Pediatric Brain Tumor Foundation
Supporting the search for the cause of and cure for childhood brain tumors
Information
Founded:
1991
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Wall PhotosCreated about 5 months ago
Events

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Pediatric Brain Tumor Foundation

 
Soupy

Soupy MY DAUGHTER SMYLA MYLA HAS ATRT RHABDOID BRAIN TUMOR SHES BEEN THROUGH 6 MONTHS OF INTENSIVE CHEMOTHERAPY BUT IT HAS SPREAD SHE IS NOW ON A EXPERIMENTAL PROTCOL OF 8 DRUGS 5 THROUGH HER CENTRAL LINE AND 3 THROUGH LUMBAR PUNCTURE AND HER VP SHUNT. IVE A SITE SEt UP OF HER JOURNEY www.mylacampbell.com

Fri at 4:39pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Myla is a beautiful girl who undoubtedly has touched many lives. She is an inspiration to those who work so hard to find a cure for this disease. Please give her a hug for all of us. And Soupy, please take good care of yourself.
Pat Korpik(pkorpik@pbtfus.org)
Fri at 5:23pm
Mary Welk

Mary Welk My granddaughter survived a brain tumor at 18 months of age thanks to the latest chemotheraphy available. Keep up the good work, PBTF! I support you financially and hope others will too.

Thu at 11:14am · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Mary, I believe each child teaches the doctors something new. Your granddaughter's experience will benefit so many others throughout her life. Thank you for all you do. Pat Korpik(pkorpik@pbtfus.org)
Thu at 11:44am
Chuck Taylor

Chuck Taylor I've started a grass roots fund raising effort for the PBTF. 318 was designed to make a difference in the lives of children with brain tumors and their families. It’s goal: Raise on average $318 daily over 318 days – total $101,124 – for the Pediatric Brain Tumor Foundation. Check it out at: http://web.me.com/orducrider/Site/318/318.html or join the FB group 318.

November 18 at 7:03pm · Report
Wendy

Wendy Chase Community Giving is holding voting now through December 11 for favorite charities. The top ones get substantial donations from Chase. Here's a link to support the PBTFUS. You can post the link to your wall posts and spread the word!!! http://apps.facebook.com/chasecommunitygiving/charities/1185871

November 17 at 7:18pm · Report
Michelle

Michelle
My name is Michelle. I'm 23 years old and was diagnosed with an astrcytoma when i was 7 years old. I had surgery twice because it was not all removed the first time then that summer had radiation because it ended up coming back. I had yearly scans from then on and when i was a senior in high school it ended up coming b...ack. I went through chemo and that did not work so i ended up having surgery at Johns Hopkins. I have been tumor free since. I still go back for yearly scans. I have graduated from college and am now a registered nurse!Read More

November 17 at 7:43am · Report
Brian Tinkler
Brian Tinkler
Michelle,
Glad to here you're doing well.
We'll keep riding our motorcycles for you.
Take care :-)
TINK... Read More
photosbytink.com
November 17 at 1:38pm
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
What an inspiration you are Michelle. Your patients will all benefit from your experience and strength. Pat Korpik(pkorpik@pbtfus.org)
November 17 at 6:24pm
Uno De Los Reyes
Uno De Los Reyes
Wow, you had surgery ad Johns Hopkins? I did too! Where did you study college?
Thu at 6:11am
Derrick Leonard

Derrick Leonard
Our son Darren is 12weeks old and was just diagnosed with a low grade Glioma brain tumor. Its the size of a golf ball so its too large to remove and hes too young for radiation. He started chemo last week and has one eye thats now lazy (thats how we got suspicous). We are staying at AI DuPont and are amazed at the grea...t treatment we have recieved for our baby boy. Please keep us in your prayers
Derrick, Lauren, and Baby Darren
Read More

November 14 at 12:46pm · Report
Derrick Leonard
Derrick Leonard
Feel free to visit us
www.caringbridge.org/visit/darrenleonard
November 14 at 12:47pm
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Sounds like Darren is in good hands. Love the picture. Please keep us informed. Pat Korpik(pkorpik@pbtfus.org)
November 14 at 7:40pm
Makaya
Makaya
We thinking of you
November 14 at 9:59pm
Jason Coley

Jason Coley Praying for each and every single child, parent, and each support member, all care takers, doctors, and researchers that one day pediatric brain tumors will no longer be a reality for many little "angels".

