The International Lyme and Associated Diseases Society (ILADS) is a nonprofit, international, multidisciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases.
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ILADS Lyme Society

ILADS Lyme Society The 2009 ILADS Lyme Disease Conference CD-ROM is now available for sale at: http://www.ilads.org/store/store_lyme_dvd.html



The CD includes 2 keynotes, 6 plenary sessions and the 36 hours of programming in the workshops and also includes 200 pages of evidence based medicine written submissions to the July 30, 2009 IDSA h...earings in Washington.

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ILADS Online Store - Lyme Disease DVD
www.ilads.org
Donate To ILADS
November 2, 2009 at 10:13pm · Comment ·
  • Tuck Martin, Denise Dalton, Lori Casas and 19 others like this.
    • Danielle Capicchioni Rodriguez
      please write the CDC read my letter
      To Whom it May Concern:



      ...I see that as of Thursday you have decided to not change the protocol for the treatment of Lyme disease based on scientific evidence. You are saying that Lyme can be cured with in weeks with a antibiotic (of course to support big pharma). What do you say to the thousands of humans suffering at the fate of Lyme and its co-infections for years, how do you purpose that they get cured???? Do you think that they should just suffer? I guess that's what you are telling the American public but standing behind the 2006 protocol for Lyme. Well this brings me to my next point as you are leaving thousands suffering with no relief the CDC is supporting a vaccine to prevent Lyme http://health.msn.com/health-topics/infectious-diseases/articlepage.aspx?cp-documentid=100256632 this link will take you to the site and you can read that you totally contradict yourself.




      The bottom line here is Lyme is scary enough to warrant a vaccine of course big pharma. But it's not bad enough to warrant treatment past a couple of weeks of antibiotics. I employ you to go visit with my 55 year old father. Who was a vibrant, healthy, full of energy man until Lyme has ravished his life and your so called disease cure of a couple of weeks of antibiotics has proven to not help whatsoever and now if we followed your guidelines he would die a horrible painful death at your hands. But what absolutely kills me is to read how you are supporting a vaccine for this so called easy to cure disease. I am hoping that the American People will try the CDC for crimes against humanity. Thank god that my father has found thousands of other Lymees and together without any help from the CDC we will make sure he isn't another CDC statistic.

      Sincerely,

      Danielle Rodriguez       See More
      April 25 at 2:37pm · 3 peopleLoading... ·
    • Elizabeth Milton add me fellow lyme friends :-)
      June 30 at 3:19pm ·
ILADS Lyme Society

ILADS Lyme Society

November 2, 2009 at 10:12pm · Comment ·
  • Lori Casas, Patti Ragland Lyerly, Linda Rakolta and 2 others like this.
    • Whitney Busby
      I was treated for three years by picc line antiparisitics and intibiotic treatment and i only got worse as well, I was born with lyme disease and I am looking into the rife machine and hyperbaric oxygen chamber, I have heart problems, brain...,thyroid,spinal, joint damage, reproductive organ damage(endometriosis), nerve damage really bad, I have had 15 surgeries, to remove endometriosis,tumors,reconstruct my hips, to remove my gallbladder at age 14. i am now 18 and literally losing my memorie,I can't drive or even be alone. Look up the oxygen chamber therapy it may work for you.See More
      April 9 at 12:46am · Report
    • Reyah Carlson After beginning antibiotics, my symptoms worsened, to the point I could no longer care for myself. It was only after 2 years of aggressive therapy that I began to feel normal..and after 5 years of treatments, I am 98% my old self. BEE patient!
      June 11 at 6:41am ·
ILADS Lyme Society

ILADS Lyme Society BIG NEWS FOR THOSE INTERESTED IN THURSDAY'S HISTORIC LYME DEBATE

You are invited to join us for an online program to discuss the IDSA hearings.
THURSDAY 8AM-5PM

...Link:
www.ustream.tv/channel/onthemarcmedia

We'll have doctors, patients and experts there to react to the day's testimony.

Twitter along with THE online program: #lymewatch.

Your thoughts, comments and personal stories about chronic Lyme are invited!

