Status updates
Topic: Status updates

Post #1
David wroteon May 30, 2009 at 9:56pm
Current status will go here, please don't reply to this thread.

Post #2
David wroteon May 30, 2009 at 10:05pm
A paypal account for donations to cover unexpected and expected fees and costs is being opened and can be found at www.timmyhatch.com soon!

Post #3
David wroteon May 31, 2009 at 9:54am
reporting for dawn:
I called Nurse Maggie, who he had all night. He said he had a good night. He's been on the cooling blanket for the fever that comes and goes. Sedation is less and the Manitol dose is back up. (the Manitol helps swelling in the brain) Those who have sat with him have things we watch and that's one of them. When he's off the sedative, we seems to assist the ventilator more and have more movement in his body. All those things don't impress the medical staff much, but we get excited. Yesterday his ICP was the lowest it's been, without medication and he didn't need as much sedation. By the afternoon, that changed because he moved around more than he ever has and since it affects the ventilator, they need to calm him down with sedation. A few days ago, they didn't think that stimulation affected his numbers on the monitor, but Maggie is thinking that now it is. I agree with her and I think we might try a quieter day with less touching and talking if needed.
I called Nurse Maggie, who he had all night. He said he had a good night. He's been on the cooling blanket for the fever that comes and goes. Sedation is less and the Manitol dose is back up. (the Manitol helps swelling in the brain) Those who have sat with him have things we watch and that's one of them. When he's off the sedative, we seems to assist the ventilator more and have more movement in his body. All those things don't impress the medical staff much, but we get excited. Yesterday his ICP was the lowest it's been, without medication and he didn't need as much sedation. By the afternoon, that changed because he moved around more than he ever has and since it affects the ventilator, they need to calm him down with sedation. A few days ago, they didn't think that stimulation affected his numbers on the monitor, but Maggie is thinking that now it is. I agree with her and I think we might try a quieter day with less touching and talking if needed.

Post #4
Dawn wroteon May 31, 2009 at 10:27pm
Timmy moved his right arm today, at the elbow in an upward sweep when his doctor was doing a neuro exam. The nurse said it was posturing (which they don't get excited about) but the doctor told her no. He said he thought he was doing it purposefully. I'm pretty sure a few days ago that they said he wouldn't be able to move his right side. When we left him tonight, his numbers were good and he seemed to be resting peacefully. They did feel some crepitus on his right upper chest, but they are going to just keep an eye on that for now.
His family feels he's getting stronger and we love him so much. Keep sending prayers his way. We really appreciate it.
His family feels he's getting stronger and we love him so much. Keep sending prayers his way. We really appreciate it.

Post #5
Dawn wroteon June 1, 2009 at 7:03am
I just woke up and called the hospital. His nurse from last night said everything is pretty much the same as when we left. His heart rate has come down a little and he still got the Mannitol every 2 hrs. Those of us that spend our day with him know what all of this means, as we constantly "watch his numbers" and keep track of his meds and vitals.
Keep sending the love.
Keep sending the love.

Post #6
1 reply
Caitlin wroteon June 1, 2009 at 7:19pm
We had a family meeting and the Docter answered all the questions that the family has. Timmy is still in a level 4 coma and nothing has gotten better or worse. The Docters have told us to consider a Trachiotomy and a gastrostomy within the next few days. We will also be getting a second oppinion sooner than later. They said that he is stable and they will be taking his brain monitor out soon. Please continue praying for Timmy, they still dont expect him to wake up, but we still know he will.
Post #7 by Mary was marked as irrelevant.Show Post

Post #7
Mary replied to Caitlin's poston June 1, 2009 at 9:01pm
Hi, Sweetie!
I didn't see you today, but I saw your mom and Sierra. Thanks for the update, and I will see you guys soon.
Marylamb
I didn't see you today, but I saw your mom and Sierra. Thanks for the update, and I will see you guys soon.
Marylamb

