Taylor's Tale: Fighting Batten Disease
Supporting the search for a cure is easy! Visit us at www.taylorstale.com to make a secure online donation. Taylor's Tale is a non-profit 501(c)(3) organization, and your gift is tax-deductible.
Information
Founded:
2007
Fans

6 of 530 fansSee All

Regan
Regan
Erika
Erika
Photos

2 of 11 albumsSee All

Toast to TaylorCreated about 3 months ago
Cookout for a CureCreated about 3 months ago
No one has added fan photos.
Video

2 of 3 videosSee All

4:12 Added about 2 months ago
2:01 Added about 5 months ago
No one has added fan videos.
Events

2 upcoming eventsSee All

Taylor's Tale: Fighting Batten Disease

 
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease
Join us at the Charlotte SouthPark Turkey Trot on Thanksgiving morning for the 8K run, 5K walk or 1-mile fun run. Feel less guilty about eating a big meal later that day and help us spread the word about Batten disease. Send an email to laura@taylorstale.com if you plan to run/walk in honor of children like Taylor (who... happens to have two 5Ks to her credit!). Include your t-shirt size in your email - we want everyone to wear a Taylor's Tale t-shirt!
For more information about the race events or to register, visit www.charlotteturkeytrot.com. Hope to see you there!
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Source: www.charlotteturkeytrot.com
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Our quarterly enewsletter, Believe, debuted today! Make sure you get the next issue in your inbox by signing up on our Web site. You can also read all of the articles from the current issue on the site.

Source: www.taylorstale.com
The mission of Taylor's Tale is to provide funding for Batten disease research and promote awareness of this neurodegenerative disorder and the devastating impact it has on the children it affects.
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Thanks to everyone who supported Taylor's Tale at our Chick-Fil-A charity night last night!

Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Join Taylor's Tale at Fat Daddy's Bar & Grill, a local favorite in the Crabtree Valley area of Raleigh. This hot spot offers everything from custom-built burgers to pool tables and a huge beer selection. Mention Taylor's Tale when you place your order, and Fat Daddy's will donate 10% of the proceeds from your purchase to our organization.

Time:5:00PM Tuesday, November 17th
Location:Fat Daddy's Bar & Grill
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease
Grab your passport or border pass to Wine Around the World for Taylor, a series of extraordinary wine tastings in exclusive settings. Each event celebrates the glorious vintages of a different country, and all wines will be offered for sale during the events!

Border Pass - $35/person
Passport (includes admission to this ...event and two additional tastings) - $95/person*

*Passports are transferable to friends, neighbors and family.

Italy: Sunday, November 15

Tasting: 5:30-7 p.m.

Featuring the wines of central Italy's Vigneto San Vito; owner/vintner Federico Orsi will be in Charlotte to lead the tasting. $35/person, 100% tax-deductible (purchase of a passport or border pass includes the tasting)

Wine Pairings Dinner: 7-9 p.m.

Restaurateur Thierry Garconnet has created a delightful, intimate evening for us - a dinner with the winemaker! You won't want to miss this magnificent multi-course dinner paired with Federico's white wines and Dedicato de Patrius succulent Italian blends. $100/person

The wine tasting will be limited to 60 guests; the dinner will be limited to 40 guests. Reservations are required no later than November 10.

To reserve your spot, email Linda Weisbruch at lweisbruch@carolina.rr.com or call 704-338-1113. Please make your check payable to Taylor's Tale and bring it to the event or mail it to Linda at 918 Ardsley Rd., Charlotte, NC 28207.

More information on the French and Australian events to follow!
Read More

Time:5:30PM Sunday, November 15th
Location:Terra Restaurant
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Just a reminder that our Chick-Fil-A charity night is coming up on Tuesday, October 27 from 5:30-8:30! Come out to the Cotswold Chick-Fil-A and help find a cure for Batten disease. Please remember to mention Taylor's Tale when you place your order so the restaurant will donate a portion of the proceeds to our organization!

October 12 at 8:31pm
Kai Sayson
Kai Sayson
God Bless you Taylor...
October 13 at 3:56pm
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Are you social-networking savvy? If so, put your skills to work for Taylor's Tale by joining Project E-wareness!

Source: www.taylorstale.com
The mission of Taylor's Tale is to provide funding for Batten disease research and promote awareness of this neurodegenerative disorder and the devastating impact it has on the children it affects.
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Come out and support Taylor's Tale at the Cotswold Chick-Fil-A on October 27 from 5:30-8:30 p.m.! Simply mention Taylor's Tale when you place your order, and Chick-Fil-A will donate 15% of the proceeds from your purchase to our organization.

Time:5:30PM Tuesday, October 27th
Location:Chick-Fil-A
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Learn more about Taylor's Tale, Batten disease and the fight for a cure. Get to know Taylor King and and find out what you can do to help support crucial research.

Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Dr. Beverly Davidson and her research team at the University of Iowa have discovered a way to cross the blood brain barrier and deliver therapeutic molecules directly into the brain. This is a historic find for Batten disease and all other lysosomal storage diseases!

Source: news-releases.uiowa.edu
IMAGE: This image shows the high density of blood vessels in the brain and the close proximity of brain cells to those vessels. A cut-away of one blood vessel shows vessel lining cells (endothelia - red). ...
Joanna
Joanna
Amazing news!!
September 22 at 8:40pm
Holly
Holly
Thanks, in part, to Taylor's Tale!
September 23 at 5:30am
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Public awareness is a key part of our effort to cure Batten disease! You can help spread the word by following our blog and sharing it with others.

Source: writethehappyending.blogspot.com
One of my favorite blogs is written by Molly Barker. Molly is the founder of Girls on the Run International, an organization that has brought much happiness to my sister, Taylor, and helped inspire those around her. ...
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease This Wednesday, August 19 is Taylor's 11th birthday. Please consider making a gift in her honor to support Batten disease research!

Source: www.taylorstale.com
The mission of Taylor's Tale is to provide funding for Batten disease research and promote awareness of this neurodegenerative disorder and the devastating impact it has on the children it affects.
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Click on the link to sign up for the new Taylor's Tale email newsletter that's launching this fall!

Source: www.taylorstale.com
The mission of Taylor's Tale is to provide funding for Batten disease research and promote awareness of this neurodegenerative disorder and the devastating impact it has on the children it affects.
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Guests at Toast to Taylor sampled five fine Spanish wines and enjoyed 1/2 price appetizers.

10 new photos
Taylor's Tale: Fighting Batten Disease

Taylor's Tale: Fighting Batten Disease Pool members and friends gathered to enjoy slow-cooked, hand-pulled BBQ and delicious sides in the name of a cure.

8 new photos