Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
Information
Founded:
1997
 
Jen Schmeltzer

Jen Schmeltzer American Pain Foundation -
Please show you support the need to improve pain care in the U.S. and share this position statement with all of your contacts.Position Statement on Access to Pain Care www.painfoundation.orgThe
American Pain Foundation (APF) advocates for improved access to
effective pain... care as a guiding principle and integral part of its
mission. People experiencing pain have a basic human right to timely,
appropriate and effective treatment of pain.

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9 hours ago · Comment ·
    • American Pain Foundation Thank you Jen - Here's a direct link to the position statement - http://www.painfoundation.org/newsroom/position-statements/access-to-pain-care-august2010.html. Thanks for helping us get the word outl
      3 hours ago ·
    • David Becker The position paper should include enforcing the prohibition against cruel and degrading treatment in pain care. Custom-tailored interventions sounds nice-but both doctors as well as clinics are not equipped to provide such. More emphasis needs to be placed on progrressively adaptive interventions and providing a clearinghouse of information on pain for all to access which would mean providing everyone in pain with a computer and a sophisticated decision support system tjhat is tailored to their needs.
      about an hour ago ·
Karen Cianciola

Karen Cianciola I have Fibromyalgia - need I say more?

10 hours ago · Comment · · Flag
    Erica Thiel
    thielerica@gmail.com WI-Action Network Leader Background In October 2006, the American Pain Foundation launched the Power Over Pain Action Network (POPAN). Newly recruited state leaders, collaborators, faculty and supporters gathered at APF headquarters in Baltimore fo...r the birthing of a powerful force of people living with pain, caregivers and healthcare providers; uniting to speak out, raise awareness and promote positive pain policy, legislation and practice. This ever-growing network of people who care about improving pain care continues to unleash the power of advocacy and speaking out for change. see :www.painfoundation.org
    Non-Profit:129 people like this.
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      Dee Holmes

      Dee Holmes I've had chronic pain for 5 years now to varying degrees (getting steadily worse) due to a combination of back and hip problems (including joint alignment and arthritis so it won't be getting better with time). They've made me take so many NSAIDs that I developed gastritis and enough Tylenol that I get rebound headach...es (still) - but will they give me anything else? No. Not unless you want to count lidoderm patches (which do nothing) and offers of repeatedly doing radio frequency ablation on the same couple of spots - never mind the pain is in other spots too. Their reasoning? I'm "too young" for stronger medication. I'm 41 (which isn't that young) and obviously my body doesn't think I'm too young for the PAIN. So how can I be too young for pain TREATMENT?

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      17 hours ago · Comment · · Flag
      • David Becker likes this.
        • David Becker Dee-thats remarkable and im annoyed at them for not treating you better- if you want ill write to them and advocate for you
          14 hours ago ·
        • Lisa Milligan
          I had the same problem. I have had 2 herniated discs, and 4 bulging discs for years. I cant get surgery because it hasnt effected my bladder control, basically. I LIVED on both tylenol and motrin for 20 years! I finally found a "PAIN MANAGE...MENT" dr that gives me vicodin with tylenol in it. BUT, same problem, rebound headaches! I know he will not give me the next step up, Im in schedule 3 meds, and schedule 4 meds are strictly enforced for only certain conditions. The problem is, ALL the schedule 3's have added motrin or tylenol in them!! And NOW, I have edema of the eyes. I researched this, and saw 2 Drs about it. When edema is ONLY in your eyes and face, not legs, hands... it means its either your liver or kidneys failing! Im CERTAIN its from motrin and or tylenol. I am on meds for duretic help, but thats a band aid! I CANT keep taking these, my body cant take it!! Will I have to start self medicating illegally??!!?! Anyways, I suggest u try a NEW dr, specializes in pain management. If they dont help, then another... Good luck to u, I send u positive energy and light. See More
          10 hours ago ·
        • Erica Thiel Can you find a Physical Therapist that does a method called counter strain??? I have found 50% improvement in my pain thorugh tihs and I am on 27 though I have an underlying enzyme deficieny but non the less pain does not discriminate by age!
          10 hours ago ·
      FibroHaven

      FibroHaven  Try using this pain journal from the American Pain Foundation to help track your pain and communicate it more clearly with your doctor.

