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Parkinson's Community News
Nov 1 2009
Recognizing Parkinson's Caregivers this November
Oct 30 2009 Poker Icon Annie Duke Teams up with PDF in NYC to Support Parkinson's Research
Oct 22 2009 Latest Blog Post from PDF's Executive Director! NINDS and Translational Research
Oct 22 2009 Join Us Online or by Phone on Tuesday, November 17 for Tips on "How to Take Care of the Caregiver"
Oct 22 2009 Gaucher Disease Linked to Parkinson's
Oct 21 2009 40 People with Parkinson's Graduate from PDF's Research Advocacy Training Program
Oct 20 2009 Body's Own Antioxidant May Slow Parkinson's Decline, Study Says
Oct 14 2009 Door Opens to Health Claims Tied to Agent Orange
Oct 6 2009 Enter the Parkinson's Awareness Month T-Shirt Design Contest!
Parkinson's Disease Foundation Who's working to fight Parkinson's? Watch this video to see all the people working to treat and cure Parkinson's and provide education and support.
Source: www.youtube.com
In the next nine minutes, someone you know could be diagnosed with Parkinson's disease, a neurological condition that has the potential to be devastating and debilitating. Parkinson's disease affects nearly one million Americans and approximately 60,000 new cases are diagnosed each year. ...
Charlene Pryor Get to know me better as my days progress on with Parkinson's, Epilepsy, and Arthritis through http://justmeantiques.blogspot.com enjoy Pokie
Source: justmeantiques.blogspot.com
This is a daily journal of my fighting not only Parkinson's Disease but Acute Rheumatoid Arthritis with My Lord on one side and Patientslikeme.com on the other....with a sense of fun and friendship all around..... Sincerely, Pokie
Parkinson's Disease Foundation Support Parkinson's research in NYC, at our Raising the Stakes event! Join PDF and our Honorary Chair Annie Duke — poker icon and runner-up on NBC’s hit show Celebrity Apprentice - next Wednesday, November 11 at 8 PM at Capitale. Tickets on sale now. Great prizes, including a lesson with Annie for the night's overall winner.
Source: www.pdf.org
Join Honorary Chair Annie Duke — poker icon and runner-up on NBC’s hit show Celebrity Apprentice —and the Parkinson's Disease Foundation,for a night of casino games, prizes, cocktails, dinner and dancing.
Donna Trendell Life with parkinson's is like a box of chocolates, each day you don't know what your going to get.
Linda
If any one lives in the Rochester, NY area, you might be interested in joining the Parkinson Cafe, a social networking group. They are also on facebook at:
http://www.facebook.com/group.php?gid=11
This new program, sponsored by the Parkinson's Support Group of Upstate New York, offers additional social, intellectual and cultural interaction for people with Parkinson's disease.
Ngan Nguyen Hi, I'm an occupational therapist student at San Jose State University. I'm curious about Parkinson's disease and am looking for someone with PD or a family member of someone with PD to interview. Would anyone feel free for me to interview, preferably in person? I live in san jose. Thank you.
Jesse Brown
Grandstand Sports & Memorabilia is one of the largest, worldwide, providers of authentic high-quality sports memorabilia...guaranteed. We partner with non-profit and charitable organizations, like yours, by selling our wide range of sports memorabilia at auctions and events(All at no cost to you or your organization!).... Your supporters will enjoy our extensive selection, and affordable prices, because we have products for every sports fan, gift giver, and every budget! Our memorabilia can range from a $10 signed card to a $60,000 bat and baseball autographed by the Great Bambino himself! Call Jesse Brown or Lane Zwirn today at (212) 937-6642 to place your order or speak with us about raising the funds you need for your corporate fundraiser, charity event gala, or golf outting. Here is the link to our Facebook page for more infoRead More
John Mills
I wrote today about expecting the unexpected when grieving for a loved one.
http://tinyurl.com/yhlut3v
Source: tinyurl.com
My father lost his battle with Parkinson’s disease a little over 2 years ago. He wasn’t just my father; he was also one of my best friends, so his death hit me very hard.
Parkinson's Disease Foundation Registration is open for our 2nd 'PD ExpertBriefing' on Tuesday, November 17 at 1 PM ET! The hour-long event - "How to Take Care of the Caregiver," is part of PDF's recognition of November as National Family Caregivers Month. Join online (listen in and watch the webinar) or call in using a toll-free number. Let us know if you have any questions by emailing info@pdf.org.
