Vestibular Disorders Association (VEDA)
We welcome people with vestibular disorders, their families and friends, health care professionals, and anyone interested in providing support and advocacy for this issue.
Information
Founded:
1983
Fans
Events

1 past eventSee All

 
Helen Channon

Helen Channon Hi havd just completed VESTIBULAR BALANCE REHABILITATION at RPA Hospital did help but how do u get rid of that cotton wool feeling?

Barb Grabner-Kerns

Barb Grabner-Kerns I know this is a long shot- but does anybody have information about possible ototoxicity of acetic acid ear drops? I have bilateral vestibular loss most likely due to tobramycin ear drops (2 years ago) and I have lost a lot of hearing in this ear, so may not have much to lose. This ear has a perf also.

Cheryl Eychner

Cheryl Eychner Any body have any advise how to get rid of the swaying I still feel after getting off a boat its been a week and its still there how long does it last anybody know Thanks

Jared Hart

Jared Hart
Been dizzy for three years now some days good some days bad....some days great but quality of sleep the food you eat and excercise all count towards ie if you play a gme of sports and you dont stress the stifnessw ill effect your balance the next day ....i know this is logical but i am spelling it oit.....I had an inne...r ear infection that cleared up and now my biggest issue is the days when its not working right normallly after flying somewhere drinking too much or eating poorly i get bad dizzys.....all i can say is that if you accept this you can deal with it....but you should always push the boundaries of what you are doing play sport go shopping yes you will feel awful but this will eventually help VRT will only get you going in the right direction....any tips always open to ideas..JHRead More

November 5 at 5:50am · Report
Teresa
Teresa
Hello Jared, I was wondering if you do/did any running? I was never a big sports person but I did run on a regular basis before I had this. I would like to think I could get back to pounding the pavement at some point.
Fri at 11:42am
Cheryl Eychner

Cheryl Eychner
I have had vertigo for about 12 years. This past year I started getting dizzy in bed laying down and turning over it sucks it takes the only place to get away for awhile and make it a nightmare. I did a stupid thing and went on a cruise to the Bahamas and have set it off can hardly walk still feel like I'm on the boat... would not advise anyone with a vestublar problem to go on a cruise hope it goes away. Sometimes I feel like a fly on the wall screaming for someone to help me but nobody seems to hear me good luck everyone dont let it get you down i know its hard but fight back thanks for hearing me CherylRead More

Teresa

Teresa
Hello everyone. My name is Teresa and I am 41 years old. Last week I was diagnosed with Vestibular Neuritis. I live in Eastern Washington and the closest support group is in Seattle, so I am very happy to find VEDA on Facebook. While I realize I could be quite a bit worse off, it is terrifying to think that I won't eve...r get any better than I am right now. The constant vertigo subsumes pretty much everything, as I am sure you all know :-)
Anyways, I just wanted to introduce myself and say hello.
Read More

November 4 at 10:35am · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Hi Teresa -- you are very welcome here.

The Seattle support group is really excellent and we wish it were nearer by you, or that a group existed where you are. In the meantime, we hope this page can be a source of support, information, and connection. Thank you for joining us!
November 5 at 8:16am
Vertigo Posicional

Vertigo Posicional hoy descubrí este lugar y me ha abierto una luz en el camino, sin embargo la información en mi idioma español es muy vaga, y quería proponer al igual que veo en otra nota, algún grupo de apoyo para los hispanoparlantes que también sufrimos de este desagradable e incapacitante mal.
Aquí les dejo mi inquietud

November 3 at 6:31am · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Hola. Perdone por favor cualquier error, nuestro español es limitado. Vea por favor mi respuesta a Rita abajo. Nosotros también procuramos expandir nuestras publicaciones del español idioma. Mantenga por favor verificar con nosotros y gracias por decirnos sus ideas.
November 5 at 8:10am
Maggie

Maggie LifeStyle Physical Therapy & Balance Center in Chicago is holding a vestibular support group in Chicago on Saturday, November 14th. Dr. Julia Rahn, a clinical psychologist, will be discussing the psychological challenges of living with vestibular disorders. If you are interested in taking part and meeting others with similar disorders, please email me at info@balancechicago.com. Hope to hear from you!

November 2 at 4:33pm · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Maggie, thanks so much for keeping us up to date and for spreading the word about your support group! We really appreciate it.
November 5 at 8:11am
Maggie
Maggie
We hope that people will join us, even those who aren't patients of ours!
November 5 at 8:13am
Rita Segal

Rita Segal Me gustaría saber si hay un grupo para latinoamericanos. Alguna sección de habla en español. Creo que sería muy bueno abrir una parte de apoyo para las personas de América-
Los organizadores de VEDA, pueden considerar esta posibilidad?

November 2 at 4:20pm · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Hola, Rita. Perdone por favor cualquier error, nuestro espa... Read Moreñol es limitado.

