Pediatric Brain Tumor Foundation
Supporting the search for the cause of and cure for childhood brain tumors
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Founded:
1991
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Wall PhotosCreated about 5 months ago
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Pediatric Brain Tumor Foundation

 
Rebecca Faulkner

Rebecca Faulkner my son kalell has a rare brain tumor called Atypical teratoid rhabdoid tumourhe is only two years of age and has had 11 week course of chemo along side 25 rounds of radiotherpry he is due to have a scan soon

Yesterday at 1:22pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Rebecca, Kalell is in a battle he does not deserve at 2 years of age. I hope you are receiving all the support you need, and wherever you are in the world, you are not alone. Please let us know what the scan shows. Pat Korpik (pkorpik@pbtfus.org)
Yesterday at 4:28pm
Jean Findlay Bowden

Jean Findlay Bowden My nephew was Bobby Sherman. Bobby was diagnosed with trilateral retinoblastoma at the age of 10 months. He was given about a year to live but Duke got him into remission but he had a recurrence at the age of 14, remission again, and then recurrence at the age of 19 which unfortunately, he did not survive. However, ...Bobby paved the way for treatment of this horrible cancer which takes children usually before they turn 5. Thank God for Duke!

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Fri at 4:37pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Jean, Your nephew made an enormous contribution to others, I suspect in many ways, throughout his life. Pat Korpik (pkorpik@pbtfus.org)
Yesterday at 5:06am
Ellen McFarland

Ellen McFarland Thank you Bob for doing this. This is Hannah McFarland's mom. She is doing great! Sorry we missed the event this year! Thanks to all who donated. You will never know how important things like this are to those of us who have children with this dreaded disease!

November 25 at 5:23pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
We missed you and Hannah. It was a great event and we know you were there in spirit. Pat Korpik (pkorpik@pbtfus.org)
Fri at 5:52am
Beth Wynne

Beth Wynne Each Thanksgiving I try to give back in some way to help others. Thank God for my health. I am so blessed. Please find a cure!!!

November 25 at 4:24pm · Report
Jaime Lyles

Jaime Lyles I just donated a little something...in honor of my nephew Zack who had a brain tumor and I am THANKFUL he is well and still here with our family.

November 25 at 3:52pm · Report
Jan Gregory Moore

Jan Gregory Moore Bob's Buddies!!!

November 25 at 1:30pm · Report
Bob Dumas

Bob Dumas Lets Finish Strong Make A Donation Or Get The Word Out Do Whatever You Can To Help!!!! Call 866-975-CURE!!!

November 25 at 12:33pm · Report
Diane
Diane
I have been listening to you all day from a brain tumor research lab at Duke!!
November 25 at 1:06pm
Maria

Maria The research done at Duke for Pediatric Brain Tumors, is NOT just for Brain Tumors anymore. The pin-point radiation that is used to shrink tumors in children has been cross applied to other cancers. My mother's basal tongue tumor would have been inoperable. Conventional treatments would have left her scared or with ...facial deformaties. Because of the HUGE leaps in treatment discovered by Duke and shared with Moffitt Cancer Center in Tampa, my mother can now call herself Cancer Free! And she is still the beautiful person on the outside that she is on the inside. PLEASE DONATE!!!! Not just for the kids, but for all the additional ways the research done at DUKE is applied to the treatment of all cancers. Thank you!!!!!

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November 25 at 10:57am · Report
Bob Dumas

Bob Dumas Call 866-975-CURE to give to bob's buddies for kids with brain tumors. Only til 6pm tonight so call now! www.bobandtheshowgram.com

November 25 at 7:39am · Report
Amanda Bowen

Amanda Bowen Does anyone know if there is a brain tumor foundation in Tennessee I have a friend with a 3 year old little girl who was diagnosed with a brain tumor and she has been through chemo they have one more they can try they cant operate because its in the middle of her brain and the tumor is too big for radiation..she lost a... son 5 years ago he was 2....I am trying to do all I can do to help her try and find a cure I dont think she could stand to lose another child.THANK YOU ALL Amanda

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November 24 at 7:11pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Amanda, You are a caring friend. The Pediatric Brain Tumor Foundation, and other national brain tumor organizations are available to anyone in any state looking for information and support. You can direct your friend to our website, www.pbtfus.org or to call our office at 800-253-6530 and ask for Family Support. I will be happy to talk with her... See More, and we may have information that will be helpful. Hopefully she will also be connected to support at the medical center where her daughter is being treated. Pat Korpik (pkorpik@pbtfus.org)
November 25 at 1:54am
Amanda Bowen
Amanda Bowen
THANK YOU!!!!
November 25 at 1:27pm
Shannon Anselm Pate
Shannon Anselm Pate
Has she tried st. Judes? I'm in an email support group for kids with the type of brain tumor that my son has and a lot of the kids have had great success there.
7 hours ago
Soupy

Soupy MY DAUGHTER SMYLA MYLA HAS ATRT RHABDOID BRAIN TUMOR SHES BEEN THROUGH 6 MONTHS OF INTENSIVE CHEMOTHERAPY BUT IT HAS SPREAD SHE IS NOW ON A EXPERIMENTAL PROTCOL OF 8 DRUGS 5 THROUGH HER CENTRAL LINE AND 3 THROUGH LUMBAR PUNCTURE AND HER VP SHUNT. IVE A SITE SEt UP OF HER JOURNEY www.mylacampbell.com

November 20 at 4:39pm · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Myla is a beautiful girl who undoubtedly has touched many lives. She is an inspiration to those who work so hard to find a cure for this disease. Please give her a hug for all of us. And Soupy, please take good care of yourself.
Pat Korpik(pkorpik@pbtfus.org)
November 20 at 5:23pm
Mary Welk

Mary Welk My granddaughter survived a brain tumor at 18 months of age thanks to the latest chemotheraphy available. Keep up the good work, PBTF! I support you financially and hope others will too.

November 19 at 11:14am · Report
Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation
Mary, I believe each child teaches the doctors something new. Your granddaughter's experience will benefit so many others throughout her life. Thank you for all you do. Pat Korpik(pkorpik@pbtfus.org)
November 19 at 11:44am
Chuck Taylor

Chuck Taylor I've started a grass roots fund raising effort for the PBTF. 318 was designed to make a difference in the lives of children with brain tumors and their families. It’s goal: Raise on average $318 daily over 318 days – total $101,124 – for the Pediatric Brain Tumor Foundation. Check it out at: http://web.me.com/orducr...ider/Site/318/318.html or join the FB group 318.

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November 18 at 7:03pm · Report
Wendy

Wendy Chase Community Giving is holding voting now through December 11 for favorite charities. The top ones get substantial donations from Chase. Here's a link to support the PBTFUS. You can post the link to your wall posts and spread the word!!! http://apps.facebook.com/chasecommunitygiving/charities/1185871

November 17 at 7:18pm · Report
Michelle

Michelle My name is Michelle. I'm 23 years old and was diagnosed with an astrcytoma when i was 7 years old. I had surgery twice because it was not all removed the first time then that summer had radiation because it ended up coming back. I had yearly scans from then on and when i was a senior in high school it ended up coming b...ack. I went through chemo and that did not work so i ended up having surgery at Johns Hopkins. I have been tumor free since. I still go back for yearly scans. I have graduated from college and am now a registered nurse!

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November 17 at 7:43am · Report
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Uno De Los Reyes
Uno De Los Reyes
Wow, you had surgery ad Johns Hopkins? I did too! Where did you study college?
November 19 at 6:11am
Kristie Russitano
Kristie Russitano
thank you for sharing and being an inspiration
Fri at 7:15pm