November 12 at 6:44am · Report
Lisa Crognale

Lisa Crognale I have a nine year old son who was diagnosed with Medulloblastoma this past March.
In the middle of chemo now. it is hard to see him in so much discomfort. He has Autism as well, and cannot verbalize what he is feeling. Wishing chemo was closer to being finished for him.

November 6 at 10:53am · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Lisa, you are undoubtedly the best advocate for your son, so it is important that you get the support you need. Please let us know how we can be of help to you. Pat Korpik (pkorpik@pbtfus.org)
November 8 at 8:49am
Makaya
Makaya
Know how you feel
November 14 at 10:00pm
Patricia Rollins White
Patricia Rollins White
Lisa my son was 3 when he was diagosed with Medulloblastoma now he is six I know how you feel how is your son doing
November 18 at 6:13pm
Andoni Schultz

Andoni Schultz
I was diagnosed with a brain tumor when I was three years old. I have had multiple tumors, cycts, and shunt moufunctions in the last 15 years. In the past few years I have become very involved in my towns Relay For Life and have become one of the top fundraisers. I feel that i have been through a lot in my life and ...I hope that with the help of the Pediatric Brain Tumor Foundation, one day there will be a cure for brain cancer.Read More

November 3 at 5:47pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
You have been through much more than your share, Andoni. If there is a Ride For Kids Event near you, you may enjoy that as well. It is so good of you to want to help others. Pat Korpik(pkorpik@pbtfus.org
November 4 at 5:31am
Tammy Palmer

Tammy Palmer How do I become a fan? I also would like to add a link to my wall.

November 1 at 9:54am · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
You already are a fan, Tammy! Thanks so much for your interest. Pat Korpik(pkorpik@pbtfus.org)
November 1 at 4:39pm
John Xenos

John Xenos R.I.P Mike. Thanks for all your hard work.

November 1 at 9:22am · Report
Tammy Gierke Soderling

Tammy Gierke Soderling My son was diagnosed with a Astrocytoma that involves his optic cyasm and is located just above the hypothalamus making it inoperable. We were told that because of his short term memory loss he would never be able to live independently. He is now an A-B student at UW Whitewater WI and will hopefully be graduating in May 2011 as a Special Education Major. We are blessed.

October 29 at 8:35pm · Report
Tammy Gierke Soderling
Tammy Gierke Soderling
He was diagnosed at the age of 16 and is now 24!
October 29 at 8:36pm
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Tammy, your son's interest in teaching those who have learning difficulties is truly inspirational. Thank you for the encouraging words. Pat Korpik(pkorpik@pbtfus.org
October 30 at 6:10am
Sandra Kleiser Black

Sandra Kleiser Black My infant daughter was diagnosed with an immature teratoma July 2009. She's 5 months old now. Her oncologist tells us there are only 7 other cases like hers. Are any of you out there?? Can we chat?? www.caringbrige.org/visit/naomicaroline

October 29 at 6:45pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
I hope you are able to make the connection you are looking for Sandra. If not, please know there are other parents who have shared your journey in many ways. Pat Korpik(pkorpik@pbtfus.org)
October 30 at 12:57pm
Sarah Fountain

Sarah Fountain
I'm so glad I've found this group. My son, Daniel, was diagnosed on Tuesday with pilocytic astrocytoma. He's 6 years old. I'm scared to death and trying to take things one step at a time but its so hard!!!! Reading all the stories below gives me great hope that he's gonna come out of this just fine.
Thank you Pat for ...our very comforting talk today, you helped me think a little more clearly and I feel much more prepared for tomorrows appointment with the surgeon.Read More

October 29 at 3:08pm · Report
Andoni Schultz
Andoni Schultz
Your son is in my prayers. I was diagnosed when I was 3 and I am now 19. I hope your son will fight on and win the battle.
November 3 at 5:52pm
Massimo
Massimo
My daughter was diagnosed on a Tuesday with pilocytic astrocytoma and she went through surgery two days later. She was 3. It was hard, but, even if she had to go through surgery again due to a residual from the first surgery, everything turned out fine. She is 9 now. Daniel and your family is in our prayers.
November 3 at 6:34pm
Brian Traynor

Brian Traynor I wanted to let everyone know that there is an event being held by a professional women's group called "simplyWOW" in Indianapolis this weekend. They are donating a very large portion of their proceeds to The Pediatric Brain Tumor Foundation http://simplywowexpos.com/?page_id=31

October 27 at 8:46am · Report