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Prostate Cancer Foundation

 
Rafael Olán

Rafael Olán I ♥ Movember Moustache

5 hours ago · Report
Clare Barnard Schmitz

Clare Barnard Schmitz
Does anyone know about treatments for advanced prostate cancer that might be available abroad (and not in the US)? My dad is currently being treated with Taxotere, but it doesn't sound like there are many options after that. I know sites are recruiting for a clinical trial with Ipilimumab, but the fact that it's a do...uble-blind is kind of scary. I do recognize that it may be the only option! Any help would be greatly appreciated.Read More

Kim Sorensen

Kim Sorensen I am a supporter for all cancer research. The love of my life just had prostate surgery and it was successful! I thank GOD everyday for his blessings!

Prostate Cancer Foundation

Prostate Cancer Foundation A new test using nanotechnology may help spot the return of prostate cancer following surgery years before current tests can. Read more: http://www.prostatecancerfoundation.org/news/nanotest

Fri at 3:09pm
Rusty Dennison
Rusty Dennison
The continued research and developments are still exciting and gives hope that advancements are still being made against this disease.
Sat at 9:57am
Diane Bisgeier

Diane Bisgeier Kudos to the AUA for affirming thoughtful, comprehensive approach to prostate cancer screening http://bit.ly/3y67ob

Heidi Lee

Heidi Lee Congrats to everyone having good luck. Don't rush anything. My condolences to everyone else who has lost someone. Together we can support each other.

Christopher Palazini

Christopher Palazini
In a more realistic world, when should I expect to be able to return to work?

After 3 weeks, I should finally be getting my catheter removed today (3rd try after urodynamic testing showed minor leaking at the sutures).

Initially I was told 2-3 weeks after my laparoscopic surgery would OK, so I just planned on four weeks.... But now I'm not so sure. I have a long train ride to work - some 80 minutes, and I'm not so sure I can deal with that long trip with all the shaking, etc. in a crowded train car.

I have a great deal of discomfort when seated in a normal chair, even with a pillow.

Just looking for the experience of others. Thanks to all in advance.
Read More

November 3 at 4:32am · Report
Christopher Palazini
Christopher Palazini
Thanks for all the input gang. I really appreciate it.

Currently, I have little to no control 5 days after removal of my catheter. It probably didn't help that I had it in place for nearly 3 weeks due to suture leakage.

I continue to do the Keigels as often as I remember to - about 5 to 6 times a day. I am using Depends right now as the pads would not be enough.... Read More

When I am able to "control" it, the stream is on it's own really. I am pushing slightly to urinate, but I am unable to stop the flow once it starts.

When I stand up, I leak but not always in small amounts. When I start to go, I can't seem to hold it back. Very frustrating.

The most disconcerning part is that I don't seem to have any indication that "I need to go". If I had that, I'd be on my way to the bathroom before the flow started, but I don't get that "sensation" right now - and I'm a bit concerned I will ever get it back.

My surgical margins needed to be very wide, and I'm not sure how much of an impact that's going to have on my urination. Erectile issues are ever more of a concern. My surgeon has already referred me to an ED specialist. I'm not sure that's an positive thing.

Not giving up , , too long of a battle ahead. BUt there is some discouragement.

To Robert Minion: That's pretty much where I am these days. My sleep pattern is a mess. Reminds me a bit of taking care of our sons during the when they were babies. Instead . . it's me.
Yesterday at 2:16pm
Miguel Ortiz

Miguel Ortiz Great rport from the surgeon today. Pathology tests came back and am now cancer free whooooo, praise God. Thank all of you for your prayers and encouragement. Tomorrow is liberation day with the catheter, feeling wonderful and getting stronger every day.

November 2 at 7:32am · Report
Robert F. Munion
Robert F. Munion
The kegels are tough, I kegel and I leak even more. I am now onto regular underwear with pads and not the bulky pull ups.
November 5 at 9:14am
Heather

Heather My dad passed away in June 2008 after battling very aggressive prostate cancer for about 11 years. It kind of angers me that so much media attention is given to breast cancer, while prostate cancer receives little to no attention!

October 30 at 7:52pm · Report
Maria Silvestri
Maria Silvestri
I TOTALLY AGREE WITH YOU!...My dad has it too
November 4 at 6:23am
George Vesel

George Vesel Just finished Radiation seeds implantation. Just wanted to see what was going on out there in the way of research and support.
George Vesel

Patricia

Patricia Remind your husbands, fathers, brothers, uncles, and friends to be vigilant!

Prostate Cancer Foundation

Prostate Cancer Foundation We've just sent out the October NewsPulse: our newsletter that contains all the latest prostate cancer and PCF news. To read it or sign up, go to: http://www.prostatecancerfoundation.org/newspulse/october2009

Glenn Barcellos

Glenn Barcellos Just starting down the treatment path. With PSA of 16.4, had biopsy wich showed cancer with a Gleason of 8. CT and Bone scans were clear. Radiation oncologist recommends 2 months of Lupron followed by 2 months of radiation and is confident of a cure.

October 27 at 8:28am · Report
T Warren Montgomery
T Warren Montgomery
Good luck Glenn. My prayers are with you. Keep your head up.
November 5 at 1:36pm
Robert F. Munion

Robert F. Munion
I had RP in July 09. My most recent PSA is undectable. However my incontinence problem is getting worse. I do kegels and the flow gets worse. Dr. states that there are pills to relieve these symtoms but the side effects are worse than the cure. I go back to see him on Nov 11 and if I have not gotten control of the... sphincter muscle by than h will recomends surgery to solve the problem. Any one out there who has had this surgery.Read More

October 26 at 2:08pm · Report
Dominic
Dominic
talk to your doc about detrol. I had bladder sensitivity (however it was just minor leakage) during radiation and that helped.
October 28 at 5:36pm
Eric

Eric Hello, just found this page. My father passed away a month ago from Prostate Cancer. If there are any oppertunities for involvement in the Chicgoland area please let me know, as this is cause I will always fight for.

October 23 at 7:22pm · Report
Kathy J Watson
Kathy J Watson
Eric, my condolences on the loss of your father. As Dominic said, be sure you are screened for this disease. Early detection is key
October 29 at 3:47pm
Linda Bilyeu
Linda Bilyeu
"You may know this but men with immediate family members with PCa have a 50% > chance of PCa".....Dominic if you don't mind I think that percentage should be 80% since my husbands dad passed away from PCa and all three sons are now battling it. The ironic thing is the urologist who diagnosed my husbands cancer told us it's not genetic (needless to say we found a new doctor).
October 30 at 4:05pm