Post #8
Dawn wroteon June 2, 2009 at 7:07am
I just talked to his nurse from last night. No changes. Vitals are good.
Sorry I didn't feel like talking on the phone much last night, but we met with the doctor for so long, my mind was tired. Caitlin summed up the meeting well and I'll add a few more things people have asked about. And for all those reading, don't be afraid to ask questions.
The trach sounds like a good idea at this time. It will get those tubes out of his throat and will be easier to try and wean him off the ventilator.
The gastrostomy will be a better way of feeding him. Both procedures could easily be done at the bedside, but since they will be doing 2, he will go to the OR.
Keep thanking God and sending prayers!
Sorry I didn't feel like talking on the phone much last night, but we met with the doctor for so long, my mind was tired. Caitlin summed up the meeting well and I'll add a few more things people have asked about. And for all those reading, don't be afraid to ask questions.
The trach sounds like a good idea at this time. It will get those tubes out of his throat and will be easier to try and wean him off the ventilator.
The gastrostomy will be a better way of feeding him. Both procedures could easily be done at the bedside, but since they will be doing 2, he will go to the OR.
Keep thanking God and sending prayers!

Post #9
Caitlin wroteon June 2, 2009 at 5:37pm
Timmy got his staples out today, Yay!!!! Other than that no new news.

Post #10
Dawn wroteon June 2, 2009 at 8:26pm
When we asked about a second opinion, he offered one of his collegues that he works with. We were thinking more along the lines of someone outside of Dominican. But someone outside of Dominican wouldn't have priveleges here, so he said that wasn't possible. Then we moved onto talking about Timmy being a Kaiser member and he said that was one way of getting another opinion. A Kaiser doctor wouldn't be able to see him here, but Dr Harper would consult with Kaiser and I guess the second opinion wouldn't happen until he was moved to another facility.
As far as the creptitus goes, it's better. The were watching the areas to see if there were any changes and the chest xrays show nothing has gotten worse.
As far as the creptitus goes, it's better. The were watching the areas to see if there were any changes and the chest xrays show nothing has gotten worse.

Post #11
Dawn wroteon June 2, 2009 at 8:32pm
I forgot to mention something important. Timmy gets to listen to Sports Center 24/7.

Post #12
Dawn wroteon June 3, 2009 at 10:14am
Sorry for the late update today.
Nothing big to report. Tim is still running a small fever. It's hard to know if it's neurogenic or because of his lung infection. It ususally goes down with Tylenol and the fan, so it's not neurogenic. But it's just a small one and fairly easily controlled. His pressures in his brain have been good today and yesterday. They took him off the Mannitol (medication that helps swelling) yesterday and the pressures remain the same. Most likely he'll have the bolt removed from his head sometime today. The "bolt" is what they inserted in the top of his head to measure the pressure in his brain.
Grandpa Charlie is coming this weekend. He can tell Timmy to "move it, move it" in person now.
Nothing big to report. Tim is still running a small fever. It's hard to know if it's neurogenic or because of his lung infection. It ususally goes down with Tylenol and the fan, so it's not neurogenic. But it's just a small one and fairly easily controlled. His pressures in his brain have been good today and yesterday. They took him off the Mannitol (medication that helps swelling) yesterday and the pressures remain the same. Most likely he'll have the bolt removed from his head sometime today. The "bolt" is what they inserted in the top of his head to measure the pressure in his brain.
Grandpa Charlie is coming this weekend. He can tell Timmy to "move it, move it" in person now.

Post #13
Jessica wroteon June 3, 2009 at 2:17pm
There's not much of a change.
Timmy had the bolt taken out today and has been off of the Mannitol for the past 2 days. We had a Priest come in and anoit him, and he also was Baptised. He still has a slight fever, but they are still working on that, it tends to fluctuate throughout the day. The doctor said that he is stable now, so we are still praying he will wake up soon.
Timmy had the bolt taken out today and has been off of the Mannitol for the past 2 days. We had a Priest come in and anoit him, and he also was Baptised. He still has a slight fever, but they are still working on that, it tends to fluctuate throughout the day. The doctor said that he is stable now, so we are still praying he will wake up soon.

Post #14
Jessica wroteon June 3, 2009 at 4:31pm
He's also getting Physical Therapy now too. I forgot to mention that earlier.

Post #15
Dawn wroteon June 4, 2009 at 7:05am
Judy, I missed the PT. Somebody that talked to the therapist might be able to explain better.
Update for this morning:
Fever is down. Nothing else new.
Update for this morning:
Fever is down. Nothing else new.

Post #16
Dawn wroteon June 5, 2009 at 8:38am
I talked to Nurse Heather this morning, she took care of Timmy all night. She said the night was uneventful, but she did get a chance to shave Timmy's head. No more Mohawk.

