Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

I wish I could come, Howe er I love in Tennessee so that's a little far to come. I wish you well with the fundraiser. Thank you for taking action and doing something to help all of us with RSD.
Leesa Downs

YES, cold and wet weather is a BITCH!

yes

gets worse when it s colder.

Jessica,

It sounds like you might be kind of young and maybe haven't been married that long (if I'm wrong, forgive me), but your husband is right (maybe not always, but in this case yes). The last thing you need is to add guilt to the physical and emotional burden you're already carrying. And remember, as an Air Force wife, you might be called on to be left alone for months, or even a year at a time, if war were to escalate and your husband were transferred to the front. Would that be his "fault" ... no! You and he signed up for that as a possibility when he joined the Air Force and you joined yourself to him.

As husbands and wives, we make a contract with each other, to love and care for one another ... "for better, or worse" ... easy to say, rarely easy to live up to, or with! I'm a man whose wife supports him and the family. I'm a man who is physically unable to perform many of the duties I was once proud to do for my wife and kids. I'm a man who has lost much of the physical and emotional strength that made my wife and children feel proud and safe. I'm a man who nearly drowned in guilt over an accident and associated injuries (and RSD) that that weren't my fault.... See More

Imagine your husband, injured at work, or in a war and coming home awash in guilt for having developed RSD and lost so many of the traits and abilities by which he defined his manhood and his value and place in your marriage ... would you want him to feel that guilt, would you blame him?

Or, would you love him and honor your contract by finding some way to make things work, while supporting his emotional and physical needs and reassuring him that you love him and that it wasn't his fault?

From your writing, I'd guess you would try to convince him that it wasn't his fault and that you still love and respect him as both husband and friend. So, give yourself a break. You need every bit of energy and focus you have to try to get yourself better, or at least stabilized. Given time, support and a lot of painful work, you can at least get yourself to a point where you feel like you're contributing, but FIRST, you have to forgive yourself for not being all you were and know ( NOT just believe, but KNOW) that it is not your fault.

Be well and find happiness,

Kevin

The above image can be printed on card stock. Or order them from www.rsds.org

I posted the second card above your entry.

A little bit about me... what this is and how I live daily...

you can also help by making your birthday cause wish a donation to the RSDSA:)

I would love it if people would support this cause and find us a cure! I can't stand living with this decease! I would rather people donate to this as it would be a gift enough.

thanks guys....i wish I had someone or something to stay strong for. Sometimes yourself...when you feel broken...is not enough.

I still dont tell the docs everything. I try but when they act like im trying to fool them it becomes so frustrating. Sometime i think i forget on purpose. The stress of moving on will bring on the pain. Hang in there and work through it!

For those of you who didn't hear me already on Lori's last post, feel free to add me if you have RSD, no matter your age. I'd love to get to know you or find people who suit your interests/needs! Just say you have RSD in the friend request! :-)

xoxoxoxoxox

Yes Lori, I agree that we really do need to support each other who understands how we are feeling and how to cope with the flare-ups. This is very important, since this disease has a very high suicide rate and if you have rsd, you can agree with this. So support from family and friends is very important to us. I always say the more friends the merrier. Hope everyone is having low pain days.

Gentle hugs

my birthday wish is to raise money for the rsdsa!!!:) my nY giants also donated a team signed helmet and football and another football signed by Eli to the silent auction in nyc nov 4th! It brought good money and awareness to them!!! GOOOOOOO GIANTS!!!!