Un grupo para latinamaricanos es un idea excelente. Nosotros no organizamos los grupos de apoyo pero nosotros los ayudamos con publicidad y información. Seríamos felices de ligar a un grupo del español idioma en nuestro sitio Web en http://www.vestibular.org/links.php y promoverlo en nuestro boletín, On the Level. Si algien tiene interesado, contacta por favor info@vestibular.org. Y tenemos publicaciones básicas en español: http://www.vestibular.org/espafffdol.php/.
November 5 at 8:09am
Claire Flaherty Haddad

Claire Flaherty Haddad I'm a support group leader in the Boston, MA area. I'm helping to start-up a support group in the Springfield, MA area. It would serve Western MA and the Hartford, CT area. I'm trying to guage the level of interest before approaching a PT or other health professional to host group meetings. If anyone is interested, please email me at clairehaddad@comcast.net.

November 2 at 2:29pm · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Claire, this is wonderful. Best wishes to you in pulling together a support group in Springfield.
November 5 at 8:12am
Joe Bimler

Joe Bimler
Hello all. I had canal wall down mastoid surgery in Feburary. It did not go well. The Mastoid and temporal bones were all but eroded from the colestoma. Two surgeries later the nuero surgens had my brain back in place and repaired the CSF leaks. I was told there was damage to my semicircular canals. Its been sev...eral months and I still have balance issues and they are not improving. I don't really have "dizzy spells" I just lose my balace and walk around like I'm drunk. Anyone got any ideas on anything that can help?Read More

November 1 at 4:33pm · Report
Sally Watz Braatz
Sally Watz Braatz
Find a Vestibular Disorders Rehab Specialist. It really does help. Just make sure that they truly are a specialist for this type medical dx.
November 4 at 5:20pm
Yazmin Adriana Sanchez

Yazmin Adriana Sanchez Easy information about BENIGN PAROXYSMAL POSITIONAL VERTIGO in spanish

Source: www.dizziness-and-balance.com
Dennis Cregan

Dennis Cregan
I have now entered second month of high pitched ringing, loss of hearing and when not on massive doses of Meclezine or sleeping spinning and unstable. Anyone know of quality help in Syracuse, NY area. Last Wednesday morning was the worst yet, just rubbung side of face seemed to set off attack??? Voilent nausea with ina...bility to walk alone. Anyone ever find relief for tinnitis (cause I amat the end of my rope) I need just 1 positive reply as to something, anything, that worked. I asked for complete inner ear removal and my ENT said it would still be ringing. Anyone know if this is true? I kid you not. . .HELP. . .Read More

November 1 at 1:54am · Report
Natalie Angela
Natalie Angela
I´ve read that even if your inner ear has been removed, you will still have problem with balance and vertigo. But didn´t know also you will also have problems with tinitus...
November 1 at 6:08am
Rita Segal

Rita Segal alguien habla españool?

October 31 at 6:32pm · Report
Vestibular Disorders Association (VEDA)
Vestibular Disorders Association (VEDA)
Hola, Rita.

Tenemos publicaciones básicas en español: http://www.vestibular.org/espafffdol.php

Hablamos español un pequeño en email: info@vestibular.org... Read More

(Thank you, Yazmin -- your help is very appreciated.)
November 2 at 4:38am
Donna

Donna
I am new to the group but not this disorder.Have had this for about 19 months.Took a trip to Florida and have never been the same. I am currently being treated by the Chicago dizziness and balance center. I try to be positive..but I need some light at the end of this tunnel.I don't get spins but am off balance dizzy 2...4/7.Have tried therapy,exercises,topamax,verampamil.,Valtrex...etc. I am just ready for some type of surgical procedure if it exists?Have bbpv,meineares,......etcI am tired of this blanket diagnosis of Migraine associated Vertigo..I know I must be in denial.But I want my life back. Someone please tell me a story with a happy ending.:)??Read More

October 29 at 10:32am · Report
Marlene
Marlene
I had a dose of the swine flu and apparently vertigo developed and was diagnosed as a normal symptom of that, huh? news to me and I've been researching and following this flu thing since the SARS.
It has taken a few months but the vertigo has now almost completely gone. No medication, no surgery, just alot of determination to beat it, and lots of... Read More ... Read Morepatience, I cried and got depressed like I'm sure everyone else does. I stayed away from the crowds and lots of movement and noise and always make a mental note of where the handrails and the stable things are to grab hold of when I'm on a spin. I do the prescribed exercises and eat healthy home prepared foods, vitamins, just things claiming to be the miracle cure for the common cold, and get plenty of rest. I refuse to give my life up to the drug companies, in my opinion and my advise is, the only way you will get your life back is to take it back.
October 29 at 3:46pm
Teena Dillman
Teena Dillman
Donna,
Interestingly, I took a trip to FL and came back with vestibular problems as well. Perhaps we can talk and compare stories.
October 30 at 11:31am