Post #17
Crystal wroteon June 5, 2009 at 4:06pm
Just wanted everyone to know that they will be moving Timmy tonight at 5:30 to a Kaiser Facility. Contact the family if you need more information.

Post #18
Jessica wroteon June 5, 2009 at 5:10pm
He's actually going to be moved tomorrow now.

Post #19
Alexis wroteon June 6, 2009 at 1:44pm
Today Timmy was offically moved from Domincan Hospital to a Kiaser facility. For more information, call any of the family, and they can further update you.
We are all hoping the change of facilty might bring about a positive change for Timmy!
We are all hoping the change of facilty might bring about a positive change for Timmy!

Post #20
Dawn wroteon June 6, 2009 at 2:02pm
Timmy has arrived at Kaiser.
Crystal, Jessie and I followed the ICU rig here. We are in the waiting room waiting for him to get settled. We don't know anything else to pass on, but we'll post an update if one becomes available.
Keep up the prayers!
Crystal, Jessie and I followed the ICU rig here. We are in the waiting room waiting for him to get settled. We don't know anything else to pass on, but we'll post an update if one becomes available.
Keep up the prayers!

Post #21
Jessica wroteon June 6, 2009 at 7:29pm
We saw Timmy. The doctor came in with is "team" and they lowered the ventilator..turns out that Timmy can breath all on his own, and now he is :) He is still on the ventilator, but he does override it all the time now!
Nothing else new really. This pleace is HUGE compared to Dominican.
Keep praying for him, he will make it through this!
Nothing else new really. This pleace is HUGE compared to Dominican.
Keep praying for him, he will make it through this!
Post #22 by Jeanne was marked as irrelevant.Show Post

Post #22
Jeanne wroteon June 7, 2009 at 12:02am
He's in great hands, now. Between his strength, his friends' and families', and all of the love that's flowing, he is sure to do well...
WE LOVE YOU TIMMY !!!
HEAL !!!
WE LOVE YOU TIMMY !!!
HEAL !!!
Post #23 by Ginger was marked as irrelevant.Show Post

Post #23
Ginger wroteon June 7, 2009 at 8:28am
Best wishes love, thoughts and prayers!!!!

Post #24
Dawn wroteon June 8, 2009 at 10:23am
Please never stop holding Timmy in your thoughts and prayers.
Yesterday we met with the neuruologist. He didn't have a lot of positive things to say regarding his movements. He said it didn't look like any changes on the CT scan they did here. He did say miracles happen.
Yesterday he had and MRI and they are currently doing a EEG. When we get those results, we will pass them on to everyone. We are waiting to go back and see him. I haven't been in with him since yesterday and I miss being beside him.
Yesterday we met with the neuruologist. He didn't have a lot of positive things to say regarding his movements. He said it didn't look like any changes on the CT scan they did here. He did say miracles happen.
Yesterday he had and MRI and they are currently doing a EEG. When we get those results, we will pass them on to everyone. We are waiting to go back and see him. I haven't been in with him since yesterday and I miss being beside him.
Post #25 by Judy was marked as irrelevant.Show Post

Post #25
Judy wroteon June 8, 2009 at 5:10pm
Dawn is the ct scan how they set the coma level? what shows his brain activity? yes miracles do happen- hang in there.
Post #26 by Tamara was marked as irrelevant.Show Post

Post #26
Tamara wroteon June 8, 2009 at 6:09pm
hey sis paul also wanted me to ask if you found out anything out on his brain activity is there anything thats monitering that

