Chicago EDS Group
Topic: Chicago EDS Group
Displaying all 9 posts.
Post #1
Zachary wroteon October 17, 2008 at 10:55am
Hello everyone, I'm looking to get a Chicagoland group going, or find one to join if there is one. I have a few contacts already. Anyone who would be interested please contact me.
Zak
Zak
Post #2
Adriana wroteon June 4, 2009 at 7:54am
your from Chicago!! Me too! I've been looking for a fello EDSer from Chicago..I've really been struggling and I would just love someone who would understand! We should start a special group for people in Chicago..maybe go out every few months for support??
Post #3
Sarah wroteon July 10, 2009 at 6:41pm
Just diagnosed today.. let me know!
Post #4
Adriana wroteon July 13, 2009 at 9:12am
Hi Sarah I was just diagnosed a couple weeks ago..we should all have a get together with the others in chicago!
Post #5
Sarah wroteon July 13, 2009 at 12:07pm
Where did you go to get diagnosed...? It took a trip to Mayo Clinic to finally figure this mystery out!
Post #6
Adriana wroteon August 17, 2009 at 7:27am
I went to this hospital Lutheran General in Park Ridge..the geneticist was great!
Post #7
Ehlers wroteon August 24, 2009 at 8:58pm
I googled EDNF (the US EDS group) and Chicago and found the chapter chair? lead?
http://www.linkedin.com/pu
but I think if anyone wants to contact it should be done through the EDNF website
http://www.ednf.org
I also found this MD
http://www.ednf.org/index.
http://www.linkedin.com/pu
but I think if anyone wants to contact it should be done through the EDNF website
http://www.ednf.org
I also found this MD
http://www.ednf.org/index.
Post #8
Jeanne wroteon October 4, 2009 at 4:19pm
Yay! I can post now...has there been any groups getting together yet in the Chicago area? I am totally ready to meet other EDSers face-to-face to discuss what has worked and not worked for all of us. I'd also like to think that it could be beneficial mentally...I haven't met with a single person (clinical or non-clinical) that understands what I'm going through and I'm turning into an emotional wreck. I promise to be normal when we meet, though lol!
I'd like to get all of our head together with a list of doctors in the area that were good to work with and which ones weren't...especially when it pertains to pain control and surgeries. I think it's important for other people in the area who may be going through the same thing.
Anyone? Buehler?
I'd like to get all of our head together with a list of doctors in the area that were good to work with and which ones weren't...especially when it pertains to pain control and surgeries. I think it's important for other people in the area who may be going through the same thing.
Anyone? Buehler?
Post #9
Rebecca wroteon October 4, 2009 at 8:02pm
I would like to meet some people with EDS. My daughter (15) is really having a hard time functioning right now and I would like to talk to others about how to help her. I am in the NW suburbs.