Andrea Shettle's Notes

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A new initiative enables users to find deaf organizations and schools in 149 countries around the world. Launched by the Gallaudet University Center for International Programs and Services (CIPS) in October 2009, the World Deaf Information Resource Project provides contact information for hundreds of international-, national-, and local-level organizations and schools globally. The website also links to on-line reports about the human rights conditions and living situation of deaf people around the world and other information resources for deaf individuals and organizations.

"Deaf people always benefit when deaf organizations, schools, and individuals are able to exchange ideas and information," says Dr. Asiah Mason, director of CIPS. "But before organizations can communicate with each other, they need a way to find each other. The new World Deaf Information Resource Project lets them do that. It is our hope this can be a powerful information resource for the global deaf community."

In addition to browsing the website, users also may download most of the same information in either Word or PDF format. The file enables users to produce a 104-page hard copy document for dissemination to contacts who might not have Internet access.

The new website can be accessed at http://cips.gallaudet.edu/wdi.xml. CIPS intends to continue expanding the website and file over time. People are invited to submit information about deaf organizations, schools, and deaf-related information resources not already included in the project to World.Deaf.Info@gallaudet.edu.

CIPS is a unit within the Gallaudet University College of Professional Studies and Outreach and is the university’s one-stop office for all things international. Gallaudet University is the only liberal arts university for deaf students in the world. Mason credits the website as being the brain-child of Dr. Amy Wilson, Director of Gallaudet University’s International Development program, and of Dr. Jay Innes, the Dean of CPSO. Andrea Shettle began the work of gathering information for the website during an internship for the MA degree program in International Development at Gallaudet.
I am neutral on the Iranian election. But I am very pro freedom of speech. Whether we agree or disagree with any given Iranian citizen, they ought to have the right to express their views. Here are simple ways you can help them defeat attempts at censorship in Iran:

1. Do you twitter? Change your twitter setting to GMT +3:30 (Tehran time) and your location to any city in Iran. If all of us are Iranians then it is a little harder for government censors to track down Iranian tweeters. (See list of Iranian cities at http://is.gd/13UCt.)

2. Read a list of a few more simple ideas for how you can help at http://is.gd/13TK4

3. Finished with #1 and #2 above? Recruit others to help too. Spread the word. Here are a few ways you can do this:

* Tweet this phrase:

Simple ways to help Iranian free speech: http://is.gd/13U0V #IranElection #gr88 Pls RT

* Also consider copy/pasting this announcement into your blog or facebook page so more people will see it. Or simply link to its original home at http://is.gd/13U0V. (If you copy/paste, please copy the text from its original home to ensure that you have any updated URLs or other information.)

* Also, consider voting for this blog post (http://is.gd/13U0V) at one or more of the following: http://www.stumbleupon.com/, http://www.reddit.com/; http://is.gd/13WVR (digg.com) That will help more people find it.

4. Looking for more ideas how to help? Consult http://iran.sharearchy.com/.
The other day, I used one of those on-line letter/petition forms generated by the people supporting the Community Choice Act to contact Obama and my representatives urging them to pass it. Okay, I'm busy and have almost no time for anything these days--but it only took a couple of minutes to express my voice on something I know matters profoundly to thousands of people with disabilities. Some day, it could well even matter to me at a more personal level. But in the meantime, I work in solidarity.

Now, Warner has wrote back to me. Notice how many times he mentions the Community Choice Act?:

--------------------

"Dear Ms. Shettle, Msw,

Thank you for your recent letter regarding reforming our nation's health care system. I share your concerns about the need for comprehensive health care reform, especially during this challenging economic time.

Although I do not support a government-run single-payer health care system, I believe we need comprehensive reform to achieve a competitive, cost-effective, and efficient system. This effort should be primarily focused on ensuring that all Americans can get adequate health coverage, and the coverage must be cost-effective and based upon data-driven medical standards. Any final reform should also include measures to promote use of electronic medical records and a more intense focus on preventive care.

When this issue comes up for debate, I plan to put progress before partisanship to work on ways to increase access to health care for all Americans. Thanks again for writing with your views on health care. I hope to have your input in the coming months as we craft legislation to improve a health care system that is in dire need of reform.


Sincerely,
MARK R. WARNER
United States Senator"

--------------------

No, you didn't miscount. There are, in fact, exactly zero references to the Community Choice Act in his response to my letter about the Community Choice Act!

