Scleroderma Foundation

cant wait. Thank you so much.

My uncle died in May from complications with his scleroderma. My family and I are walking with the foundation next weekend in Longview, TX in honor of him...Since then my family and I have been educating ourselves more on the the illness.

okay i will

Can I still get the info packet? Thanks!

Thank's to all of you, God bless.

After finding out that such a simple,harmless cheap and obviously Easy to obtain vitamin was getting such a big response in the news a while back,I thought there might be something worth trying.I started off taking 5,000 IU a day,and noticed changes within about 2 weeks.well after 2 months and reading as much info on the subject as I could,... Read MoreIncreased too 10,000,5 twice a day.I thoroughly believe in the benifits and don't understand why more haven't given this a shot.I am willing to try anything to improve my affliction!

how does vit D help with the affects of scleroderma i have been told that mine is low and i hate taken the big pills

Please - everyone - write to your Senators and encourage them to sign this bill that is of utmost importance to all of us! This is how everyone can help!

I MET WITH THE CHIEF OF STAFF OF MY CONGRESSWOMAN AND MY MOM'S CONGRESSMAN ABOUT H.R.2408, TO NO AVAIL. I RECENTLY SENT MY CONGRESSWOMAN AN E MAIL TELLING I WAS DISAPOINTED. I HAVE SYSTEMIC SCLERODERMA AND I WOULD APPRECIATE MORE RESEARCH!

Thank you for the info about support groups, my mom was just diagnosed last week. Altho, she's had the symptoms for 20 yrs.

Currently there is only one support group in Oregon which is in Portland. I am starting the second one on Thursday, Aug. 13th in Bend, Oregon. The local newspaper reporter will attend and help us bring awareness to our Central Oregon area. My hand therapist sent out letters to all her past scleroderma patients letting them know about this meeting ... Read Moreand so far there is a lot of support. It is amazing how no-one seems to have heard of this disease yet quite a few in my area have it. I was interviewed for an awareness article which will be published sometime in September on Scleroderma.

Definetly looking foward to Boston, St. Louis is my hometown, but we are stationed in Virginia, so Boston is a great choice!

April, Contact Kerri Connolly at the Foundation at kconnolly@scleroderma.org. She can get you a copy of Cindy Coney's book. Best regards, Liz Dorsett

Captions of these individuals are located on our Web site at www.scleroderma.org.

good for you viviana! hope u get an A

thanks!

thanks for sharing the photos

thx for photos I hope to make one of those one day....

Kathleen, don't forget that there are scholarships available!!

Great altruist attitude, this history make me feel that the super-heroes, really exists. Good luck!

I am sorry yoy have scleroderma but so do I since the age of 17 now I am 47 will be 48 the end of september. I have had good times and bad times, some of the bad times were really rough too. You got to have a " I think I can" attitude and besides the depression it will come through the best of you. keep posititve you have a lovely family there in that pic.

My wife battle scleroderma all of life. she lost the fight at age 51. in her honor i will keep fighting to help find a cure.