I saw a geneticist a while ago to see if I have EDS III, and after the appointment I am still not sure. lol He said I don't have the dangerous kind of EDS (which I already knew) but then he went back and forth calling what I do have non-EDS hypermobility and EDS III. What is the difference between the two, or are they the same thing? I guess it doesn't matter because dysautonomia is my main problem, but it would be nice to know just in case the treatment is different.

My geneticist explained it that hypermobility syndrome is the presence of hypermobile joints and pain. EDS III is a genetic collagen disorder which can therefore cause problems with other connective tissues (e.g. uterine prolapse and issues with pregnancy/childbirth). some specialists believe that they are the same disorder...and they are obviously very similar. I find that doctors take my EDS diagnosis more seriously than firends i know who are DX with HMS.

It is possible to have more than one type of EDS at the same time, every person is different but within the same spectrum of symptoms.

It is also now being considered by many doctors that HMS is actually EDS.

There is little treatment that is standard either, just different coping methods.

That probably explains why I am so confused :0) Thanks!

Hello Emily,
Check out the Benign Hypermobility Syndrome discussion topic here. It is several pages back, but it tackles this topic quite well, I think, and I believe will give you your answers. Here, Dr. Brad Tinkle states his view that EDS III and HMS are the same thing. Also, he has written a book on EDS III and HMS that is also very helpful. He refers to them both as one intenity = EDS-HMS. Check it out.

Also, treatment is the same for both.

I also feel patients with EDS diagnosis are taken more seriously.