American Autoimmune Related Diseases Association (AARDA)
AARDA NEEDS EVERY AUTOIMMUNE PATIENT, FAMILY MEMBER, AND FRIEND TO CONTACT THEIR U.S. REPRESENTATIVE IN SUPPORT OF H.R. 2084
Information
Founded:
1991

American Autoimmune Related Diseases Association (AARDA)

 
Randy

Randy Are you a New York/Tri-State area RA sufferer who would want to share your story on camera for a health website to help educate others? Don't contact me but email searchra@yahoo.com. They are still looking for people to share their stories.

November 5 at 11:38am · Report
American Autoimmune Related Diseases Association (AARDA)
www.washingtonpost.com
Rockville-based Human Genome Sciences announced Monday that its experimental lupus drug has completed its final round of testing at a higher dose and will be headed to the Food and Drug Administration for approval.
Connie
Connie
HOORAY! Keep us up to date!
November 4 at 8:41am
American Autoimmune Related Diseases Association (AARDA)
www.cnn.com
Amidst the sea of jerseys and bike shorts at New Jersey's City to Shore -- a 150-mile bike ride to benefit multiple sclerosis research -- one unlikely rider stands out.
Jacqueline Paterson
Jacqueline Paterson
What a fantastic lady with a beautiful soul. reading about her work brought tears to my eyes. I am sure she will be an inspiration to many
October 29 at 1:56pm
Dana Michele Moreno

Dana Michele Moreno I went to the conference in Orlando, FL over the weekend and wished everyone who has an autoimmne diseases could have been there. The conference was that good. I am really excited in writing my U.S. Rep. to help pass H.R. 2084.

October 27 at 5:45am · Report
Elaine

Elaine Hello Everyone
Please help by becoming a member of the 'Palindromic Rheumatoid Arthritis Awareness' cause to increase awareness of PRA. This rare form of Arthritis also known as Palindromic Rheumatism (PR) affects both men & women equally and between 30% and 50% of sufferers progress to Rheumatoid Arthritis. Your valued... support will be very much appreciated to improve recognition of this disease.
Thank you so much.
Elaine :-)
http://apps.facebook.com/causes/351175/21023330?m=6d54c0aa

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October 19 at 12:49pm · Report
Dawn Robinson Martin

Dawn Robinson Martin I need to do research. Any good sites to go to?

Kathy Crockett-Kane

Kathy Crockett-Kane Hi I was hoping someone could help me. I don't know where to turn. For the last 4 months I have been experiencing left sided chest pain that goes under my arm and sometimes down my arm. I also get numbness in my fingers and hand. every time I shower or get in hot water I break out in hives. They last for 30 mins-an hou...r. I have seen multiple doctors. It is not cardiac or GI related all checked out fine. They thought it was anxiety, but that doesn't seem to hold true either. I don't know what to do my rheumatoid panel turned out normal, but I still this could be some sort of autoimmune process. I am fatigued and just generally don't feel well. I am hoping someone on here might have some answers or help me figure out what to do next.

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October 11 at 7:18am · Report
Gail Lucille Woodrome

Gail Lucille Woodrome does anyone know much about dermatomyositis, my grandmother died with this diagnosis many years ago and I am having alot of the symptoms

October 10 at 3:21pm · Report
American Autoimmune Related Diseases Association (AARDA)
American Autoimmune Related Diseases Association (AARDA)
We could send you some information on dermatomyositis. Give us a call with your address 800-598-4668.
October 12 at 7:41am
American Autoimmune Related Diseases Association (AARDA)
thyroid.about.com
Save Natural Thyroid Coalition Kicks Off Advocacy Effort
American Autoimmune Related Diseases Association (AARDA)
www.newswise.com
The American Autoimmune Related Diseases Association (AARDA) announced today that it has achieved the coveted 4-star rating from Charity Navigator, the nation’s largest and most-utilized evaluators of charities.
Melody Bolin

Melody Bolin Hi! My name is Melody and my 15 year old daughter was diagnosed with MPA last year. The underlying autoimmune disease is familial and unidentified. It has typically caused pulmonary fibrosis, but in Tory's case the severity of the MPA caused complete kidney failure. Any communication from others (especially teenagers) would be welcome.

October 6 at 6:46am · Report
Ashley
October 5 at 11:46am · Report
American Autoimmune Related Diseases Association (AARDA)

American Autoimmune Related Diseases Association (AARDA) Great story on autoimmune disease, PANDAS.

www.youtube.com
PANDAS can present with severe and debilitating symptoms as in Sammy's case, or it can be more subtle and easily misdiagnosed, especially since most doctors are unfamiliar with the disorder. Tics, OCD ...
Amanda Lynne Ramsey
Amanda Lynne Ramsey
The only symptom is not OCD as this story suggests. There is more in the book, but there are also things like bedwetting, extreme separation anxiety, hallucinations, tics. My daughter has had episodes we think since age 2, getting progressively worse each time until we finally got a diagnosis just a few months ago (she is now 9.)

There are few ... See Morestudies and nothing that is technically a "cure" though treatment can be long-term antibiotics, IV ig, and Plasma exchange. Very few doctors in the US are willing to diagnose and/or treat.
September 28 at 7:51am
Vickie Bryze Blavat
Vickie Bryze Blavat
For more info on PANDAS, visit www.pandasnetwork.org
October 3 at 4:24pm
Scott Ebert

Scott Ebert anyone have cidp ? suppose to start ivig soon.

September 23 at 6:40am · Report
American Autoimmune Related Diseases Association (AARDA)
www.medicalnewstoday.com
The recent report out of the Annals of Internal Medicine profiling President John F. Kennedy's autoimmune disease surprised many Americans due to his appearance throughout his presidency of
Joy Rine
Joy Rine
wow. that explains sarcoidosis so well
September 15 at 10:15am
Carol
Carol
Interesting article. If only physicians recognized the fact that AS can be found in women also 25 yrs. ago...I would have had an earlier diagnosis. Glad it is being recognized now though because many young women can begin therapy earlier thus slowing down the disease!
September 15 at 7:24pm