The PLGA Foundation is the largest and only non-profit organization dedicated to providing hope to children, parents, and families fighting childrens' brain tumors. Connect with Exec. Director, Amy Janower Weinstein or Leah Edelstein Bramson here!
Information
- Founded:
- August, 2007
Mallory 'Cook' Mead I'm Swimming for Riley Hospital for Children and the PLGA Foundation. Check out my website and join my fan page, Mallory Mead-Swim Seven Seas!
mallorymead.com
I want to thank you for all of your support you have continued to show me in my marathon swimming endeavors. I am constantly moved by the amount of love and generosity that I have encountered while I chase my dreams, whether it be at the local lake or in the busiest shipping channel in the world. .....
Yonilee Looking for anyone in the Tampa Bay area that may want to team up for a fund raiser. Let me know!
Tofi Estepa Have Faith..Have hope..I'm a proud cancer survivor...
Shellie Bunny Green Jeans continues to contribute to help fight PLGA! 10% of sales from each event goes to the cause. $30 from today's fair in Sudbury, MA.
www.bunnygreenjeans.etsy.com
One-of-a-kind Renewable, Refashioned & New Clothing with a GREAT Cause: 10% of each sale will go to the PLGA Foundation for kids with brain
Judy Huling-Cadieux My daughter just had surgery a week ago, for a 6 x 5 x 6 cm tumor on her cerebellum...I would love to hear from ANYONE who's child has gone thru this, what treatment options are out there and what ever infomation you can give me. The surgeon says' he feels he got it all...BUT there was a little area that he didn't get..., and now they feel we just have to watch and wait. I have to make an appointment on Monday for a follow up at the Onolocologist...I've read so many diffrent things...she has JPA...she presented with Horrible headaches and vomiting...ataxia(even after her surgery) I really am glad I found your site...Please any info would be greatly appreciated. Also, how often have you all seen that these darn things come back? Our world has been turned upside down...looking for any info...Thank you!!
Kathy My daughter was diagnosed with hypothylamic low-grade astrocytoma in June of 05 when she was 16 months old. She had 70 weeks of chemo. which shrunk the tumor about .5 cm. The tumor was quiet with no growth for aobut 2.5 yeas following the completion of treatment. Recently, this past July her MRI showed some new growth.... We followed up with another MRI one month later that showed no addtional growth since the previous scan. So now we are back to MRI's every few months and watching more closely for any addtional changes. We are hoping that this little burst of growth is a one time deal and that the tumor is quiet again now. Has anyone else experienced anything similar?
Kelly Bradley Tanner Son Trevor was diagnosed with a astrocytoma in the fontal lobe of the brain in Nov 2001. After 2 surgeries and 10 months of chemotherapy, the tumor has not grown. We are on an annual check basis and still living with the affects of the brain tumor. Learning disabilities, congitive issues, speech therapy, physical th...erapy and occupational therapy. But we are so HAPPY he is still here with us and makes us smile everyday!!!
John Albert Estepa
St Paul John John
my son tofi 9 yr old, diagnosed case of ASTROASYTOMA PILOCYTIC who underwent VPshunting & Ommaya shunt last july '02, excavation of mass july '03, craniotomy '04, underwent linear cobalt theraphy (40 sessions) yr '05, Repositioning of shunt @ feb '09 and recently VP shunt Revision june 18, '09. tofi is... recovering, improving alot & gos to school his sched 4 ct scan end of july to monitor if vp shunts r functioning..Every parent would give te best 4 his child & i feel proud to be strong, what d lords will & knows best for tofi..I'd like my son 2 have friends learn & share experiences tnx to have found this PLGA Foundation.. GOD BLESS
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Brian Meltz Anyone who has experience with Precocious Puberty and is willing to share some information about the situation, treatments, and outcomes, please email us at bmeltz@new.rr.com. Thanks in advance.
Hyrum My 3 year old daughter had an MRI today which revealed a Brain Stem Astrocytoma. We are meeting with a pediatric oncologist tomorrow to begin discussion of the best course of treatment. The radiologist MRI doctor told us that it was not operable becaause it is on the brain stem. I don't know what to do right now, bu...t I can't sit back and do nothing. I am researching as much as I can and as fast as i can to find out more about astrocytoma's in young children. Can anyone tell me what mortality rates are? Where can I find more information? What should i be asking the doctor?
Sarah Team Chickaroo is proud to announce that PLGA Quest-Journey for a Cure set sail on Monday! Please log onto www.plgaquest.org to track the boat and follow the crew's blog as the Vision Quest (42' sailboat) crosses the Atlantic. Please share this link and spread the news. Help us raise awareness and funds for PLGA research! Thank you!
www.plgaquest.org
Pediatric Brain tumors are the #1 cause of solid tumor deaths in children. Pediatric Low Grade Astrocytomas (PLGA) are unequivocally the most common form of childhood brain tumors. The Central Brain Tumor ...
Bill "Geared Up For Kids" was a great event! I will be doing this ride every year.
PLGA Foundation What a ride! The "Geared Up for Kids" Ride 2009 was an amazing success this past weekend. The weather was gorgeous for our 450 participants of all ages! We have raised $450,000 so far for the PLGA Foundation from this event alone. Photos will be posted
Rick Cram "Geared Up For Kids" Ride 2009...the event this Sunday, May 31 in Hingham, MA...is on. The forecast is for very fine weather, sunny and in the low to mid 70's, perfect for the three bike routes and family fun festival. For more information, go to www.GearedUpForKids.org. See you there!