Okay, I understand that Senator Warner (or more precisely, his staff) has to use form letters. I'm sure he must receive, easily, many thousands of letters each year on an incredible range of topics. They can't have a specialized form letter for every possible topic his voters might happen to raise. There are always going to be some cases where the form letter won't really quite fit the originating letter. But if someone writes about a very specific aspect of health care reform (the Community Choice Act!) that matters so very deeply to, really, ALL of us (because most of us will eventually age and in many cases may need a certain level of care support), then couldn't his office develop a better form letter to address the specific concerns involved?

It seems this issue is still depressingly invisible to certain key decision makers--including US Senator Mark Warner.
If you are even remotely plugged into the GLBT communication network, or even a casual user of twitter, then you probably already know about how Amazon’s new “adult” policy has created a situation that makes it much, much harder for consumers to search for, and find, all kinds of GLBT-books. This includes books that are not even vaguely “adult” in theme, including some children's books, and books meant to help suicidal teenagers.

If you’ve been out of touch, go to twitter.com and do a search on #amazonfail … or search the web with the term amazonfail

Receiving far less attention in most of the hullaboo so far is the fact that, apparently, at least some disability books have been targeted also, including at least one sociology text book! I gather some feminist books also have been affected, but have seen fewer details on that situation.

People with disabilities are already frequently stereotyped as being necessarily, asexual, uninterested in sex, unable to have sex, etc. All of these mistaken assumptions can lead to fatal consequences. People who run HIV/AIDS prevention programs, for example, often systematically exclude people with disabilities from their outreach efforts because they assume that they “don’t need” to know about condoms or whatever. Yet, research shows that people with disabilities are actually at higher risk for HIV/AIDS than the general population. (See http://cira.med.yale.edu/globalsurvey/ for details.)

If books on disability sexuality are being targeted in the same way as are GLBT books, then people with disabilities will find it more difficult than ever before to find factual information about their own bodies and sexuality and how to care for their health. Also people who NEED to know how to provide services to people with disabilities in relation to sexuality, including HIV/AIDS educators, medical personnel and others, will find it harder to locate accurate information to replace the misinformation and prejudiced attitudes they may be carrying. All the existing dangerous myths about sexuality in relation to people with disabilities will simply be allowed to continue, along with their potentially fatal consequences.

For more details, see the following two blog posts by excellent bloggers Kateryna Fury and Lisy Babe:

http://textualfury.wordpress.com/2009/04/12/amazonfail/
http://lisybabe.blogspot.com/2009/04/amazonfail.html

Kateryna Fury at Textual Fury is currently working on a list of disability-related books that have been affected. Please do get in touch with her (not with me!! with Kateryna!) if you identify any.

Also learn more detail about the overall situation by reading the Facebook group on the issue. You don’t have to join the group to read the page. But you do have to join if you want to post there:

http://www.facebook.com/group.php?gid=70927484220

I have now posted the following tweet:

#amazonfail on #disability too. Pls RT these: http://is.gd/sbno http://is.gd/s5I6 and http://is.gd/s5Xr #glitchmyass #GLBT #disabled

Others please feel free to copy/paste the above text into their twitter.com also. It links both Kateryna Fury’s and Lisy Babe’s posts, as well as to a similar version of this post at one of my blogs (the smaller one). The #hashtags are there to make the tweet show up more easily in certain keyword searches.

You also can hit the "share" button on this note to pass it along to your Facebook friends.
National Clearinghouse on Disability and Exchange Mobility International USA www.miusa.org
Disability Community Seminar
Accessing the World through International Exchange New York May 1, 2009

People from the U.S. disability and Deaf community are invited for this one-day seminar and luncheon in New York City as we discuss the ‘Who, What, Where and Why’ of international exchange, including overseas cultural, educational, professional and volunteer programs, for U.S. students, teachers, professionals and others with disabilities or who are Deaf/hard of hearing.

* Presenters with disabilities will share personal international exchange
stories and talk about accommodation strategies for navigating abroad,
what to bring, what to expect and more. Participants will receive
practical tools and resources on using VR and keeping SSI benefits,
while also learning about scholarships available for international
exchange.

* Representatives of international exchange organizations will present
about programs to apply to, such as Fulbright fellowships, and best
inclusive practices in the international exchange field.

When: Friday, May 1, 2009, 10:00 a.m. - 4:00 p.m.
Where:Institute of International Education (IIE)
809 United Nations Plaza
12th Floor Conference Center
New York, NY
Cost: $40(includes lunch). Scholarship for a reduced rate is available by request.

Wheelchair Accessible. Sign language interpreter, alternative formats and other disability-related accommodations provided upon request.

For More Information and Registration, go to:

http://www.miusa.org/ncde/seminarnyc
or
contact MIUSA at:
Email: clearinghouse@miusa.org
Tel/TTY: (541) 343-1284

This event is co-sponsored by Mobility International USA, the Bureau of Educational and Cultural Affairs of the U.S. Department of State and the Institute of International Education.

