We welcome people with vestibular disorders, their families and friends, health care professionals, and anyone interested in providing support and advocacy for this issue.
Information
- Founded:
- 1983
Links
Events
1 past eventSee All
- Balance Awareness Week
Vestibular Disorders Association
Sunday, September 20 at 8:00am
Katrina Kandoll Wednesday the physical therapist started me on VRT for vestibulo-ocular reflex dysfunction and I found the VEDA website. I'd never heard of such a thing, and I'm totally amazed at the scope of my symptoms that could possibly be caused by inner ear problems...fatigue, confusion? Wow, here's hoping the VRT can help!
Kate Roberts Reisinger
Just found the site today, thank you VEDA! I have bilateral vestibular hypofunction and am constantly dizzy. I've been doing VRT for about 4 months and haven't seen much improvement. I know it will take a while, but it's frustrating. I constantly have a dizzy/moving/motion sickness feeling and it has impacted my li...fe severely. Doc just put me on nortriptyline to rule out any migraine related problems - it has made me feel worse. Thank you to everyone for posting your issues - it's nice to know I'm not alone! If anyone has any suggestions, I am VERY open!Read More
Ellen Goudsmit Article in the current issue describes me perfectly. Not much help for those of us in the UK though.
Cheryl A Anderson
Hi Everyone, I just read about this facebook opportunity through VEDA. What a wonderful way to have a support group. I was diagnosed with Menieres Disease several years ago. I find that if I take a daily dose of Zrytec yes the one that we can buy over the counter it has eliminated my head spinning when I lay down ...or roll over. I was told that it works by drying up the fluid in the middle ear. Having that fluid there causes the spins. I also find that reducing my salt intake really helps me to get around better, plus i plain feel better. Let me know if any of you try the Zrytec and how it works for youRead More
Donna Hi.. I am currently seeing Dr.Hain in Chicago.. I was advised to have physical therapy. Can anyone please recommend a good p.t. for epy mnv. & treatment of bbpv in western burbs of Chicago.???? Thanks .. if so please message me. Thank you♥
Claire Flaherty Haddad I am the support group leader of the Boston-area group. I'm inviting other support group leaders to post helpful topics on the "Discussions" tab. I just posted "Coping with the Holidays", the most recent topic at our November meeting. If anyone has more tips to cope with the holidays, please add them to the discussion. Thanks!
Linda Diaz
VEDA on facebook is awesome. Fortunately I can be on the computer right now. It is not always like that. Sometimes I can't. If I am going to have a vertigo attack I begin by getting sweaty and hot, then a headache, my ears ring loud. My vision 'changes'. It seems like things are going too fast or too slow. My palms swe...at and I get sick to my stomach. That is when I know it is time to go lay down. If I haven't eaten, I try to eat something simple and easy to digest. Low sodium and no caffeine is helping. I am also going to acupuncture for the tinnitus. Low stress is my motto and I am always doing my best to lower it everyday, when I can.Read More
Shirley Sophia Harper Glad to find VEDA on facebook. have had vestibular disorders for over 30 years
RECENT ACTIVITY
Vestibular Disorders Association (VEDA) discussed Coping with the holidays on the Vestibular Disorders Association (VEDA) discussion board.
Vestibular Disorders Association (VEDA) discussed living with vestibular disorders on the Vestibular Disorders Association (VEDA) discussion board.
Vestibular Disorders Association (VEDA) discussed WHAT IS THIS??? on the Vestibular Disorders Association (VEDA) discussion board.
Vestibular Disorders Association (VEDA) discussed But you hear so well! on the Vestibular Disorders Association (VEDA) discussion board.
Linda Diaz
Hi All, My name is DizzyDiaz. I've had vertigo, due to stapes prothesis surgery failure, for over 20 years. I have always had a dream of creating Vertigo Village. A place that people like us can live and love and be happy. I've never had the $$ to do it in real life. So I've created a Vertigo Village on Facebook. Ple...ase come visit me. (I am now talking to myself on the site, and I need company). I have begun to start the village. No flashing lites, coffee isn't sold, transmitters like the ones on Star Trek so we don't have to travel. Help me design the perfect village for us. It is all make believe. How would we design the perfect living space if we had a chance to make it fully accomodable to our needs and desires? Please join me......goto Vertigo VillageRead More
