Jooly's Joint
This page is for fans of Jooly's Joint, and online community for people with MS run by Julie Howell. If you'd like to share your experience of life with MS or ask questions, please visit the Jooly's Joint website at http://www.mswebpals.org
Information
Founded:
27 January 2008
Photos

2 of 4 albumsSee All

Lunch April 2009Created about 6 months ago
JJ's 10th birthday party!Updated on April 1, 2008 at 2:36pm
Events

1 past eventSee All

  • MS Life
    Manchester Central
    Saturday, March 29 at 10:00am
 
Karen

Karen Hi i am new to this site i have had ms for 13 yrs but only deff for 5 yrs i am pretty good still but the last two yrs things started getting worse and now need to use a dissability scooter out side for longer walks .Have been on capaxone for 18 months without any affect so they now want me to try tysabri is any one out thair on it to help me with info thanks kaz

7 hours ago · Report
Roger Chamberlain

Roger Chamberlain I've just set up a new site for those of us blessed with MS. Called LAMS based in rural Norfolk, England. Check it out!

Tue at 9:05am · Report
Steve Heath
November 21 at 10:10pm · Report
Marion

Marion Hi all MSER for 4 years anyone here from NJ NY?? Havent been to JJ in a long time but still a member

November 15 at 6:54pm · Report
Lori

Lori Hi everyone....I am in north Florida and have had MS for nearly 20 years. I still work full time and am mobile and get around pretty well. I am on Copaxone (although I don't want to be). My MS is progressing slowly, thank God, but I try to never take a day for granted. I would be happy to be a friend to anyone who ...needs one. Please feel free to add my name. I check my FB nearly every day. Have a wonderful day! :0)

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November 15 at 1:19pm · Report
Lori
Lori
By the way, I go by Southern Belle in the chatroom....in case you are keeping up.
November 15 at 1:25pm
Jooly's Joint

Jooly's Joint Nearly 500 fans, I'm amazed! Thank you Margo for doing such a great job here.

November 15 at 9:47am
Lori
Lori
Julie I chat in the room and it is wonderful, always has been. This is another great option for people with MS to share with one another. Thanks for giving us this mode of communication. I am - Southern Belle....from Florida.
November 15 at 1:06pm
Jooly's Joint

Jooly's Joint To everyone who knew Geno, who was a regular chatter in the JJ's chatroom, and who sadly died recently...

This group is for our memories of him.

This group is for everyone's memories of Geno (Gene Stein) - a one-off, a great friend, and one of the good guys!
Lori
Lori
So sorry to hear of this.....no more sorrow and pain. Geno, you will be missed.
November 15 at 1:01pm
Janet Croteau
Janet Croteau
I haven't been in JJ's in some time but I am sure saddened to hear about Geno's passing and will send up a prayer for him and his family. He will be enjoying a new life in a new body with no pain now.
November 15 at 5:14pm
Hugh Miller

Hugh Miller Hi all my name is hugh i'm from stenhousemuir sunny scotland i have had ms for 12 years now .

November 11 at 3:12pm · Report
Sarah Lipson

Sarah Lipson Hey all...my names Sarah and i was diagnosed with MS last yr.I live in Manchester in the UK and i would like to make a young persons group get together of young people with MS,maybe go for a drink etc...if anyone is interested please contact me...keep well.

November 7 at 8:22am · Report
Todd Bob Miller

Todd Bob Miller HERE HERE, IS THERE ANYBODY IN THE JOINT FROM SILVERLAKE CALIFORNIA????
HOPE EVERYONES DOING KICKIE!!!

November 6 at 2:29pm · Report
Orla Morris

Orla Morris Hi all, anyone from ireland in jooly's joint?

November 2 at 9:00am · Report
Belinda L. Dees-Boyd

Belinda L. Dees-Boyd Good morning to ya. I have MS and would like to meet friends!

November 2 at 3:01am · Report
Jo Maynard

Jo Maynard hi all im new lol

November 1 at 6:57am · Report
Jamie Meyers

Jamie Meyers i dont mean to knock rebiff. but i was on rebiff for a year and a half.. (first meds i was on for MS) and i was in pain of some sort mostly everyday. unable to touch my toes without a tear to follow, i thought i was going to feel that way the rest of my life. after speaking to my doctor (who also figured out that the r...ebif was not doing its job 100% of the time) started me on copaxone.. now i am no sales person, but if i had to sell something, it would be that. the shot maybe everyday, but the ability to stand up straight and the lack of pain.. is worth it.

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October 30 at 7:23pm · Report
Jill

Jill hi i have only just found this site, although i have occasionally been in the chat room as 'lurch' or 'lurchy jill' i have tried to make a couple of pen pals, but got no replies so don't know if i did something wrong - not great on the computer & also i find trying to see such small print is easier some days than other...s.

i shall be starting rebif soon, whats all this about 44's?

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October 29 at 5:57am · Report