Spina Bifida Association
Information
Founded:
1973
Fans

6 of 2,129 fansSee All

Jennifer
Jennifer
Kristyn
Kristyn
Photos

2 of 4 albumsSee All

Wall PhotosUpdated about 5 months ago
2009 National ConferenceCreated about 5 months ago
Events

1 past eventSee All

 
Spina Bifida Association

Spina Bifida Association Support the Film “Extraordinary Measures” While Benefiting the Spina Bifida Association

SBA has an exciting opportunity available to its supporters to help the organization raise $10,000 through an online sweepstakes promoting the CBS Films inspirational drama “Extraordinary Measures” starring Harrison Ford and Brendan ...Fraser premiering in theaters January 22, 2010.

How does the promotion work:CBS Films, the producer of “Extraordinary Measures,” has developed an inspirational digital quilt (http://extraordinarymeasuresthemovie.com/#/quilt) where real life videos of courage, endurance, and triumph are showcased. These videos have been selected, in part, because they support the theme of the movie.

We are excited to announce that SBA’s video “Abigail Branson Not Limited by Spina Bifida” has been selected for inclusion in the quilt.

Viewers of the site can vote to support the video they enjoy. The video which receives the most votes will win $10,000 for the charity. The winner will be announced on or around February 5, 2010.

Odds of winning the Grand Prize depend on the number of eligible video entries and votes received during the submission period. Each vote on our video is another “entry point” into the Sweepstakes. The more votes our video receives the greater our chances of winning.

Film Background
In the tradition of great inspirational dramas like the Academy Award nominated films “Erin Brockovich” and The Pursuit of Happyness,” “Extraordinary Measures” http://extraordinarymeasuresthemovie.com/#/home is inspired by the true story of John Crowley, a man who defied conventional wisdom and great odds, and risked his family’s future to pursue a cure for his children’s life threatening disease. From his working class roots, John Crowley (Brendan Fraser) has finally begun to taste success in corporate America. Supported by his wife Aileen (Keri Russell) and their three children, John is on the fast track. But just as his career is taking off, Crowley walks away from it all when his two youngest children, Megan and Patrick, are diagnosed with a fatal disease. With Aileen by his side, harnessing all of his skill and determination, Crowley teams up with a brilliant, but unappreciated and unconventional scientist, Dr. Robert Stonehill (Harrison Ford).

Vote today
This is a great opportunity for our community to promote awareness about our cause in conjunction with a high profile film. Please take the time and go to http://extraordinarymeasuresthemovie.com/#/quilt and vote for Abigail’s video.

AND PLEASE FORWARD THIS MESSAGE TO YOUR FRIENDS MAKE AND ASK THEM TO VOTE!

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extraordinarymeasuresthemovie.com
Thanks for visiting the Extraordinary Measures site! Brendan Fraser, Harrison Ford and Keri Russell star in Extraordinary Measures for CBS Films, in theaters January 22, 2010. We tried updating your flash but apparently it's not installed on your machine. ...
Langat
Langat
God has good plans for us. It depends on how closer we are to Him for their fulfilments.
December 16, 2009 at 11:48pm
Spina Bifida Association

Spina Bifida Association Listen to a CDC Podcast regarding 2009 H1N1 Information for Parents who have Children with High-Risk Medical Conditions

www2c.cdc.gov
CDC has more than 300 different podcasts in 20 series on a wide range of health topics! Enjoy them on line or subscribe and have them automatically delivered to your computer or mobile multimedia player.
Spina Bifida Association

Spina Bifida Association There are only FOUR DAYS LEFT to purchase your tickets for the Spina Bifida Association’s Volkswagen® Beetle Convertible Raffle! The drawing will be held this Saturday morning…don’t miss your opportunity to win. Get your tickets today!

Don’t forget – new this year, the winner can opt to take a cash prize of $28,000 in l...ieu of the vehicle!
You can use this prize money for whatever you’d like:

mortgage payments for the year

college tuition

a dream vacation

holiday gifts

Only 2,500 tickets will be sold…your chances of winning this amazing car are fantastic…plus all the proceeds go to a great cause! Don’t miss out on this opportunity.

Drawing to be held at 11:00 am on November 7, 2009 at the Walk-N-Roll for Spina Bifida at The George Washington University’s University Yard, located on H Street NW between 21st and 20th Streets, Washington, DC 20052.

You do not need to be present to win. Visit www.spinabifidaassociation.org or call 800-621-3141 ext.16 to buy your tickets today.

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Spina Bifida Association

Spina Bifida Association The American Association on Health and Disability (AAHD) has prepared the following information as a timely quick resource to websites and resources on H1N1, seasonal flu, vaccines, antivirals and diagnostics. This page will be updated and modified on a regular basis on their website. Please feel free to circulate and ...contact AAHD at contact@aahd.us to add additional resources. Please check the websites listed below on a regular basis for updated information and the CDC website at www.flu.gov , which is updated daily on the status of vaccine locations and latest developments.

