
Soupy MY DAUGHTER SMYLA MYLA HAS ATRT RHABDOID BRAIN TUMOR SHES BEEN THROUGH 6 MONTHS OF INTENSIVE CHEMOTHERAPY BUT IT HAS SPREAD SHE IS NOW ON A EXPERIMENTAL PROTCOL OF 8 DRUGS 5 THROUGH HER CENTRAL LINE AND 3 THROUGH LUMBAR PUNCTURE AND HER VP SHUNT. IVE A SITE SEt UP OF HER JOURNEY www.mylacampbell.com

Mary Welk My granddaughter survived a brain tumor at 18 months of age thanks to the latest chemotheraphy available. Keep up the good work, PBTF! I support you financially and hope others will too.

Chuck Taylor
I've started a grass roots fund raising effort for the PBTF. 318 was designed to make a difference in the lives of children with brain tumors and their families. It’s goal: Raise on average $318 daily over 318 days – total $101,124 – for the Pediatric Brain Tumor Foundation. Check it out at: http://web.me.com/orducrider/Site/318/31 8.html or join the FB group 318.

Wendy
Chase Community Giving is holding voting now through December 11 for favorite charities. The top ones get substantial donations from Chase. Here's a link to support the PBTFUS. You can post the link to your wall posts and spread the word!!! http://apps.facebook.com/chasecommunityg iving/charities/1185871

Michelle
My name is Michelle. I'm 23 years old and was diagnosed with an astrcytoma when i was 7 years old. I had surgery twice because it was not all removed the first time then that summer had radiation because it ended up coming back. I had yearly scans from then on and when i was a senior in high school it ended up coming b...ack. I went through chemo and that did not work so i ended up having surgery at Johns Hopkins. I have been tumor free since. I still go back for yearly scans. I have graduated from college and am now a registered nurse!Read More

Derrick Leonard
Our son Darren is 12weeks old and was just diagnosed with a low grade Glioma brain tumor. Its the size of a golf ball so its too large to remove and hes too young for radiation. He started chemo last week and has one eye thats now lazy (thats how we got suspicous). We are staying at AI DuPont and are amazed at the grea...t treatment we have recieved for our baby boy. Please keep us in your prayers
Derrick, Lauren, and Baby DarrenRead More
Derrick, Lauren, and Baby DarrenRead More

Jason Coley Praying for each and every single child, parent, and each support member, all care takers, doctors, and researchers that one day pediatric brain tumors will no longer be a reality for many little "angels".

Lisa Crognale
I have a nine year old son who was diagnosed with Medulloblastoma this past March.
In the middle of chemo now. it is hard to see him in so much discomfort. He has Autism as well, and cannot verbalize what he is feeling. Wishing chemo was closer to being finished for him.

Andoni Schultz
I was diagnosed with a brain tumor when I was three years old. I have had multiple tumors, cycts, and shunt moufunctions in the last 15 years. In the past few years I have become very involved in my towns Relay For Life and have become one of the top fundraisers. I feel that i have been through a lot in my life and ...I hope that with the help of the Pediatric Brain Tumor Foundation, one day there will be a cure for brain cancer.Read More

Tammy Palmer How do I become a fan? I also would like to add a link to my wall.

John Xenos R.I.P Mike. Thanks for all your hard work.

Tammy Gierke Soderling My son was diagnosed with a Astrocytoma that involves his optic cyasm and is located just above the hypothalamus making it inoperable. We were told that because of his short term memory loss he would never be able to live independently. He is now an A-B student at UW Whitewater WI and will hopefully be graduating in May 2011 as a Special Education Major. We are blessed.

Sandra Kleiser Black My infant daughter was diagnosed with an immature teratoma July 2009. She's 5 months old now. Her oncologist tells us there are only 7 other cases like hers. Are any of you out there?? Can we chat?? www.caringbrige.org/visit/naomicaroline

Sarah Fountain
I'm so glad I've found this group. My son, Daniel, was diagnosed on Tuesday with pilocytic astrocytoma. He's 6 years old. I'm scared to death and trying to take things one step at a time but its so hard!!!! Reading all the stories below gives me great hope that he's gonna come out of this just fine.
Thank you Pat for ...our very comforting talk today, you helped me think a little more clearly and I feel much more prepared for tomorrows appointment with the surgeon.Read More
Thank you Pat for ...our very comforting talk today, you helped me think a little more clearly and I feel much more prepared for tomorrows appointment with the surgeon.Read More