Registration deadline: April 17, 2009 - Space limited to 50 participants, so register early! http://www.miusa.org/ncde/seminarnyc
The following note comes from Ghulam Nabi Nizamani. Please sign the petition (http://www.thepetitionsite.com/takeaction/516925943?z00m=19752166), then post this note at your Facebook page:

Dear Friends,

A new ActionAid report describes the shocking rise of "corrective" rape in South Africa - in which South African lesbians are being raped in an effort to "cure" them of their sexual orientation. Support groups in Cape Town say they see 10 new cases of "corrective" rape every week. And it's even more widespread around the rest of the country.

Many perpetrators of rape already go unpunished in South Africa, but the situation is even worse for lesbian women. Indeed, 31 lesbian women have been murdered in homophobic attacks since 1998, but in only one of these cases has there been a conviction.

Although South Africa's constitution recognizes rights of gay and lesbian people, its legal system does not view crimes committed against gay and lesbians on the basis of sexual orientation to be hate crimes. The South African legal system must recognize "corrective" rape as a hate crime in addition to a rape in order to establish a greater punishment for this brutal and widespread act of sexual violence. Urge South African President Kgalema Motlanthe to deem "corrective" rape a hate crime!

I am shocked and horrified to read of ActionAid's recent report suggesting that "corrective" rape is widespread throughout South Africa. This practice, in which men rape lesbian women in an effort to "cure" them of their sexual orientation, is horrific and must be stopped. Then may be many Women with Disabilities are raped and killed because of their vulnerability.

http://www.thepetitionsite.com/takeaction/516925943?z00m=19752166

Regards
Ghulam Nabi Nizamani
I am re-posting the following announcement, partly as a reminder for people who wish to register but also to correct and clarify the instructions for registration:

People from around the world are invited to participate in an e-discussion on women with disabilities in development, to be conducted on-line from March 10 to 24, 2009. The email-based discussion is meant to involve aid agencies; government officials dealing with gender and disability; non-governmental organizations (NGOs); Disabled People Organizations (DPOs); and World Bank operational and technical staff.

The intent of this e-discussion is to collect experiences, problems, solutions, and unresolved issues related to the inclusion of women with disabilities in development. Participants will also be encouraged to provide references to analytical work (studies, books, articles, reports, etc.) on women with disabilities and their situation and inclusion in economic and social life. These references will be gathered into a bibliography.

The e-discussion will cover the following topics: framing the issue of women with disabilities in development; reproductive health of women with disabilities; violence against women with disabilities and access to justice; education of women with disabilities; women with disabilities and the environment; women with disabilities and employment; issues of specific concern to women with disabilities that are missing from the development agenda and what can be done to ensure that these issues receive appropriate attention; and, what concrete actions can be taken to enable women with disabilities to claim their place in the development agenda.

Participation is free, and will be in English.

If you are interested in joining the two-week e-discussion on women with disabilities in development, then you may register by following these steps:

1. Send an email to listserv@listserv.syr.edu

2. Put the following command in the SUBJECT LINE of your email:

Subject: EDISCWWD [Your First Name, Your Last Name, Your Country]

FOR EXAMPLE:
EDISCWWD Jane Smith Australia

3. In the SAME EMAIL, please put the following command in the MESSAGE BODY of your email to listserv@listserv.syr.edu:

Subscribe EDISCWWD [Your First Name, Your Last Name]

FOR EXAMPLE:

Subscribe EDISCWWD Sita Lal

If you have any questions regarding registering for the E-Discussion, please contact Kelly Hamel at kmhamel@law.syr.edu

This e-discussion is brought to you by the Disability & Development Team (HDNSP); the Office of Diversity Programs; and the Gender and Development Group at the World Bank; and the Global Partnership for Disability & Development (GPDD)

Please feel free to forward this invitation to others who might be interested in participating in the E-Discussion.
People from around the world are invited to participate in an e-discussion on women with disabilities in development, to be conducted on-line from March 10 to 24, 2009. The email-based discussion is meant to involve aid agencies; government officials dealing with gender and disability; non-governmental organizations (NGOs); Disabled People Organizations (DPOs); and World Bank operational and technical staff.

The intent of this e-discussion is to collect experiences, problems, solutions, and unresolved issues related to the inclusion of women with disabilities in development. Participants will also be encouraged to provide references to analytical work (studies, books, articles, reports, etc.) on women with disabilities and their situation and inclusion in economic and social life. These references will be gathered into a bibliography.