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www.aahd.us
AAHD The American Association on Health and Disability
Amanda Maria Mendoza
Amanda Maria Mendoza
Hi my name is amanda I am 15 years old and have spina bifida I've been looking for someone my age to talk to about spina bifida and stuff if u can help I thank you I live in Angleton TX which it is close to Houston Thanks.
November 25, 2009 at 6:10pm
Sharon Phillips
Sharon Phillips
Hi Amanda my daughter is 17 and has spina bifida we could find a way for you to chat with her.
November 26, 2009 at 6:23pm
Spina Bifida Association
Question: I am a 21-year old-woman with Spina Bifida and just got married. We are looking forward to having a child soon. We were wondering about the use of Ditropan during pregnancy and nursing. We are getting many different responses...
Susie
Susie
Hi, My name is Susie, and i have a 10 year old boy who has spina bifida, he doesn't have very many friends and wants to talk to other kids who have spina bifida. Any one who knows of a website for kids please let me know, we live in Georgia.
October 17, 2009 at 11:58am
Kelsey Davenport
Kelsey Davenport
hey, um i had a questionn, i was wondering if anybody could tell me when the spina bifida association scholarship will have a new application? i am a senior in high school and i went to the association website one day and saw that they offer a scholarship for students entering college. but the application for this year isnt there yet for fall 2010.
October 19, 2009 at 4:58pm
Spina Bifida Association

Spina Bifida Association Service Dogs Information

The following Web sites contain useful information for locating and procuring a service animal, and opportunities to connect with other service animal owners.

www.caninecompanions.org
www.k94life.org
www.assistance-dogs-intl.org
www.neads.org
www.pawswithacause.org
www.helpinghandsmonkeys.org

Susan
Susan
thanks for the info!!! very helpful in searching for a service animal for my son!!
September 30, 2009 at 3:48pm
Heather
Heather
would like to check into this for my daughter thanks
September 30, 2009 at 5:34pm
Spina Bifida Association

Spina Bifida Association Buy Your Tickets Today for SBA’s Volkswagen Beetle Convertible Raffle

Tickets are selling quickly for SBA’s Volkswagen® Beetle Convertible Raffle. Do not miss your chance to win this amazing car! Your odds have never been better…but you can only win if you buy your tickets. With odds of 1 in 2500, your chances have nev...er been better!

All proceeds go directly to the Spina Bifida Association supporting research, education, advocacy, and service.Visit www.spinabifidaassociation.org or call 800-621-3141, ext. 16 to buy your tickets today.

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Spina Bifida Association

Spina Bifida Association Get information on the H1N1 virus delivered to your mobile phone.

Last week, the Centers for Disease Control and Prevention (CDC) launched a three-month text messaging campaign pilot to share important, timely health information. Users can sign up to have important CDC information about H1N1 flu and other topics deliver...ed directly to their mobile phone. Subscribers will receive about three short health tips per week during the pilot. For more information about the pilot, please visit www.cdc.gov/mobile.

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www.cdc.gov
CDC Mobile. Sign up now to take part in CDC's three-month text messaging pilot project and have health tips delivered directly to your cell phone.
Spina Bifida Association

Spina Bifida Association Spina Bifida and H1N1

Read about the CDC's updated vaccination recommendations
for Swine Flu

Spina Bifida Association

Spina Bifida Association The Paralympic Sport and Accessibility team at Chicago 2016 is very excited to launch a public service announcement promoting both Paralympic sport and the Chicago bid for the 2016 Olympic and Paralympic Games!

Watch Paralympian Matt Scott and Olympian and Chicago Bull Luol Dengand show us how the Paralympics and Olymp...ics may be two games but one in spirit.

Log in on October 2 to see if Chicago will be the host city for the 2016 Olympic and Paralympic Games.
http://www.chicago2016.org/chicago-2016-videos.aspx

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www.chicago2016.org
Chicago 2016 Videos
Laurita Tellado Calderon
Laurita Tellado Calderon
Hi! I'm a 22-year old w/ spina bifida, and I'm writing a daily blog to promote awareness of SB. Please check it out! :-)

http://willyoubemyhero.wordpress.com/
September 24, 2009 at 9:50am
Spina Bifida Association

Spina Bifida Association Next year's conference is June 27-June 30 at the Hyatt Regency, Cincinnati, Ohio.

September 23, 2009 at 12:37pm
Christine
Christine
i have the same question as Sara Schneider how do I go about getting financial aid to come? i want to attend because it would be my first one and I want to see what they are like..the conference that is..
September 24, 2009 at 9:44am
Hope
Hope
How many people usually attend?
November 26, 2009 at 5:21pm
Spina Bifida Association

Spina Bifida Association Have you purchased your tickets yet for SBA’s Volkswagen® Beetle Convertible Raffle? With an estimated fuel cost of just $5.00 a day and an unmatched view of the skyline, the VW® Beetle will be the car you’ll love to drive!

Take a chance at $75 a ticket or $130 for 2 tickets.

All the proceeds go to a great cause.

Prize ...Cash Option: $28,050

Tickets are selling fast…get yours today! Call 800-621-3141, ext.16 or visit www.spinabifidaassociation.org for more information.

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Spina Bifida Association
Tickets for SBA's 2009 Volkswagen® Beetle Convertible Raffle are now on sale. Maximize your driving pleasure with a chance to win a fun and unique vehicle that's easy on the wallet and the eyes. Take a chance at $75 a ticket or $130 for 2 tickets....
Charlotte Ann Bruen
Charlotte Ann Bruen
This is great raffle and cause.If you win and you don't want the car you could win almost $30.000. dollars! I am saving up for at least one ticket and knowing that I am helping babies and adults afflicted with this most common birth defect that my late son, Christopher was born with. Love you Chris!!!
September 16, 2009 at 5:04am