Parkinson's Disease Foundation
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Parkinson's Disease Foundation

Parkinson's Disease Foundation Archive of last month's PD ExpertBriefing is now available! You can watch the webinar, "How to Take Care of the Caregiver," at anytime by visiting the PDF website.

www.pdf.org
Guy

Guy If you believe a cure is possible and/or you're an investor, I encourage you to have a look at Cord Blood of America on facebook. They are a fast growing adult stem cell company (the non-controversial type of stem cells)!!! I think stem cells are slowly gonna change the world for the better!!http://www.facebook.com/#/CordBloodOfAmerica?ref=ts

www.facebook.com
Parkinson's Disease Foundation

Parkinson's Disease Foundation By request, direct link to PDF's Celebration of Movement Video. We hope you enjoy.

Some people with Parkinson's disease report that dance eases their symptoms and allows them to live better with the disease. With this in mind, this year's Parkinson's Disease Foundation Gala, on May 12 on the Pierre Hotel in NYC, was themed a ‘Celebration of Movement.' The event included remarks from David Leventhal,... Founding Teacher of the Mark Morris Group’s Dance for Parkinson’s Program, which is now viewed as a model for the Parkinson’s community. He spoke about the program’s exploration of the power of dance to alleviate the movement- related symptoms of Parkinson’s. He noted, “As one of our Brooklyn participants says, ‘When I’m in dance class, I don’t have Parkinson’s’…It’s a wonder that we don’t have more research about what actually happens to us when we dance…Of course, PDF is at the forefront of exploring this kind of research…the answers will no doubt provide rich benefits for all of us, but particularly for people with PD.” More info about the gala- www.pdf.org/en/media_pr/release/pr_1242327877 More info about the Mark Morris Group- www.pdf.org/en/resourcelink/view/resource/109
Length:4:08
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Stephanie Goldman
Stephanie Goldman
Lets put an end to PD.....Please support PDF xo
November 24 at 6:43pm
David Brown
David Brown
Hello everyone

(I tried posting this separately but for some reason the gremlins prevented me!)

My mother passed away recently and quite suddenly. She lived with Parkinson's Disease for 31 years. For the last 7 years, she had become reasonably active once more and enthusiastic about life due to her meds being better regulated. ... See More

Regarding her recent death, she had a combination of things that hit her all at once- pneumonia being one issue. What surprised me though was the diagnosis that she had suffered a stroke or maybe more than one within days. It was very obvious to me that she had stroke-like symptoms (drooping face etc) but she was immediately placed on palliative care with no scan done to determine if she in fact had a stroke. Each time, in the four days before she went to hospital all her observations including blood pressure were normal despite the obvious facial drooping and very rapid decline with coordinating utensils and speech.

I do believe though the odds were against her surviving and also given that she had apparently lost her ability to swallow and would have had significant challenges had she recovered from pneumonia.

However, I was wondering if anyone knows of people with Parkinson's dying from stroke. A thought to me was that her Parkinsons may had suddenly triggered a stroke-like response. Mum and I joked all the time that because her blood pressure was ALWAYS so low, stroke was the least likely health problem that could afflict her.

I am just curious more than anything. If anyone has experiences of something happening to their relatives or friends, I'd be appreciative to hear.

My mother had an extremely positive attitude to her disease in recent years despite the odds. She battled hard and was getting out in the community. I saw first-hand from the time I was a kid (6) until now (38) the progression of this disease in mum's case- her ups and downs, struggles, self-esteem issues, the effects on her and her carers as well (Dad and I being those).

I am forever a supporter of Parkinson's research. Please drop me a line anytime. RIP dear mum.

Cheers

David
November 26 at 4:49pm
Bob Dawson

Bob Dawson The Celebration of Movement video is stunningly beautiful - I have shown it to people who weep because of the power and the beauty of it. The video should be clickable from this front page - right now it is hard to find and people don't know it exists. I am prejudiced of course: the dance and music angle in fighting... PD is my personal favorite - but even without that, it's great video.

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November 23 at 8:31am · Report
Linda Giorgilli
Linda Giorgilli
I had already placed a link on my own personal site because the film is so beautiful and touching. I hope you don't mind me sharing what I wrote above. It was in honor of my dad and I just wish I could help more with this disease. As I have mentioned, I am trying to write about my experience with my dad, but cannot commend your website enough for the wonderful resources, videos, comments, stories, and ability to allow people with the disease to share their thoughts. Thank you so much.
November 24 at 6:47am
Bob Dawson
Bob Dawson
Thank you for posting the dance video. Next, for the tech-challenged such as myself, can I post the video on my own site, or does it have to be hosted at YouTube or some such?
Sun at 2:37am
Ray

Ray It is most unfortunate that such nasty diseases as Parkinson's can have such a devastating effect on good people. It is not too late though, to help prevent it from happening to a newer generation. There are companies like Cord Blood America, or otherwise known as CBAI, that can collect and preserve the stem cells from... the umbilical cord bood that would normally be tossed out after the birth of a child. An expectant mother could opt to have the umbilical cord stored cryogenically and used in the future if her child should need it. It is only too bad that we didn't have this type of potential life saving procedures in place before sincerely good people like Michael J. Fox and Muhammad Ali and other contacted it. It is definitely something that should be looked into. Your child may need it one day.

