PDtrials
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. Contact us anytime at info@pdtrials.org.
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PDtrials

PDtrials Have you participated in a clinical study for Parkinson's disease? Join the PDtrials Partners in Progress Honor Roll today!

PDtrials Honor Roll!
7 new photos
November 20 at 10:31am
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Cal Meendering
Cal Meendering
Robert: My wife has Parkinson's and we are pursuing a trial drug called duodopa. This has been used in Europe for several years and is just going into trials here in the US. If you are taking carbidopa/levadopa now this may help you as it levels the dosage all day long; no highs and lows. We also checked into DBS but it would not help her with ... Read Morebalance and that is one of the major issues she has. Without balance mobility becomes a primary issue. We are in the Milwaukee WI area. Check out duodopa in google and it will list the method of use.
Good luck.
November 20 at 3:57pm
Bill Kelley
Bill Kelley
I have more of a question were do we with PD sit with the H1N1 shots?
November 20 at 5:41pm
Marge Evans

Marge Evans
hi , yesterday, in St Louis my husband and i went to a lecture given by Dr. Joel Perlmutter directer of the Movement Disorder Center at Washington Universty in St. Louis. He updated us on the progress made during the past year in Parkinson's research. He then answered many questions. There are many studies going on a...t Wash U all year long. I am at this time participating in 4 of those studies. i was diagnosed with PD just over 2 years ago and am willing to participate in just about any study that i qualify and have time for. Before the lecture yesterday, i came in contact with the folks from PDtrials. I got a hat and had my picture taken. i am so honored to be able to do anything i can to help find a cure for Parkinson's. Since I live near St. Louis and my neurologist, Dr. Karimi, works with Dr. Perlmutter in the Movement Disorder center, I expect to have many opportunities to participate in onsite studies at Wash U.Read More

November 16 at 9:33am · Report
Gerardo

Gerardo My wife has PD. How can PDtrial help?

November 12 at 6:13am · Report
PDtrials
PDtrials
Great question, Gerardo. If you check in with our website www.PDtrials.org, and enter your email address in the one-step sign-up box on the home page, you will receive monthly updates of clinical trials for PD enrolling all over the U.S. Or, search for them right from the home page. Read about those trials with your wife, try to determine if ... Read Morethere are any she might want to/be able to become involved in. Read our Clinical Research 101 section to learn more about WHY she might want to and what to do if she decides to participate. And, as always, feel free to ask us questions at info@pdtrials.org!
November 12 at 8:12am
Season Bergmann

Season Bergmann I have 3 family members with Parkinson's, and I would like to help by learning all I can to further understand the daily struggle my loved ones endure every day. Any knowledge out there, new and old, please post, I love my family, and appreciate any information on this disease. Me, like many family members trying to understand, am thankful for all help so I can assist and love my family.

October 28 at 3:46pm · Report
PDtrials
PDtrials
http://www.pdtrials.org/en/you_pd_clin_res_member
October 29 at 9:20am
PDtrials
PDtrials
Click on the link above to learn more about how you might participate in the fight against PD as a family member.
October 29 at 9:20am
Wayne Allan
Wayne Allan
important stuff!
November 13 at 11:19am
Iris Sternshein Froehlich

Iris Sternshein Froehlich my sister is currently in a study for dbs.....anyone else have it????

October 27 at 7:43pm · Report
David White
David White
Which study is it ? The one in Dallas? I looked into the one in Dallas. It didn't work out for me because I lived in Colorado at the time and they wouldn't let me travel back and forth. But I am still looking for a study to join.
October 28 at 5:28pm
Iris Sternshein Froehlich
Iris Sternshein Froehlich
the study is out of philadelpia pa but there are other locations where it is available. i was looking for others who have undergone this surgery and to check out its sucess rate
October 29 at 10:11pm
PDtrials

PDtrials Just posted October's latest news on clinical research for Parkinson's, including interesting information on the advances of gene therapy. Check it all out on our site or our Facebook page!

Clinical Research News - pdtrials
Source: www.pdtrials.org
“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease. Without participation there will be no cure.” –Mike, Diagnosed7 years
October 27 at 8:54am
John Oehler

John Oehler Wonderful to see PDtrials is a FACEBOOK friend. Great news for we Parkinsons folks!

October 27 at 4:11am · Report
Linda

Linda I was in the ADAGIO study in 2006 & 2007. Now I will be participating in the post ADAGIO study.I still take Azilect and at this time I need no other Rx. I will follow up as I get into the study.

October 26 at 1:36pm · Report
Jeannette Grimes Franklin

Jeannette Grimes Franklin how do i join this group?

October 26 at 12:14pm · Report
PDtrials
PDtrials
Click on the link under our picture box that says "Become a Fan". We are happy to have you.
October 27 at 8:38am
Kimberly Warren

Kimberly Warren I read recently that there wil be a YOPD conference being held in Sacramento in 2010,..but cannot remember the dtae, ..anyone know infor. regardng this?

October 20 at 8:21am · Report
PDtrials
PDtrials
Looks like the date hasn't been chosen yet. Scroll down through the events on this page for more info - http://www.ppsg.org/PPSG_2/events.html
October 20 at 9:19am
PDtrials

PDtrials Check out all the new pictures on our Partners in Progress Honor Roll... and get in touch if you'd like to join!

October 20 at 8:08am
PDtrials

PDtrials Have you participated in a clinical study for Parkinson's disease? Join the PDtrials Partners in Progress Honor Roll today!

PDtrials Honor Roll!
5 new photos
October 20 at 7:52am
View all 8 comments
Cal Meendering
Cal Meendering
Robert: My wife has Parkinson's and we are pursuing a trial drug called duodopa. This has been used in Europe for several years and is just going into trials here in the US. If you are taking carbidopa/levadopa now this may help you as it levels the dosage all day long; no highs and lows. We also checked into DBS but it would not help her with ... Read Morebalance and that is one of the major issues she has. Without balance mobility becomes a primary issue. We are in the Milwaukee WI area. Check out duodopa in google and it will list the method of use.
Good luck.
November 20 at 3:57pm
Bill Kelley
Bill Kelley
I have more of a question were do we with PD sit with the H1N1 shots?
November 20 at 5:41pm
Sharon Kellogg

Sharon Kellogg My late father had Parkinsons and it was very difficult to diagnose because he didn't have the shaking symptoms. His was loss of coordination and falling down. The doctors put him on some sort of meds and it seemed to help. This all happened over twenty years ago so I don't remember much more; but the important thing is to not give up and pray that they find a cure.

October 15 at 3:12pm · Report
PDtrials

PDtrials Just posted September's PD research news highlights, along with new featured clinical trials for Parkinson's that are enrolling participants! Check it out on our page, or our site: www.PDtrials.org.

PDtrials - Parkinson's Disease Clinical Trials
Source: www.PDtrials.org
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research.
October 5 at 9:44am
Kimberly Warren
Kimberly Warren
Itoo, having Pd, and living in a city where there is a major university medical center, am anxious and very willing to become part of a PD trial...but thus far have not heard about any such that I can be a part of,..that seems puzzling. Anyone have an experience of beng in a clinical trial ?
October 20 at 8:19am
Cal Meendering

Cal Meendering
My wife has Parkinson's and it is progressing much faster than I had anticipated. I am seeking more information on the benefits of exercise on Parkinson's. We are in Wisconsin and will be attending the Victory Summit in Milwaukee, sponsored by the Davis Phinney Foundation on October 10. I would appreciate hearing from ...people that have had success with slowing down the effects of Parkinson's with exercise. Thanks CalRead More

September 26 at 8:08am · Report