Positive Exposure
Information
Founded:
1997
Photos

1 albumSee All

Positive Exposure favoritesCreated on September 9, 2008 at 3:54pm
Video

2 of 9 videosSee All

4:46 Added about 8 months ago
6:29 Added about 8 months ago
No one has added fan videos.
Events

2 past eventsSee All

Causes
 
Positive Exposure
The most amazing dinner at Corpus Christi College. Cambridge. Hosted by Dr. Petrus de Vries!!! So Hogwarts! Originally uploaded by Positive Exposure
Janis Wisherop-Ryan
Janis Wisherop-Ryan
I heard all about it from Michelle! Saw Katie's pic via Michelle's posting.. one of my favorites. Keep up the great - wonderful work you do Rick and have fun in the SUN!!!
October 19 at 3:36pm
Stephen Lang
Stephen Lang
Yes Janis. Rick is a real Saint. He has done very wonderful work for People.
October 19 at 10:38pm
Positive Exposure
Great conference, next stop Honolulu for the ASHG high school workshop! Next blog with pics from Cambridge UK exhibit and lecture SSBP!
Positive Exposure
Read a description of tonight’s episode. ABC also has a lot of great resources posted on the web. ...
S Romma Wanja Freeman
S Romma Wanja Freeman
i agree with cheri, i found out about their plight when i went to kenya to visit and i heard rumors that they were killing albino babies for black magic, then i researched some more, by going to kenyan, tanzanian and other east africa news resources and got a lot of info, i started a cause on facebook, and my family and some friends are in the ... Read Moreprocess of collecting sun screen/block, chapstick, sunhats etc for the NOAH, and other charities that benefit the ones in dire need, imagine the african scorching sun, most of them are told due to the rays they will never live past 36 or so, skin cancer, and then now they cant enjoy life in peace, someone is hunting them down like animals! God have mercy on us all!!
October 8 at 6:48pm
Diana Lees
Diana Lees
I'm glad I was in a minority! Maybe the problem was with me.
October 19 at 4:25pm
Positive Exposure
Lecture scheduled for Saturday 9/12 @8:40, Dermatology O’Leary Symposium. Cool! Originally uploaded by Positive Exposure
Lori Thomas
Lori Thomas
shauri loves positive exposure she wishs she could be on the board and help with it. such as take pictues of kids with syndromes.
September 22 at 4:15pm
Positive Exposure
Originally uploaded by Positive Exposure
Positive Exposure
We just found out about a great opportunity to get some exercise and promote awareness for children with craniofacial conditions...
Positive Exposure
PE partner Under the Same Sun has posted some recent news articles mentioning founder Peter Ash’s efforts to keep the international spotlight trained on the justice process in Tanzania. ...
Positive Exposure
An update on the threat to people with albinism in Tanzania from our partner organization, Under the Same Sun- Vancouver BC, Canada – August 6, 2009: “As the slaughter of albinos continues, promises from Tanzanian President Jakaya Kikwete and Prime Minister Mizengo Pinda that the killers would be ...
Positive Exposure
Here’s a wonderful letter along with some photos from the Cardio-Facio-Cutaneous Conference. Dear Rick, We’ve met at the last 2 cfc conferences I’ve attended. i di...
Michelle
Michelle
Great letter!Had a great time with you and everyone at the Noonan/Cfc/Costello meetings. YOU are changing the world Rick! And I am so glad to have met you and hope this is just the beginning.

This is the first time I actually saw my beauty in a photo. You have heard the same story time and time again I am know, but when I was a kid, I was always seen as the different one and MADE to BELIEVE by my peers that different was NOT good. Not to mention all the 'negative portrayal medical photos'

Since being with TNSSG for 12 years now, I have become at total ease with having Noonan Syndrome. I am a much more self confident and self assured person. I wouldn't be me without NS but it doesn't define me, its part of me - but hey thats it - nothing more.... Read More

BUT what I DIDNT see was beauty -- and only saw that in YOUR photos you took of me! I also sense a new wave of self assurance.