      Let's Talk Pain is a Coalition of organizations, including leading advocacy groups, focused on increasing awareness and improving understanding of pain management. The Let's Talk Pain Coalition is the first coalition of its kind to bring together organizations representing a diverse array of persp...
      19 hours ago
      Magic Hands Massage Therapy

      Magic Hands Massage Therapy  American Pain Foundation works to help Americans get the pain care they need. Massage therapy is the 2nd preferred choice for pain relief! Stop by Magic Hands Massage Therapy for a massage, and feel your pain melt away!

      The nations biggest consumer advocacy organization for persons in pain, The American Pain Foundation (APF), announced their standing in a statement appealing to the medical society, regulators and
      19 hours ago
      Miles Tilly

      Miles Tilly When I became disabled with conditions causing chronic pain 6 years ago, the only doctor approved by my insurance company who was taking new patients accepted me as a patient.
      However, when I explained my problem to her, she refused to prescribe for me the pain medications indicated for my level of pain despite the fact... that testing confirmed everything I told her about my condition,
      which consisted of kyphoscoliosis, an exaggerated lordosis, osteoarthritis throughout my spine, a hemangioma pressing on my spine, etc. This physician told me she was afraid of law enforcement and losing her license, and that's why she didn't prescribe pain medicine. My pain was so severe that I contemplated suicide.
      After finding a physician recommended by ER doctors who would prescribe opioids on a regular basis to control my pain, I felt as if my life had been saved (and it was).

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      19 hours ago · Comment · · Flag
        • Miles Tilly I wish I could say more about what I went through, but space restrictions prevent me from doing so. However, even if you don't suffer chronic, severe pain, please join us in changing the terrible situation in the U.S. today that prevents many people who need pain medications from getting them.
          19 hours ago · 1 personLoading... ·
        • David Becker Miles- you can sign petitions online to improve pain care- mine is at www.petitiononline.com/painra
          19 hours ago ·
      Janet Davidson

      Janet Davidson Pain is invisible to the eye of those who do not have it-Pain is real & can be felt,
      (just like love) we know it's there & feel it but it isn't tangible-it doesn't make it any less in "severity & credibility"-It is with us every day, & doesn't take time~off!
      If pain were a color, it would be red.-Illness is hard enough ...to live & deal with-but then to be doubted & looked at with disbelief-This is as difficult to cope with as the illness/condition itself that plagues the body. APF is a wonderful organization, I've been a member for several years, & learned much from them & support. Thank you! Janet

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      19 hours ago · Comment · · Flag
        • David Becker Janet- then sign petitions online to improve pain care the Invisible Project is also trying to help people in pain. My petition is at www.petitiononline.com/painra
          19 hours ago ·
        • Janet Davidson Done, thank-you. :)
          19 hours ago · 1 personLoading... ·
        • David Becker Janet- im glad- i hope for their own sakes people with pain will ask for better pain care from the government and health care industry
          16 hours ago ·
      American Pain Foundation

      American Pain Foundation September Pain Awareness Month has begun! The Virtual March on Washington and the new 10,000 Voices Campaign are now live!

      action.painfoundation.org
      Raise Awareness by Joining the Virtual March on Washington and Rallying to Improve Pain Care NOW! Participate in this dynamic online gathering to stand up for the rights of people with pain by: writing to your legislators, sharing your story and raising awareness about the challenges you or someone ...
      20 hours ago · Comment ·
        • Laura Hague Mock ‎@Kathy Burke, if you are unable to get fentenyl in sucker form, have you tried the patches? I have been using them for about 10 years...no gastrointestinal problems that occur w/ oral opioids.
          10 hours ago ·
        • Rhia Steele I am already signed up and on board! I hope all of you will join me. This is such a critically important time in the lives of those inflicted with chronic pain, including care takers, loved ones, friends and family. With the REMS coming out and making claims on certain long acting prescription pain medications in October to the FDA, we need to let our voices be heard! I have posted about the things to do in order to get a letter out to the FDA and tell your story, etc. Let me know if I need to post again.
          3 hours ago ·
      Katie Punnett McLoud

      Katie Punnett McLoud Why can't I find a doctor that will treat my pain? I see all kinds of them, but they are all too afraid to give me the meds I need because of the liability involved. One doctor told me my pain was, "for a higher purpose."

