
Jane i am looking at buying a new mattress, do my RSD friends have any suggestions?

Tammy King Does anyone know if RSD can effect eye sight? I have had RSD for about 5 years. Longer I think but was not diagnosed till then. Now I appear to be losing vision in my left eye. My left side is the affected side. I am going to an eye specialist Friday. I am told what I have is usually due to MS. Looking for answers??

Nicole Bertrand
Hi everyone. I'm new here. I have CRPS since September 2007. Originally it was in my left foot. It has spread to different places with flares, but thankfully some of the places have gone into remission. This past March I was diagnosed with POTS, another nervous system disorder. There are so many symptoms w/POTS, but ...the basic symptom is dizziness and nausea upon standing...and well hours after. I am very excited to meet everyone! I will keep all of you in my prayers and I hope you have better days SOON!
OH, I recommend going to Cleveland Clinic...message me wtih more info.Read More
OH, I recommend going to Cleveland Clinic...message me wtih more info.Read More

Alyssa Boreiko Anyone have any advice for when you get a flare up and your back knots all to hell. I can't afford to get a massage done, but I am getting to the point where some days I can hardly walk up steps because it hurts so much! I have tried the usual pain killers and icyhot. I have Lidoderm patches, but have not used them yet. Anyone???

Pam
Sharing my journey to help increase awareness ... gentle hugs and prayers for all who walk this walk ... http://www.facebook.com/HappilyHis?v=app _2347471856&ref=profile

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
RSDS Fall Festival Fundraiser
November 21, 2009, 10:00 am to 2:00 pm
First United Methodist Church, 8th and D St, Belmar, New Jersey
Vendors, Raffles, 50/50, Chinese Auction. To Benefit RSDSA.
More information: http://www.rsds.org/1/events/index.html
Source: www.rsds.org
November 21, 2009, 10:00 am to 2:00 pm RSDS Fall Festival Fundraiser First United Methodist Church, 8th and D St, Belmar, New Jersey Vendors, Raffles, 50/50, Chinese Auction. To Benefit RSDSA. If interested in a table ($10.00 per table), please contact Irene.

Michelle Medina I am going for the Spinal Stimulator tester next month I need to know if it has worked for others with RSD.

Jessica Sponseller
well iwas hoping for a good day.Again my neck and arm is killing me i cant even stand to swallow my pills and they are tiny ones.Feels like gravity is pushing down on my shoulder and arm and feels like i keep hitting my funny bone.I didnt sleep to well i normally dont and being pregnant rest is the main key.I had a doc...s appt i had to cancel because one i cant drive that well with one good arm and two my husband needs the car.So we are not having a very good day.Read More

Kelli Speichinger
I am 29 years old I have had RSD since I was 13 yrs old. I have RSD in my Right foot, well from Toes to lower back. Lucky Me it has remained in its original limb of injury. After multiple injuries as a child a drunk driver in 1999 sealed my fate. He progressed my RSD to the point my pain meds began to double and has gr...adually gotten worse. I have tried multiple blocks, numerous meds, several foot surgeries, and am now in the process of getting my Spinal Cord Stimulator after a successful week long trial. I am scared but happy at the thought of the idea of being "pain free"... I am Currently Daily on 4800 mg of Neurontin, 100 micro G Duragesic (every 48 hrs), 75 mg Pristiq, 300mg Ultram XR, 30 mg Immediate Release Morphine, Lidoderm patched, 200 mg Voltaren Gel, 1CC Vitamin B Injections. I have used these meds in the past : Tramadol, Tegretol, Tegretol XR, Lyrica, Cymbalta, and several others. So if you have questions on these meds (side effects or treatments) feel free to ask! I am currently disabled but am engaged to a wonderful man who is so supportive, loving, and my best friend. We are getting married April 17, 2010. He took me on with all this baggage and loves me regardless. We met online and have been together for almost 5 years. Oh by we live in Houston, Texas (Baytown). I would love to find friends locally that have the same disability as me to compare notes, and just have someone relate with me on that level. Feel free to msg me :)Read More

Jessica Sponseller
Waiting to go to the diabetic docs here in cheyenne wy to learn about what to do and etc.i had one scheduled for tomorrow but my husband isin the air force and they had to move his schedule around from the last snow storm we got so i am hopeing they get me in late tues or wens.my next shot i postponed kinda wish i didn...t but i would rather enjoy christmas with my family that is visiting and at least a month with the baby.Spasms are getting worse my eye is back to saging now and again.but the only thing i can think of that is causeing it is all the stress and sleepless nights i get dont help me at all.Read More

Chris Miller
Hi! I have RSD in my upper left extremity and lower left extremity, face; and have occassional mirror effects on the right side as well. Life goes on! The medication that helps me the most is Lyrica. I now take 450 mg. per day, along with a handful of other stuff. Ugh! What helps me the most is "trying" t...o keep active. Do some sort of exercise everyday. Walk at least a little every day. Aqua therapy and massage therapy have proven to be the best modalities for my RSD. I can't work anymore. I suffer depression and anxiety because of the RSD and a host of other contributing factors.Read More

Craig Schamburg Having constant pain afte a total knee replacement? I had nerve surgery at Union Memorial in Baltimore and it is a mircale.

Michelle-Chelby Coburn Jones i have had full body rsd for 5 years now. it seems i am constantly experiencing some strange new symptom. i now am having issues with the pressure in my eyes. has anyone else had issues with their eyes related to rsd?? please help me find info on possible eye issues due to rsd!

Cari Burg
Hi all. Like you Sydney, I'm totally new to this. I have to say, it's really nice to know I'm not the only one. Most days I fake it. Pretend that I'm fine, but my husband knows. He can see the bitch in me. Thankfully he knows it's not me. Just the pain.
So, that's all. I just thought I'd put my voice out there. May we all have relief soon.