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November 22 at 3:27pm · Report
Guy
Guy
Great company with so much potential. Let's make this horrible disease disappear!!
November 22 at 4:07pm
Debby
www.teamfox.org
...
Linda

Linda

Location:Home Care of Rochester, 85 Metro Park
Time:10:00AM Thursday, December 10th
John Mills

John Mills I have been doing a series of articles on my experience caring for my father who had Parkinson's. The second article is The 3 Toughest Challenges I Faced As a Caregiver. http://tinyurl.com/ylhkzo7

tinyurl.com
and LosingourParents.com.Becoming a caregiver is an unplanned experience since we never know when or where it will occur. It creates many challenges in terms of day to day care and the emotional needs ...
Parkinson's Disease Foundation

Parkinson's Disease Foundation Remember to join PDF today at 1PM ET for 'How to Take Care of the Caregiver' our second PD ExpertBriefing.

www.pdf.org
Do you need information about Parkinson's?PDF's educational materials provide information about symptoms, medications, local resources and more.
Christine
Christine
I missed the webcast -- will it be archived?
November 19 at 9:08am
Parkinson's Disease Foundation
Parkinson's Disease Foundation
Hi Christine, Yes, the event will be up on PDF's website by next week and then you can watch it any time of day. We''ll post a reminder on the FB wall when it's up!
November 19 at 9:28am
Lane Pearman

Lane Pearman I thank & praise God for my wife, my caregiver ! Without His blessing of her I could not make it! THANK GOD HE SUPPLIES MY EVERY NEED!!

November 13 at 8:48pm · Report
Parkinson's Disease Foundation

Parkinson's Disease Foundation November is National Family Caregivers Month. This month, celebrate care partners to people with Parkinson's. Don't miss our next event, "How to Take Care of the Caregiver" by phone or online next Tuesday, November 17 at 1 PM ET.

www.pdf.org
Read the latest Parkinson's community news - events in the Parkinson's community, personal stories of living with PD and new resources to help those living with Parkinson's.
Linda Giorgilli
Linda Giorgilli
To James M Haynes, I am uncertain if your message was to me or to Linda Webb above, but if it was to me, I thank you and I want you to know that I am trying to write a book of my experiences because I felt like I found so many ways to help make my dad's world better, and he in turn graced me with the ability to realize the smallness of my problems ... See Moreand the largeness of his capacity to deal with his problems. There are so many stories I could tell, but we always tried to fight the light during his darker moments, and he as I've mentioned a million times before was incredible with his refusal to complain or feel sorry for himself. I cannot imagine how I might be given this diagnosis, but I do know there is a world of support and wonderful people who want nothing but to bring joy into the world's of people fighting this monster. Keep your strength and easier said then done, I always want to remind those with PD to not let the disease define them, but to be the very special people they already are. If your message was to me, please feel free to write. I would love to correspond. If Linda Webb is your wife or is who your message was intended to, I still invite any correspondence and will always be there for support.
November 12 at 4:34pm
Linda Giorgilli
Linda Giorgilli
I meant to say "find" the light and instead wrote "fight" the light above. Oops.
November 12 at 4:36pm
Parkinson's Disease Foundation

Parkinson's Disease Foundation Who's working to fight Parkinson's? Watch this video to see all the people working to treat and cure Parkinson's and provide education and support.

www.youtube.com
In the next nine minutes, someone you know could be diagnosed with Parkinson's disease, a neurological condition that has the potential to be devastating and debilitating. Parkinson's disease affects nearly one million Americans and approximately 60,000 new cases are diagnosed each year. ...
Grace
Grace
I pray everyday for a cure. My now husband was diagnosed 2 yrs ago at the age of 49. We were married this past saturday and it was the most beautiful day of our lives. All of our family and friends were there to share our love. It breaks my heart to feel so helpless. But no matter what we are in this together, his disease is my disease. I pray for all of you struggling with this and hopefully someday soon we will be able to celebrate that they have found a cure. God Bless.
November 9 at 2:37pm
Linda Parks Colman
Linda Parks Colman
I have had Parkinsons Disease for almost ten years and I am very fortunate to have a great neurologist in Jacksonville, FL his name is Dr. Huang at Shands. I have been experiencing more of balance changes the past year but other than that I keep a positive attitude because I don't know what lies ahead for me but I know on thing and that is God is right there with me and I can do anything with him by myside.
November 9 at 3:12pm
Charlene Pryor

Charlene Pryor Get to know me better as my days progress on with Parkinson's, Epilepsy, and Arthritis through http://justmeantiques.blogspot.com enjoy Pokie

justmeantiques.blogspot.com
This is a daily journal of my fighting not only Parkinson's Disease but Acute Rheumatoid Arthritis with My Lord on one side and Patientslikeme.com on the other....with a sense of fun and friendship all around..... Sincerely, Pokie
Parkinson's Disease Foundation

Parkinson's Disease Foundation Support Parkinson's research in NYC, at our Raising the Stakes event! Join PDF and our Honorary Chair Annie Duke — poker icon and runner-up on NBC’s hit show Celebrity Apprentice - next Wednesday, November 11 at 8 PM at Capitale. Tickets on sale now. Great prizes, including a lesson with Annie for the night's overall winner.

www.pdf.org
Join Honorary Chair Annie Duke — poker icon and runner-up on NBC’s hit show Celebrity Apprentice —and the Parkinson's Disease Foundation,for a night of casino games, prizes, cocktails, dinner and dancing.
Linda Giorgilli
Linda Giorgilli
Deb,
I just noticed your message and apologize for not catching it before. If I get to Naples, I would absolutely visit and I am looking to get my book finished and try to publish it about my days with my dad. I will look into this organization and thank you for writing. It really touches and helps to heal me. Again, thanks. I look forward to talking again! I do hope you do well with your mom and my thoughts are with you! Hang in there.
Lin
November 18 at 3:59pm
Deb Delany
Deb Delany
Thank you.
November 22 at 8:28pm
Donna Trendell

Donna Trendell Life with parkinson's is like a box of chocolates, each day you don't know what your going to get.

November 3 at 5:12am · Report