      22 hours ago · Comment · · Flag
      • David Becker likes this.
        • Patricia Ross
          Have you seen a rheumatoid Dr? If you have not ..start there by pulling them up on computer and go to the nearest one.Stick with that Dr...it takes persistence at times for them to realize hey the pain never goes away..then they start looki...ng..But keep going back to the same one even if you did not care for him or her...because they will see its not just a few days but always...This is what I did and got Drs I needed to see..If you have a teaching University nearby and they have Drs that are special in that area...of pain...Get an appointment...as I did...and yes they do find the problem..Watch the pain meds. you do find they are used over and over and then they are there and seem to help...No they numb your brain and not the pain..Right now I alternate Tylenol nd Advil every 2 hours if I need to .check with your Dr.I am also on Methro pack..that is helping..but you need to find the cause..Mine started our lupus and then fibromyaligia..I am doing great after almost passing when my husband passed..Pain was so bad too much to go into now..But I feel good....See More
          21 hours ago ·
        • Barbara Lagfarr
          I'd suggest telling him that his "care" was for a higher purpose and not paying the bill. There are decent pain management specialists out there. One thing to do is get together all your test results, x-rays, MRI's, anything, and be sure th...e doctor sees them. If he has copies of these and is questioned about prescribing pain meds, he has objective evidence of why he did so, and can protect himself. BTW, central nervous system depressants such as Vicodin do NOT, NOT get a pain patient high if taken correctly. That is a vicious myth that has to be broken.See More
          19 hours ago ·
      Real Warriors

      Real Warriors  Pain affects millions of Americans. This September, take part in Pain Awareness Month by joining the American Pain Foundation Virtual March on Washington. Whether you’re someone who lives with pain, a caregiver, a health care provider or an advocate, join the Virtual March to learn, take action, connect, or to share your story on the video wall. http://bit.ly/92E9iN

      bit.ly
      We need YOU to join us NOW! Sign up and encourage everyone you know to join. There is power in numbers — show Washington that there is widespread support to address this national health care crisis and the critical need for improved pain policy and practice.
      22 hours ago
      David Becker

      David Becker I called dr kunkel an advisory council member at NIH- she didnt want to hear my concerns on pain and hung up- once again NIH and their advisory council members serve their own interests and not the publics and no wonder the prevalence of painful conditions is on the rise.

      Yesterday at 7:36am · Comment · · Flag
        Deb Hancock Tullos

        Deb Hancock Tullos Today is the Virtual March on Washington for those of us who face a daily struggle with pain in our lives. We live with it 24/7 and the powers that be in Washington are trying to make it even harder to get the meds we need to function. We are people who were living normal lives until pain took over. Please help.

        Yesterday at 7:07am · Comment · · Flag
          • David Becker Barbara- i called an advisory committee member at NIH- Dr ann Kunkel- she didnt like what i had to say about the problems in pain care and hung up the phone. I also tried to leave a message with Dr Tabak-second in charge of NIh- but staff there refused to take a message about pain awareness month. So i agree with you its pretty frightening hoow far removed the federal government and their advisory committees are to people suffering pain.
            19 hours ago ·
          • Erica Thiel I know there used to be a DEA regulator who was much more pro-pain care but apparently she was forced out because she advocated change in how pain was looked at in these depts. Very sad and I am sure it happens way to often.
            10 hours ago ·
        Lynn Cotton

        Lynn Cotton I have RSD/CRPS ,always can use some info---or some meds!!

        Tuesday at 4:09pm · Comment · · Flag
          Christina Waldman

          Christina Waldman This is good, the Intractable Pain Patient's Handbook for Survival by Dr. Forest Tennant, MD, DrPH, http://pain-topics.org/pdf/IntractablePainSurvival.pdf

          pain-topics.org
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          Monday at 11:59am · Comment ·
            • David Becker
              Christina- people with intractable pain should be able to get out of the iron cage of poor pain care. Calloing pain intractable is a sign of the mental and moral laziness toward people in pain. For over 40 years medical journals have docume...nted inadeqaute research and treatment for every pain condition- and this unjustifieable and cruel mneglect continues today. So i say to Dr Tennant and his colleague in medicine they have failed people in pain due to medicine jaunty disdain toward people in pain. And whenever Dr Tennat or some so called expert in pain would like to discuss it with me openly in public- im ready when they are.See More
              Monday at 12:45pm ·
            • David Becker Christina- i meant that doctors are lazy for calling pain intractable- not you.
              Monday at 1:07pm ·