Parkinson's Disease Foundation

Lets put an end to PD.....Please support PDF xo

Hello everyone

(I tried posting this separately but for some reason the gremlins prevented me!)

My mother passed away recently and quite suddenly. She lived with Parkinson's Disease for 31 years. For the last 7 years, she had become reasonably active once more and enthusiastic about life due to her meds being better regulated. ... See More

Regarding her recent death, she had a combination of things that hit her all at once- pneumonia being one issue. What surprised me though was the diagnosis that she had suffered a stroke or maybe more than one within days. It was very obvious to me that she had stroke-like symptoms (drooping face etc) but she was immediately placed on palliative care with no scan done to determine if she in fact had a stroke. Each time, in the four days before she went to hospital all her observations including blood pressure were normal despite the obvious facial drooping and very rapid decline with coordinating utensils and speech.

I do believe though the odds were against her surviving and also given that she had apparently lost her ability to swallow and would have had significant challenges had she recovered from pneumonia.

However, I was wondering if anyone knows of people with Parkinson's dying from stroke. A thought to me was that her Parkinsons may had suddenly triggered a stroke-like response. Mum and I joked all the time that because her blood pressure was ALWAYS so low, stroke was the least likely health problem that could afflict her.

I am just curious more than anything. If anyone has experiences of something happening to their relatives or friends, I'd be appreciative to hear.

My mother had an extremely positive attitude to her disease in recent years despite the odds. She battled hard and was getting out in the community. I saw first-hand from the time I was a kid (6) until now (38) the progression of this disease in mum's case- her ups and downs, struggles, self-esteem issues, the effects on her and her carers as well (Dad and I being those).

I am forever a supporter of Parkinson's research. Please drop me a line anytime. RIP dear mum.

Cheers

David

I had already placed a link on my own personal site because the film is so beautiful and touching. I hope you don't mind me sharing what I wrote above. It was in honor of my dad and I just wish I could help more with this disease. As I have mentioned, I am trying to write about my experience with my dad, but cannot commend your website enough for the wonderful resources, videos, comments, stories, and ability to allow people with the disease to share their thoughts. Thank you so much.

Thank you for posting the dance video. Next, for the tech-challenged such as myself, can I post the video on my own site, or does it have to be hosted at YouTube or some such?

Great company with so much potential. Let's make this horrible disease disappear!!

I missed the webcast -- will it be archived?

Hi Christine, Yes, the event will be up on PDF's website by next week and then you can watch it any time of day. We''ll post a reminder on the FB wall when it's up!

To James M Haynes, I am uncertain if your message was to me or to Linda Webb above, but if it was to me, I thank you and I want you to know that I am trying to write a book of my experiences because I felt like I found so many ways to help make my dad's world better, and he in turn graced me with the ability to realize the smallness of my problems ... See Moreand the largeness of his capacity to deal with his problems. There are so many stories I could tell, but we always tried to fight the light during his darker moments, and he as I've mentioned a million times before was incredible with his refusal to complain or feel sorry for himself. I cannot imagine how I might be given this diagnosis, but I do know there is a world of support and wonderful people who want nothing but to bring joy into the world's of people fighting this monster. Keep your strength and easier said then done, I always want to remind those with PD to not let the disease define them, but to be the very special people they already are. If your message was to me, please feel free to write. I would love to correspond. If Linda Webb is your wife or is who your message was intended to, I still invite any correspondence and will always be there for support.

I meant to say "find" the light and instead wrote "fight" the light above. Oops.

I pray everyday for a cure. My now husband was diagnosed 2 yrs ago at the age of 49. We were married this past saturday and it was the most beautiful day of our lives. All of our family and friends were there to share our love. It breaks my heart to feel so helpless. But no matter what we are in this together, his disease is my disease. I pray for all of you struggling with this and hopefully someday soon we will be able to celebrate that they have found a cure. God Bless.

I have had Parkinsons Disease for almost ten years and I am very fortunate to have a great neurologist in Jacksonville, FL his name is Dr. Huang at Shands. I have been experiencing more of balance changes the past year but other than that I keep a positive attitude because I don't know what lies ahead for me but I know on thing and that is God is right there with me and I can do anything with him by myside.

Deb,
I just noticed your message and apologize for not catching it before. If I get to Naples, I would absolutely visit and I am looking to get my book finished and try to publish it about my days with my dad. I will look into this organization and thank you for writing. It really touches and helps to heal me. Again, thanks. I look forward to talking again! I do hope you do well with your mom and my thoughts are with you! Hang in there.
Lin

Thank you.