Positive Exposure

i agree with cheri, i found out about their plight when i went to kenya to visit and i heard rumors that they were killing albino babies for black magic, then i researched some more, by going to kenyan, tanzanian and other east africa news resources and got a lot of info, i started a cause on facebook, and my family and some friends are in the ... Read Moreprocess of collecting sun screen/block, chapstick, sunhats etc for the NOAH, and other charities that benefit the ones in dire need, imagine the african scorching sun, most of them are told due to the rays they will never live past 36 or so, skin cancer, and then now they cant enjoy life in peace, someone is hunting them down like animals! God have mercy on us all!!

I'm glad I was in a minority! Maybe the problem was with me.

shauri loves positive exposure she wishs she could be on the board and help with it. such as take pictues of kids with syndromes.

Great letter!Had a great time with you and everyone at the Noonan/Cfc/Costello meetings. YOU are changing the world Rick! And I am so glad to have met you and hope this is just the beginning.

This is the first time I actually saw my beauty in a photo. You have heard the same story time and time again I am know, but when I was a kid, I was always seen as the different one and MADE to BELIEVE by my peers that different was NOT good. Not to mention all the 'negative portrayal medical photos'

Since being with TNSSG for 12 years now, I have become at total ease with having Noonan Syndrome. I am a much more self confident and self assured person. I wouldn't be me without NS but it doesn't define me, its part of me - but hey thats it - nothing more.... Read More

BUT what I DIDNT see was beauty -- and only saw that in YOUR photos you took of me! I also sense a new wave of self assurance.

Mich

Thank you x3. Your work is so important to my two daughters with Albinism (I was a NOAH board member) and now to my daughter, 19, with bilateral cleft lip/palate. If you would like to become my "friend" on Facebook, you could see my photos of these remarkable young women. You have opened the eyes of everyone who looks at your photographs to true beauty. I get to see such beauty in my home every day.

i cant believe this is allowed. God have mercy on their souls. who could kill an innocent child because of how they look. please tell me how i can help.

These people will get their just punishment on judgement day. My daughter with albinism is the most beautiful of God's creations!

One word - Inhumane.

So glad you were all able to listen. It's a pretty well-rounded piece, though as some pointed out, they unfortunately did use the word "albino" throughout. Seems like that's a hard habit for people to break.

Excellent. You are dead on about habits. Tanela made us more aware than ever. Wanted to invite friends for a party and said" you know the girl with the brown hair" she was black and T never saw it that way... If only everyone could look at the world through their real heart and not the predjudices that seem to engrain themselves...Keep up the great work

Thanks Anna - Your update was well wonderful. And who's to say what life is.

I have hemangioma on right side of my face. I am a journailst in Japan, and President of NPO Uniqueface.

The photos of the children are absolutely stunning.

You guys are amazing and your energy is endless. THANK YOU...and by the way Rick I found Avery :)

Thanks for sharing beautful pictures of beautiful people!

it was very good

I can't seem to view the video on last year's chromosome 18 conference. It just says it's private. Any suggestions on how to view?