Juneau Biosciences
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Diane
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Allison
 
Juneau Biosciences
We are pleased to present the Fall issue of the Endometriosis Research Study Newsletter! This issue will update you on the many exciting things currently happening at Juneau, and on the progress we’ve made since our last newsletter. ...
Juneau Biosciences

Juneau Biosciences Check out our new video about the Genetic Endometriosis Research Study, including a step-by-step overview of participation.

www.youtube.com
Introduction to the Genetic Endometriosis Research Study conducted by Juneau Biosciences. Find out how simple it is to participate and make a difference in the diagnosis and treatment of endometriosis. Enroll today at www.endtoendo.com!
Juneau Biosciences
One of the understated consequences of endometriosis is the strain that it can put on relationships...
Beth
Beth
I don't know how I feel about this story. I can't imagine my husband acting the way that her partner did. I'm glad that everything worked out with their baby and their relationship. My husband has been wonderful about my endo. and has been with me for years and supported my choice for hysterectomy. We were never able to have children.
November 20 at 11:26am
Milagros Del Carmen Taylor

Milagros Del Carmen Taylor thanks for all your posted, if helping me a lot, i fund out 3 year ago i have endo after a miscarrage, and my batlle if jus began, we have try laparoscopy, if help if been a year , but after that a get to ry for fertility drug and iuf, resulting on a falopian cyst . 5 days on the hospital now , recurent chocolate cyst... on ovaries. fi any drug out there that if not luprom to help with endo, because a dont want to give out hope to try for ivf. of that doesnt work them all will see other choices.

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November 14 at 6:38am · Report
Sarah Elizabeth Kennedy
Sarah Elizabeth Kennedy
I've had problems since I was 12 when I got my first period! It was not until I was 18, after suffering so much with such major pain, migraines, my legs going numb, passing out and so many trips to the ER, that my mom took me to our family general practicioner/surgeon that he had sent me for blood work and an abdominal and intravaginal ultrasounds... See More. It was then that they had found I have a bicornuate uterus. It was then that I began seeing specialists to treat that, that the first one I seen said I most likely had endometriosis with that. I bounced from specialist to specialist trying this drug and that drug, the shots, and even went as far as trying a vaginal suppository that had to be specially made/compounded. Nothing seemed to help, but made things worse. Then I found a doctor willing to do the surgery! But, he told my mom and me that it would not guareentee me getting better. It worked for a year until symptoms came back and I had to have the surgery again. He told us that I would have to have the surgery every year until I became old enough or the endo had done enough damage, to have a hysterectomy. No chance of me getting pregnant. I decided to just keep taking pain pills and deal with the pain as much as I could on my own, until july 2006 I found out I was pregnant, unfortunately I lost the baby at 3 1/2 months pregnant. I concieved again in may 2007 and had weekly visits to my gyne and ultrasounds galore... I delivered emergency c-section jan 2008 and had a beautiful baby girl, 3 weeks premature with some complications, but doing better now.... I want to help in any way I can, because what they say that pregnancy cures everything, it don't cure this, I still have problems with my endo. And yes, I too had done all the fertility testings and had no luck. Please let me know what I can do to help!!!
November 18 at 11:47am
Juneau Biosciences
The popular Lupron Depot article from this weekend is now accompanied by a second article about the drug and accompanying side effects. Again, please remember that, for some, Lupron has been successful in symptom management, while for others, symptoms worsened...
Stephanie Davis Roth
Stephanie Davis Roth
I never got pain relief in all 5 times I was on Lupron, and now I think after all the years of forcing hormones up and down and all about, I think my body doesn't know what to do any more, even after a hysterectomy. We need something that works naturally, not synthetically.
November 19 at 6:23pm
Juneau Biosciences
The following article was published recently to address the numerous side effects of Lupron Depot, a commonly used drug for managing pain associated with endometriosis...
Beth
Beth
I went through 2 rounds of Lupron for my endo. This drug helps some women, but my symptoms became worse while on the drug; there was some improvement to my endo after the drug was out of my system. It was too harsh for me. I'd been diagnosed w/ endo since 1994, had 3 laps in addition to the Lupron and this year I had a hysterectomy. There needs to be better alternatives for pain management for this disease besides what is currently out there.
November 3 at 6:55am
Jackie Sewall
Jackie Sewall
Although Lupron did ease my pains of endometriosis, The horrible hot flashes and throbbing headaches were so not worth it! It also increased my blood pressure, and I hardly went anywhere because I never knew when I'd break out in pools of sweat, or in uncontrollable sobbing. Lupron destroyed my life faster in 6 months than endo in a lifetime. This should NEVER be an option!
November 4 at 7:17am
Juneau Biosciences
Enrollment in the Genetic Endometriosis Study continues to grow, but we still need hundreds more samples to validate the diagnostic test for endometriosis...
Ashleigh Farris Johnson
Ashleigh Farris Johnson
I need to send my kit back, however I lost the family history form =( Is there anyway I can get another one to be able to send my sample back?
November 2 at 8:37am
Juneau Biosciences
Juneau Biosciences
Ashleigh, I have sent you a link to a blank Family History form. Please let us know if you need anything else. Thanks!
November 2 at 11:38am
Laura Navas Gaylord
Laura Navas Gaylord
I have shared this information with not only my gynecologist but also my neurologist because thier is a huge percentage of women with endo who also suffer from migraines.
November 13 at 10:05am
Juneau Biosciences
We want to hear it firsthand from those who have experienced endometriosis personally. How does it make you feel...