rewarded with the gift of Ram.

Just as I'm lucky, I'm sure all of you have someone(s) in your life who gives you the strength to go on, to keep fighting. Whether that someone is your child, your spouse, your parents, your friends, or all of the above...it is important that we take time to direct our love and attention towards them. They are God-sent, they are angels that are always with us, sometimes physically and at other times in spirit.

I love you so much, babe. :-) Thank you for everything.

-Pam aka Skanduluz, age 26, NJ
Read More

Melany Enstad Anaya
Melany Enstad Anaya
Pam, my husband of 24 years was just diagnosed 2 months ago and it's been overwhelming for both of us. When you love someone you look beyond a label that's been put on him/her, it's only natural. It sounds like you've found someone special, you'd better hang on to this one!!! Welcome!
59 minutes ago
Shyvonne Walker

Shyvonne Walker
I was so disappointed when I called Avonex and they said the auto-injector for Avonex is not available in the US. Why not? It's been available in Europe since at least 2004! I told her I was going to stop using Avonex and go to one of the ones that does have an auto-injector in the US. I'm really not because I love... Avonex only once a week and it doesn't hurt and I have not side effects. I just have this phobia of sticking myself lately. Funny the phobia didn't come until after the 8th shot! Oh well. I'll have to find someone to always give it to me. So disappointing!Read More

4 hours ago · Report
Mayra
Mayra
Shyvonne why can't you just switch to another ms treatment?
3 hours ago
Antoinette
Antoinette
you should be able to have your injections done by the nurse at your doctors office they are usually more than happy to give the injections for you. I am on Betaseron and like you the phobia did not come until about the 8th shot? So blessed to have a husband that is willing and able to do my injections for me when my hands aren't as steady on some days.Good Luck.
3 hours ago
Liz Haga

Liz Haga got this email today. scared me enough to not get the vaccine for myself or children. anyone else hear anything like this or is it false?

http://www.citizensreport.org/2009/11/23/h1n1-flu-vaccine-linked-to-life-threatening-muscle-disorder-other-side-effects/

Source: www.citizensreport.org
Some people who have received the vaccine for the H1N1 “swine flu” virus have developed a potentially fatal muscle disorder called Guillain-Barre syndrome (GBS) and other serious side effects.
Ann Lyons Thomas
Ann Lyons Thomas
GBS is a very rare illness. If you compare the numbers of reports of GBS vs how many people have died from H1N1 then I would say that the risk of dying from H1N1 infection is far greater then the risk of GBS.
5 hours ago
Karen Hannah
Karen Hannah
I got the shot and did fine. I think it is hit and miss with anything.
3 hours ago
Cherie White

Cherie White Hi all!!! I am new to this site but 10 years with MS. I came on to spread some hopeful news. Canadians with MS were able to get the attention of the President of their MS society and now people are listening. There is a procedure CCSVI. Please just go to this site and watch the videos and read the article. If I knew how to post it I would. Go to CTV.ca The Liberation Treatment. IT's AMAZING!

5 hours ago · Report
Ann Lyons Thomas
Ann Lyons Thomas
They videos have been posted here. You may have to go down in the page a bit - There is also a page dedicated to news and updated related to CCSVI :http://www.facebook.com/#/pages/CCSVI-in-Multiple-Sclerosis/110796282297?ref=ts
5 hours ago
Cherie White
Cherie White
Thanks, I was so excited I didn't scroll down the entire page for today.
5 hours ago
Christina
Christina
Welcome friend!
4 hours ago
Karen Hannah

Karen Hannah Hello Family, went to school today for Comp 1. Have class tomorrow night and am done until Monday morning. Have a final the 11 th and the 15 th. And am working on my online classes. I also walked about a mile. Walked up to a resale shop and it was nice out. When my husband and I came out the wind had changed and it was chilly and sprinkling.

5 hours ago · Report
Mayra
Mayra
WOW Karen proud of you!!! I did allot of walking today as well. Looks like you are busy and doing a great job....! Keep walking more everyday you'll love it and its going to help with the stress.
5 hours ago
Rae

Rae
I was talking to someone about my beautiful dream last night, about the place where I was with someone who was more than a care taker, I had NO PAIN, NO MS, I could Walk WITHOUT PAIN, beautiful meadows and rivers, saw my mom who will be gone 3 years Dec 3. Then some type of " police " told me I had to GO, I begged to s...tay , they escored me away, and I woke up. The person I talked to about it, told me It sounded like I was in heaven. If i was , i cant wait till I get there for real. But for now I will enjoy my kids.Read More

5 hours ago · Report
Eileen Tilley

Eileen Tilley Hi new to this

7 hours ago · Report
Melany Enstad Anaya
Melany Enstad Anaya
Hi Eileen, I'm kinda new too. My husband was diagnosed 2 months ago and I've learned so much here. Welcome!
3 hours ago
Jennifer Grubbs
Jennifer Grubbs
Hi Eileen and welcome to the family~glad to have you here:)
2 hours ago
Beth

Beth How do you become a fan. I"m a little slow. hahaha. My name is Beth. Diagnosed in 2005 but had symptoms since 1998.

7 hours ago · Report
Karen Hannah
Karen Hannah
Welcome Beth. You are now part of the family.
3 hours ago
Jennifer Grubbs
Jennifer Grubbs
Welcome Beth~my husband has likely had his PPMS for some time,but we're glad we didn't wait,once we finally realised this was 'something different' & a pill or surgery wouldn't fix it
2 hours ago