Post #27
1 reply
Dawn wroteon June 8, 2009 at 8:13pm
Judy, the CT scan doesn't show the coma level. There is a coma scale that they used at Dominican, but the docs at Kaiser say it doesn't count in Tim's situation. It's like a grading scale that you get numbers for different things. If Isaac reads this, he can fully explain it.
Tammy and everyone else, this is what the neurologist had to say today:
I watched her do a neuro eval on Timmy, as I was in the room with him when she arrived. I've seen a few of these, so they are not surprises to me. I'll get back to what I observed later.
MRI results - She sees no further damage since right after the accident happened. There is "bruising" to the upper right side of his brain where the injury occured. There is also damage to the lower right side, which I suppose is the brain stem damage they keep talking about. She did say there was still some swelling, but no further damage like I said.
EEG (electroencephalogram) - We thought they were going to do some big study on brain waves, but all they were looking for was seizure activity. He has had no seizure activity, so I guess that's good. But she did say that had it shown seizure activity, they'd look at that as a reason why Timmy wasn't waking up.
So when I watched her do the neuro exam today, I felt like I saw reaction from Timmy. But according to the doctor and any other medical professional that's examined him, they say that it's just "reflexes" and doesn't mean anything. They want to see him react in a "purposeful" way. For example put his arms up and try to protect himself. What I observe, is him reacting to painful stimuli by pulling away or flinching. When they tickle his nose with a Q-tip, he moves his head. But to the doctors, it's nothing. I feel like it is.
To be honest with everyone, the doctors never have anything hopeful to say. They say that he should have had some kind of improvement within the first few days. Now they are talking about a 2 week mark, which is today.
I'm with Timmy everyday and I KNOW he can hear us. He slightly flutters his eyes when I talk to him and his breathing changes. I will never give up on him and I tell him everyday how much we love him and how we will never leave him.
Please everyone, keep asking God for a miracle. We know that Timmy waking up will be God's doing and all thanks will go to him.
Tammy and everyone else, this is what the neurologist had to say today:
I watched her do a neuro eval on Timmy, as I was in the room with him when she arrived. I've seen a few of these, so they are not surprises to me. I'll get back to what I observed later.
MRI results - She sees no further damage since right after the accident happened. There is "bruising" to the upper right side of his brain where the injury occured. There is also damage to the lower right side, which I suppose is the brain stem damage they keep talking about. She did say there was still some swelling, but no further damage like I said.
EEG (electroencephalogram) - We thought they were going to do some big study on brain waves, but all they were looking for was seizure activity. He has had no seizure activity, so I guess that's good. But she did say that had it shown seizure activity, they'd look at that as a reason why Timmy wasn't waking up.
So when I watched her do the neuro exam today, I felt like I saw reaction from Timmy. But according to the doctor and any other medical professional that's examined him, they say that it's just "reflexes" and doesn't mean anything. They want to see him react in a "purposeful" way. For example put his arms up and try to protect himself. What I observe, is him reacting to painful stimuli by pulling away or flinching. When they tickle his nose with a Q-tip, he moves his head. But to the doctors, it's nothing. I feel like it is.
To be honest with everyone, the doctors never have anything hopeful to say. They say that he should have had some kind of improvement within the first few days. Now they are talking about a 2 week mark, which is today.
I'm with Timmy everyday and I KNOW he can hear us. He slightly flutters his eyes when I talk to him and his breathing changes. I will never give up on him and I tell him everyday how much we love him and how we will never leave him.
Please everyone, keep asking God for a miracle. We know that Timmy waking up will be God's doing and all thanks will go to him.
Post #28 by Lori was marked as irrelevant.Show Post

Post #28
Lori replied to Dawn's poston June 9, 2009 at 11:10pm
Dawn,
Thank you for taking the time to keep us all updated. I'm sure it is not easy. But being out of the loop as it were, it is a great blessing to be able to look here and feel like we are informed. My family and I have been praying for Timmy. My boys add him to our dinner grace.
May Gods love comfort you,
Lori Giles (Hanson)
Thank you for taking the time to keep us all updated. I'm sure it is not easy. But being out of the loop as it were, it is a great blessing to be able to look here and feel like we are informed. My family and I have been praying for Timmy. My boys add him to our dinner grace.
May Gods love comfort you,
Lori Giles (Hanson)

Post #29
Dawn wroteon June 10, 2009 at 2:07pm
When I arrived today, Timmy seemed pretty warm and coughing a lot. He has pneumonia and have started him on antibiotics again. They were expecting to do the tracheostomy and gastrostomy (PEG) today, but now they will wait at least 48 hrs to let the medicine work. I asked one of the docs about starting Tylenol again, it doesn't seem like it could hurt. She agreed and put an order in for that. They had the off the feedings because they expected to do the procedures today. Because they are waiting, they started him on the feedings again.
Keep sending Timmy your love and never stop praying for him to wake up.
Keep sending Timmy your love and never stop praying for him to wake up.
Post #30 by Judy was marked as irrelevant.Show Post

Post #30
Judy wroteon June 10, 2009 at 4:17pm
dawn, does he show brain activity? someone told me the first week that his brain waves changed when Crystal came into the room? is that accurate? I have a lot of people asking me every day at the boulder creek drugstore where I work, and they are all praying for him too. xo

