PDtrials
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. Contact us anytime at info@pdtrials.org.
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Season Bergmann

Season Bergmann I have 3 family members with Parkinson's, and I would like to help by learning all I can to further understand the daily struggle my loved ones endure every day. Any knowledge out there, new and old, please post, I love my family, and appreciate any information on this disease. Me, like many family members trying to understand, am thankful for all help so I can assist and love my family.

October 28 at 3:46pm · Report
PDtrials
PDtrials
http://www.pdtrials.org/en/you_pd_clin_res_member
October 29 at 9:20am
PDtrials
PDtrials
Click on the link above to learn more about how you might participate in the fight against PD as a family member.
October 29 at 9:20am
Iris Sternshein Froehlich

Iris Sternshein Froehlich my sister is currently in a study for dbs.....anyone else have it????

October 27 at 7:43pm · Report
David White
David White
Which study is it ? The one in Dallas? I looked into the one in Dallas. It didn't work out for me because I lived in Colorado at the time and they wouldn't let me travel back and forth. But I am still looking for a study to join.
October 28 at 5:28pm
Iris Sternshein Froehlich
Iris Sternshein Froehlich
the study is out of philadelpia pa but there are other locations where it is available. i was looking for others who have undergone this surgery and to check out its sucess rate
October 29 at 10:11pm
PDtrials

PDtrials Just posted October's latest news on clinical research for Parkinson's, including interesting information on the advances of gene therapy. Check it all out on our site or our Facebook page!

Clinical Research News - pdtrials
Source: www.pdtrials.org
“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease. Without participation there will be no cure.” –Mike, Diagnosed7 years
John Oehler

John Oehler Wonderful to see PDtrials is a FACEBOOK friend. Great news for we Parkinsons folks!

Linda

Linda I was in the ADAGIO study in 2006 & 2007. Now I will be participating in the post ADAGIO study.I still take Azilect and at this time I need no other Rx. I will follow up as I get into the study.

Jeannette Grimes Franklin

Jeannette Grimes Franklin how do i join this group?

October 26 at 12:14pm · Report
PDtrials
PDtrials
Click on the link under our picture box that says "Become a Fan". We are happy to have you.
October 27 at 8:38am
Kimberly Warren

Kimberly Warren I read recently that there wil be a YOPD conference being held in Sacramento in 2010,..but cannot remember the dtae, ..anyone know infor. regardng this?

October 20 at 8:21am · Report
PDtrials
PDtrials
Looks like the date hasn't been chosen yet. Scroll down through the events on this page for more info - http://www.ppsg.org/PPSG_2/events.html
October 20 at 9:19am
PDtrials

PDtrials Check out all the new pictures on our Partners in Progress Honor Roll... and get in touch if you'd like to join!

PDtrials

PDtrials Have you participated in a clinical study for Parkinson's disease? Join the PDtrials Partners in Progress Honor Roll today!

PDtrials Honor Roll!
5 new photos
October 20 at 7:52am
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Rosemary Terryn
Rosemary Terryn
I understand your frustration. My husband went to the best doctor in NY. Unfortunately, the medicine tht he was using in a trial for a drug co. was effective in curing parkinsons, but it was withdrawn from the market because the profits the drug co. would receive weren't enough. It makes me mad to think that the patients afflicted with this disease... Read More are having cures withheld due to money. My prayers are with you. Unfortunately, the foundations are not aggressive enough with the money to help. Good Luck.
October 24 at 6:18pm
Anne Geering Gaunder
Anne Geering Gaunder
WHAAT??! There's a drug that cures PD that's being withheld? Do you remember the name of it?
October 28 at 11:52am
Sharon Kellogg

Sharon Kellogg My late father had Parkinsons and it was very difficult to diagnose because he didn't have the shaking symptoms. His was loss of coordination and falling down. The doctors put him on some sort of meds and it seemed to help. This all happened over twenty years ago so I don't remember much more; but the important thing is to not give up and pray that they find a cure.

PDtrials

PDtrials Just posted September's PD research news highlights, along with new featured clinical trials for Parkinson's that are enrolling participants! Check it out on our page, or our site: www.PDtrials.org.

PDtrials - Parkinson's Disease Clinical Trials
Source: www.PDtrials.org
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research.
October 5 at 9:44am
Kimberly Warren
Kimberly Warren
Itoo, having Pd, and living in a city where there is a major university medical center, am anxious and very willing to become part of a PD trial...but thus far have not heard about any such that I can be a part of,..that seems puzzling. Anyone have an experience of beng in a clinical trial ?
October 20 at 8:19am
Cal Meendering

Cal Meendering
My wife has Parkinson's and it is progressing much faster than I had anticipated. I am seeking more information on the benefits of exercise on Parkinson's. We are in Wisconsin and will be attending the Victory Summit in Milwaukee, sponsored by the Davis Phinney Foundation on October 10. I would appreciate hearing from ...people that have had success with slowing down the effects of Parkinson's with exercise. Thanks CalRead More

PDtrials

PDtrials An interesting piece from the Parkinson's Disease Foundation... "PDF Interprets: Scientists Identify a New Way of Delivering GDNF, A Treatment in the Pipeline for Parkinson’s."

PDF Interprets: Scientists Identify a New Way of Delivering GDNF, A Treatment in the Pipeline for Pa
Source: pdf.org
Read the latest Parkinson's news - including results from the latest Parkinson's clinical trials, recent medication approvals and other scientific discoveries.
PDtrials

PDtrials Check out our comprehensive new list of Resources on clinical research and PD in general, recently posted on PDtrials.org. We hope this is helpful to you!

Additional Resources on Parkinson's and Clinical Research - pdtrials
Source: www.pdtrials.org
“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease. Without participation there will be no cure.” –Mike, Diagnosed7 years
September 24 at 8:36am
PDtrials

PDtrials Thank you to everyone who has been responding to our questions about what potential therapies people with PD are most interested in. If you haven't, see our latest update and join our wall conversation!

September 17 at 7:35am
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Jeannine Cushman
Jeannine Cushman
Exercise has been a great benefit to me. It has jimproved my balance, strength, endurance' and I sleep better. It seems I have less fatigue.n It is easier to carry out normal everyday tasks. I exercise in the pool.
Stress is my public enemy #1. It definitely causes a great increase of symptoms. Trusting in Jesus Christ has helped me more than anything!
September 17 at 12:06pm
Randy Simens
Randy Simens
You don't have to get fancy w doin exercise. Walking, riding a bike, swimming,yoga, gardeniing, even balaceing on a sidewalk curb, or a balace beam bongo board), are just a few
September 17 at 11:13pm