Source: www.pdf.org
Do you need information about Parkinson's?PDF's educational materials provide information about symptoms, medications, local resources and more.
Parkinson's Disease Foundation 's feed: Parkinson's Insights Blog
NINDS and Translational Research
For years now, many of us at the Parkinson’s Disease Foundation (PDF) and other Parkinson’s disease (PD) organizations have fretted that the brain research funded by the National Institutes of Health (NIH) has been too focused upon the basic processes of neuroscience and too little upon the ...
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For years now, many of us at the Parkinson’s Disease Foundation (PDF) and other Parkinson’s disease (PD) organizations have fretted that the brain research funded by the National Institutes of Health (NIH) has been too focused upon the basic processes of neuroscience and too little upon the ...
View story | View all stories | About Social RSS | Join Social RSS
Jean Congratulations to PDF for the culmination of its 2nd Clinical Research Learning Institute! Job well done, everyone!!
Tamara Asmus
We all share a common intrest here, a friend a loved one or just an intrest in PD. I am here because my dad suffers from PD. I find that as each day passes PD is not recognized as much as Cancer or any other disease. I ask Why? There isn't a loud enough voice. What can't there be items in a store purchased to benefit P...D research like there is this month for Breast Cancer? I want to be a voice for PD research and awareness. I just don't know how to go about it. I'd like to start a foundation or something in honor of my father... ANyone with any info ideas, or have a common intrest please email me. Lets speak up all together because 2 voices are louder than one...Read More
Parkinson's Disease Foundation Thanks to everyone who participated in last week's Clinical Research Learning Institute! We'll keep everyone posted on what this year's graduates our doing to add the voice of the person with Parkinson's to the clinical research process.
Source: www.pdf.org
Do you need information about Parkinson's?PDF's educational materials provide information about symptoms, medications, local resources and more.
Frances Shani Parker
Communicating With Patients Who Have Impaired Conversations
One of the most common communication problems among caregivers is interaction with patients who have diseases such as Alzheimer's or Parkinson's disease that impair conversations. As a hospice volunteer, I enjoy coming up with ways to bridge gaps in communicat...ion. I never assume patients cannot hear me, unless they have been officially diagnosed as hearing impaired. I talk to them the way I would talk to hearing patients. I check their assignment forms and talk to their caregivers to find out what their backgrounds and interests are. I take them on walks or wheelchair rides. I read to them, play music that I think they will like, touch them to reinforce my presence; I feed them, play games, sing, play the radio, and watch television with them, regularly making comments and always analyzing their body language to see if I'm making a connection.
When I do a good job of this, I usually see signs that we are making progress. There may be smiles, alertness, something in their eyes that tells me our communication gaps are getting smaller, that we are forging relationships that enhance our lives. That's when the beauty of hospice volunteering sweeps me up like a great piece of music.
Frances Shani Parker
"Hospice and Nursing Homes Blog"
http://hospiceandnursinghomes.blogspot.c
One of the most common communication problems among caregivers is interaction with patients who have diseases such as Alzheimer's or Parkinson's disease that impair conversations. As a hospice volunteer, I enjoy coming up with ways to bridge gaps in communicat...ion. I never assume patients cannot hear me, unless they have been officially diagnosed as hearing impaired. I talk to them the way I would talk to hearing patients. I check their assignment forms and talk to their caregivers to find out what their backgrounds and interests are. I take them on walks or wheelchair rides. I read to them, play music that I think they will like, touch them to reinforce my presence; I feed them, play games, sing, play the radio, and watch television with them, regularly making comments and always analyzing their body language to see if I'm making a connection.
When I do a good job of this, I usually see signs that we are making progress. There may be smiles, alertness, something in their eyes that tells me our communication gaps are getting smaller, that we are forging relationships that enhance our lives. That's when the beauty of hospice volunteering sweeps me up like a great piece of music.
Frances Shani Parker
"Hospice and Nursing Homes Blog"
http://hospiceandnursinghomes.blogspot.c
Source: hospiceandnursinghomes.blogspot.com
Frances Shani Parker, author of "Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes,” writes this blog. Topics include news, practices and insights related to hospice and palliative care, nursing homes, caregiving, death and seniors in America. ...