The e-discussion will cover the following topics: framing the issue of women with disabilities in development; reproductive health of women with disabilities; violence against women with disabilities and access to justice; education of women with disabilities; women with disabilities and the environment; women with disabilities and employment; issues of specific concern to women with disabilities that are missing from the development agenda and what can be done to ensure that these issues receive appropriate attention; and, what concrete actions can be taken to enable women with disabilities to claim their place in the development agenda.

Participation is free, and will be in English. Discussion will be launched at 3 pm on March 10, US East Coast time.

If you are interested in joining the two-week e-discussion on women with disabilities in development, then there are two ways that you may register:

1. You may send an email to listserv@listserv.syr.edu with the following command in the SUBJECT LINE of your email:

Subject: EDISCWWD [Your First Name, Your Last Name, Your Country]

FOR EXAMPLE:
EDISCWWD Jane Smith Australia

2. Another way you can register is to put the following command in the MESSAGE BODY of your email to listserv@listserv.syr.edu:

Subscribe EDISCWWD [Your First Name, Your Last Name]

FOR EXAMPLE:

Subscribe EDISCWWD Sita Lal

If you have any questions regarding registering for the E-Discussion, please contact Kelly Hamel at kmhamel@law.syr.edu

This e-discussion is brought to you by the Disability & Development Team (HDNSP); the Office of Diversity Programs; and the Gender and Development Group at the World Bank; and the Global Partnership for Disability & Development (GPDD)

Please feel free to forward this invitation to others who might be interested in participating in the E-Discussion.
Gallaudet University offers a Master's Degree in International Development which prepares students to collaborate with a variety of groups which wish to include people with disabilities in their organizations, development projects and programs. The degree draws on theories and material from disability studies, international relations, public policy, research and evaluation. Students study significant topics in international relations that affect the economic and social development of countries worldwide, including:

· the theories and strategies of international development;
· the political, social and developmental issues surrounding disability that result in the continued oppression and marginalization of disabled people around the globe;
· the links between disability and development in the areas of human rights, poverty, the environment, health, gender, children, and conflict and emergency situations such as natural disasters;
· the inclusion of disability issues in mainstream development practice;
· participatory approaches in planning, implementation, monitoring, reviewing and evaluation, National and International policy framework, and;
· practice and theory of living and studying in cultures different from one's own.

Applications for Gallaudet University's Master's Degree in International Development are due April 1st.
For those in the Washington, DC area, a Graduate School Open House will be held on campus this Friday, February 13th from 10 - 3:00.

For more information about the Master's Degree, please visit: http://edf.gallaudet.edu/x2607.xml

or contact Amy Wilson at amy.wilson@gallaudet.edu
I hope that some of my Facebook friends will 1. Copy/paste this text into YOUR Facebook page, and, 2. TAKE ACTION! Thank you!

We in the disability human rights community have an opportunity to save a life. A quick summary: a woman with disabilities in Sudsbury, Ontario, Canada (Minna Mettinen- Kekalainen) is SUPPOSED to be receiving home care services. The North East Community Care Access Center has been denying her these services. Minna says this is because she had complained about their nurses because they had failed to follow her doctor's orders. Minna is now on hunger strike in an attempt to pressure the CCAC to provide her the services she needs. However, someone who knows Minna and who is familiar with the way that care services work is concerned that this tactic will fail, and that Minna will die. Please take a few minutes to support efforts among disability rights activists to save her life.

1. First, read more about the situation at the following link. You will also want to read the comments that people have left, because people are using the comments area at this blog page to exchange more information and ideas on how people can help: http://ballastexistenz.autistics.org/?p=572

2. Send an email to the following people to urge them to intervene on Minna's behalf so she can receive the home care services that she is asking for:

Sudbury MPP Rick Bartolucci Constituency Office email: rbartolucci.mpp.co@liberal.ola.org
Ministry of Community Safety & Correctional Services email: rick.bartolucci@ontario.ca
Minister of Health & Long-Term Care David Caplan: ccu.moh@ontario.ca

Non-Canadians can use these email addresses, too. If enough individual people write to them, they may take notice.

3. Consider also communicating with the North East Community Care Access Center on Minna's behalf (unfortunately there seems to be no email contact for them):

Phone: 1-800-461-2919

Mail: North East CCAC Rainbow Centre 40 Elm St, Suite 41-C Sudbury ON P3C 1S8

To access the Long-Term Care ACTION Line call: 1-866-876-7658 or TTY: 1-800-387-5559.

(More detail on their Complaints and Appeals Process at http://tinyurl.com/aeu6vt)

4. Please circulate this text further via your network of contacts in the disability and human rights communities, Facebook page, blog site, etc.

Thank you for taking action.