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On The Marc Media on USTREAM: We know the media, because we've been on all sides of the camera. Firs
www.ustream.tv
On The Marc Media @ USTREAM: We know the media, because we've been on all sides of the camera. First as an award winning television journalist, then as a n...
July 29, 2009 at 7:59pm · Comment ·
ILADS Lyme Society

ILADS Lyme Society

ILADS Officers
Daniel Cameron, MD { President } Dr. Daniel Cameron graduated from the University of Minnesota followed by residencies at Beth Israel Medical Center and Mt. Sinai School of Medicine in New York. He works in a private medical practice in Mt. Kisco, New York...
July 26, 2009 at 3:00pm · Comment ·
  • Timothy Grey, Bonnie L Huntsinger, Melissa Worley Kriger and 8 others like this.
    • Sheryl Cashin Dr. Cameron and staff are incredible! I am so fortunate to have them and so close to home.
      My heart breaks for the patients in the waiting room who have to travel 3-8 hours each way to be treated for this devastating disease.
      November 16, 2009 at 5:35am · Report
    • Marian Vitale I'm also lucky to be close to Dr. Cameron. Now I just hope he can help me fight United Health Care who is refusing to pay for my IV-Rocephin.
      February 27 at 6:52am · Report
ILADS Lyme Society

ILADS Lyme Society The Infectious Disease Society of America (IDSA) Lyme Disease Review Panel is hosting an all-day hearing as an opportunity for patients, physicians and scientists to present information relevant to the 2006 IDSA Lyme Disease Guidelines.

The IDSA holds this hearing in response to an antitrust investigation by Connecticut...'s Attorney General Richard Blumenthal. In his groundbreaking lawsuit, AG Blumenthal charged that the IDSA guidelines for Lyme disease prevent many seriously ill patients from getting necessary treatment. A 2008 settlement resulted in the IDSA agreeing to create a new panel to review its guidelines.

Doctors treating Lyme disease aggressively with long term antibiotics are targeted by medical boards and insurance companies and face losing their license. The Connecticut Governor recently signed into law legislation that would permit physicians to determine what treatment is best and, in effect, overruling the current IDSA guidelines.

“These current guidelines have had a devastating impact on patients,” says Dr. Joseph Jemsek, Infectious Disease Specialist in South Carolina—and a member of both IDSA and ILADS. “In the midst of the healthcare reform crisis, these hearings offer a microcosm of a broken healthcare system.”

The media is invited to a Lyme Watch Media Center, where they can interview patients, advocates and doctors in response to the webcast hearings. The Center is in the Congressional Room on the lobby level at the J.W. Marriott Hotel, 1331 Pennsylvania Ave. NW, from 8am to 5pm.

MEDIA INQUIRIES: ILADS President Dr. Daniel Cameron and Lyme disease patients are available for interviews. For more information contact: Marc Silverstein at (202) 716-9123 or at marc@onthemarcmedia.com

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IDSA Review Panel
Join Our Lyme Watch Media Center
Thursday, July 30, 2009 at 8:00am
J.W. Marriott Hotel (Congressional Room) , Washington, DC
July 26, 2009 at 2:33pm · Comment ·
  • Timothy Grey and Monday Mercer like this.
    • Holly Martindale I would suggest that any Doctor currently promoting the belief that untreated Lyme is cured by 10-30 days of antibiotics introduce themselves to a lyme infected tick and delay treatment for a year to test out their hypothesis. I'd bet the standards for treatment would change VERY fast.
      April 18 at 10:50am · Report
    • Sherrie Porter Amen! Or better yet - no treatment, which is what I got for 33 years before first being treated. Now I don't know if I will ever get rid of it. I was 13. I'm nearly 49 now. Lyme has stolen a significant chunk of my life.
      April 25 at 2:30am · Report
ILADS Lyme Society

ILADS Lyme Society

HISTORIC HEARINGS ON MOST CONTROVERSIAL DISEASE IN U.S.
FOR IMMEDIATE RELEASE: Contact: Marc Silverstein (202) 716-9123 marc@onthemarcmedia.com...
July 26, 2009 at 2:11pm · Comment ·
ILADS Lyme Society

ILADS Lyme Society

Basic Information about Lyme Disease by THE INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY
Basic Information about Lyme Disease by THE INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY 1. Lyme disease is transmitted by the bite of a tick, and the disease is prevalent across the United States and throughout the world. Ticks know no borders and respect no boundaries...
July 26, 2009 at 1:56pm · Comment ·
ILADS Lyme Society

ILADS Lyme Society NBC Today Show examines pyschiatric manifestations of Lyme Disease

msnbc.com Video Player
www.msnbc.msn.com
July 26, 2009 at 1:22pm · Comment ·
  • Lisa Balter-Soccoli, Emily White and 2 others like this.
    • Nancy Baumgartner Ugh! I am a school counselor in NJ and see kids misdiagnosed ALL THE TIME! Most parents find it hard to believe that a school counselor would know more about Lyme than the string of doctors they've been to, so the reams of info I give them and the kid's unending symptoms most often don't make a difference. Its very frustrating and alarming.
      March 26 at 12:18pm · Report
    • Dorothy Ferrandino-Jakab politics in the school system too.....very sad.
      Monday at 7:40am ·
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ILADS Lyme Society edited their Website, Mission and Company Overview.