Mich
August 9 at 7:46am
Debra Marie Britt
Debra Marie Britt
Thank you x3. Your work is so important to my two daughters with Albinism (I was a NOAH board member) and now to my daughter, 19, with bilateral cleft lip/palate. If you would like to become my "friend" on Facebook, you could see my photos of these remarkable young women. You have opened the eyes of everyone who looks at your photographs to true beauty. I get to see such beauty in my home every day.
August 9 at 10:08am
Positive Exposure
The next installment in journalist Phillip Martin’s series on albinism in Africa focuses on the killings of people with this genetic condition that have occurred in Tanzania, Burundi, and Kenya. ...
Mindy Hurst
Mindy Hurst
i cant believe this is allowed. God have mercy on their souls. who could kill an innocent child because of how they look. please tell me how i can help.
August 7 at 3:37pm
Cyndy McMurry Stewart
Cyndy McMurry Stewart
These people will get their just punishment on judgement day. My daughter with albinism is the most beautiful of God's creations!
August 7 at 5:23pm
Michelle
Michelle
One word - Inhumane.
August 10 at 4:46am
Positive Exposure
While the trials of those charged with the killings have been proceeding in Tanzania and Burundi, people with albinism still face discrimination in Africa. Public Radio International has been featuring a series on albinism worldwide...
Positive Exposure
Positive Exposure
So glad you were all able to listen. It's a pretty well-rounded piece, though as some pointed out, they unfortunately did use the word "albino" throughout. Seems like that's a hard habit for people to break.
July 29 at 1:53pm
Mark Durbin
Mark Durbin
Excellent. You are dead on about habits. Tanela made us more aware than ever. Wanted to invite friends for a party and said" you know the girl with the brown hair" she was black and T never saw it that way... If only everyone could look at the world through their real heart and not the predjudices that seem to engrain themselves...Keep up the great work
July 30 at 4:33am
Positive Exposure
Hello everyone! This is Anna, the other intern...
Susan Kiernan
Susan Kiernan
Thanks Anna - Your update was well wonderful. And who's to say what life is.
July 25 at 11:00am
Masayuki Ishii
Masayuki Ishii
I have hemangioma on right side of my face. I am a journailst in Japan, and President of NPO Uniqueface.
July 27 at 11:10pm
Barbara Leparulo
Barbara Leparulo
The photos of the children are absolutely stunning.
July 28 at 6:39pm
Positive Exposure

Positive Exposure Intern update!

Source: positiveexposure.wordpress.com
I joined Rick and Kim at the AMC Support convention in Philly this weekend. AMC (Arthrogryposis Multiplex Congenita) is a genetic condition that impairs joint mobility. Kim and I spent most of the day ...
Positive Exposure
I joined Rick and Kim at the AMC Support convention in Philly this weekend. AMC (Arthrogryposis Multiplex Congenita) is a genetic condition that impairs joint mobility...
Jill Lynn
Jill Lynn
You guys are amazing and your energy is endless. THANK YOU...and by the way Rick I found Avery :)
July 22 at 5:24pm
Susan Kiernan
Susan Kiernan
Thanks for sharing beautful pictures of beautiful people!
July 25 at 11:02am
Positive Exposure

Positive Exposure Check out some footage from last year's Chromosome 18 Conference!

Source: www.youtube.com
Every year, the Chromosome 18 Registry & Research Society organizes a conference for its members. The goal of these conferences is to provide families with the most up-to-date information about chromosome 18 abnormalities. ...
Alyson Weatherhead
Alyson Weatherhead
it was very good
July 9 at 7:40am
Jessica Montalvo
Jessica Montalvo
I can't seem to view the video on last year's chromosome 18 conference. It just says it's private. Any suggestions on how to view?
July 24 at 11:27am