Rachel

Rachel
I have been experiencing the pain of IC for a little over a year now, and have recently been pseudo-diagnosed with the disease. I have been put on a low dose of Elavil. While it does seem to help with some aspects of the pain, I'm starting to feel emotionally disconnected and am starting to feel agitated and semi-depre...ssed. It makes me tired, which I understand is a common side effect. Does anyone else have anxiety/agitiation, etc while taking Elavil?Więcej...

8 godz. temu · Zgłoś
Lora Elledge Cano

Lora Elledge Cano I’m having such a bad day today due to the side effects of my medications. Lately it seems like my pain is under control with the medications but the side effects with the medication are just as bad as the pain. I constantly have exhaustion, dizziness, and nausea.

Wczoraj o 13:55 · Zgłoś
Theresa Rusk

Theresa Rusk
I am 23 years old and have been battling this disease for 6 months now. Ive seen 15 doctors total to finally get a diagnosis and im so confused with it all. I have chronic pain every day of my life and have been on many different medications already i mean i cant cope with why i have this, and why the symptoms are so s...evere at times it just doesnt make sense to me. Does everyone with this experience these painful symptoms?Więcej...

Wczoraj o 13:45 · Zgłoś
Interstitial Cystitis Association

Interstitial Cystitis Association Clinical trial IC, IBS, Gulf War Illness, CFS, Fibromyalgia, Multiple Chemical Sensitivity http://bit.ly/5FW33x

Wczoraj o 13:08 przez Selective Twitter Status
Interstitial Cystitis Association

Interstitial Cystitis Association Chronic pain talk online--listen here for free! http://bit.ly/8k3K3J

Wczoraj o 12:30 przez Selective Twitter Status
Interstitial Cystitis Association

Interstitial Cystitis Association Check out IC friendly holiday recipes on the ICA website http://bit.ly/8ZcWWe

Wczoraj o 12:28 przez Selective Twitter Status
Michelle Skinner

Michelle Skinner hey im 21 and have had IC for 5years now, had various operations an have tried so many different medications, at the moment i am on amitriptyline but it doesnt seem to be doing anything for me, im constantly in pain and never have a good day, its really getting me down so today i decided to try an find more people like me, as not many people seem to understand. does any1 have any advise to help cope better?

Wczoraj o 10:26 · Zgłoś
Mary Zipperer

Mary Zipperer IC AWARENESS bracelets for sale: Help spread the word about IC and raise money for research. Email me for details!

Nie o 22:26 · Zgłoś
Holly Wilder

Holly Wilder Hi all...just diagnosed about a week ago. I am on several meds and trying to use a strict IC diet. I am scheduled to start instillations tomorrow. However, right now I am pain free. Should I go through with instillations?

Nie o 17:45 · Zgłoś
Jodi Zuchowski

Jodi Zuchowski I know we are all different but on average how long does a "flare" take to go away? Also, what do you take when you are flaring?

Nie o 16:10 · Zgłoś
Lori Helms

Lori Helms Does anyone know if dr.s can tell if you have bladder cancer through a urine culture? My obgyn dr. Did a culture on Monday and they called on Friday to tell me it was neg. He said he was going to test for cancer cells. So does that mean they didn't find anything. And how accurate are the urine test to find cancer in your bladder?

Lori Helms
Lori Helms
Thanks :) I was bad this weekend. Went to Kentucky for a big football tourney with my son who's 13. Not alot of good food and drink choices there! So I'm paying for it now. :( this new diet is harder than I thought, but I will get better with it because I know it helps so so much! God bless and hope you had a good weekend.
Nie o 18:47
Jacqueline Patricia Peate

Jacqueline Patricia Peate Hi. Can someone help me with IBS problems. I have suffered with IC for 15 years or more. I went for a colonoscopy (spell?) a while ago and i was told i now have IBS as well. Does this make IC symptoms worse, because that it what i am finding.

sob. o 01:48 · Zgłoś
Nicole

Nicole what is intestim?

20 listopada o 21:40 · Zgłoś
Nicole

Nicole Hey there fellow sufferer's! sp? anyway anyone out there know or been through getting disability? I am getting some coflicting info. I think I am gonna order the info. from ICA but wondered if I could talk to someone that may have been there? let me know thanks

20 listopada o 21:39 · Zgłoś
Allison Poeller

Allison Poeller Has anyone ever had an intestim removed?

20 listopada o 20:56 · Zgłoś