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Seeking to improve the quality of life and extend the lives of congenital heart defect survivors. www.achaheart.org
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PlacesPhiladelphia, PennsylvaniaAdult Congenital Heart Association
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On the road with ACHA: Paula Miller, Member Outreach Manager at ACHA, is at Children's Hospital of Philadelphia Cardiology 2017 in Orlando this week along with a few of our members of the Medical Advisory Board who are speaking: Yuli Kim, Craig Broberg and Karen Stout. #1in100 #Cardiology2017

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Quick Fact Friday: Fewer than 10% of adults with CHDs in the United States who need care from specialty adult CHD centers are receiving this recommended care. Learn more: http://bit.ly/29uoYG0 #ACHACares #1in100

Adult CHD problems are very different from other “regular”/acquired heart issues that adults develop. It is important to understand as much as you...
achaheart.org
Reviews
28 Reviews
Tell people what you think
Leegnk Tee
· August 23, 2016
I'd never been with any organization which provide a lot of resources to guide and aid Congenital Heart Patients, Family, and Friends. They've Provide online di...scussion(Forums-letting is connected with patients that had gone through situations as I did-around the world, provide conference so I can gather to learn, meet and see new techniques of treating congenital heart defect, and education resources so I learn to live a better healthy lifestyle with congenital heart. It's an amazing program, and I'm glad my doctor and few of their members introduce me. Thank You ACHAHEART! See More
Kimberly Roberts Brown
· January 30, 2017
Grateful for this organization! It's nice to have fellow warriors going down the same road as you maybe and having others to share this journey with and to lean on!
Camille Richards
· November 19, 2016
The voice and place for adults who think they are alone with a CHD.
Dubra Karnes-Padilla
· July 26, 2016
I wish this resource had been available when our son was born in 1979, but I am thankful it is today. I encourage ALL Pediatric Cardiologists to make their families aware of this organization at their first meeting.
Lori Reitz
· January 31, 2017
Great cause! Great work and advocacy! I am an ACHD survivor.
Reena Robillon
· August 18, 2016
Can i send private message on you....ACHA? Im just going to ask something. Thank you.
Breanna Bashur
· November 29, 2015
I love that I am able to talk to other people similar to me & here their stories. This is such a wonderful site & community!
Brenda Lucas
· April 25, 2016
excellent website for individuals and families dealing with complex congenital heart disease!
Genevie J Mineo
· January 1, 2016
The ACHA has changed my life! I started to meet others like me when I didn't even know there were others out there!!
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Check out today's HeartTalk: A Way of Life blog post by Misty Sharpe about why she finds it so important to raise critical funds for CHD. Read more: http://bit.ly/28XIogR #1in100 #ACHACares

Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.
achaheart.org

Check out our 8th National Conference program overview to see all the reasons why you should join the CHD community in Orlando, FL on June 1-3. If you are already registered, you can get a free gift by referring a friend, loved one and/or patient. Register today! http://bit.ly/29eEHpL #ACHACares #1in100

Be part of this unique opportunity to meet and mingle with others that are part of the adult congenital heart disease (ACHD) community, listen to...
achaheart.org

Karla D. was lost to care until the age of 18. Now, she manages her congenital heart disease (CHD) by living a heart healthy lifestyle.

"It's affected myself, my husband, and our children the most. Our children are young, 9 and 6. We are quickly approaching an age where they will begin to understand more and we're preparing for those tougher questions."

Join the Adult Congenital Heart Association in raising awareness about CHD's lifelong commitment. Share your story and tag #1in100.

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What difficult choices have you had to make regarding your CHD? Read this blog on The Mighty about five difficult choices people with chronic illness face. http://bit.ly/2kxJcSG #ACHACares #1in100

"1. Do we push our bodies to the limit or do we play it safe?"
themighty.com

Wellness Wednesday: Today is Valve Disease Awareness Day which is calling attention to those diagnosed with heart valve disease, which can be deadly if left untreated. Learn more from Alliance for Aging Research at http://www.valvediseaseday.org/ #ACHACares #ValveDiseaseDay

Share Your Story to Help Ensure Those with Congenital Heart Disease Retain Access to Health Insurance! The Adult Congenital Heart Association (ACHA) is collecting personal stories about how the Affordable Care Act has impacted you and any of your family members with CHD. Please share your story by completing our form. Learn more and help us today! http://svy.mk/2kRy6VD #ACHACare #1in100

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Amy F. came to the Adult Congenital Heart Association (ACHA) when doctors told her that her congenital heart disease (CHD) could affect her plans to start a family. Learn more about how ACHA has helped Amy and so many others like her:

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If you or someone you love has been affected by congenital heart disease, you're not alone. Share your story with us using the hashtag #1in100 for a chance to be featured on our page in honor of Heart Month!

The Adult Congenital Heart Association is a community for support and education. Make your voice heard.

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Check out another exciting topic at ACHA's 8th National Conference: Engaging and Empowering Patients and Families in Their Care
1. How to Find Care
2. Teach Your Providers What You Need
3. Becoming Involved in Research
Come and join us on June 1-3 in Orlando! Register today and find out more about our first-time attendee discounts as well as our refer a friend FREE gift. Learn more: http://bit.ly/29eEHpL #ACHACares

Be part of this unique opportunity to meet and mingle with others that are part of the adult congenital heart disease (ACHD) community, listen to...
achaheart.org

Quick Fact Friday: Do you know that there are 63 new members in the 115th Congress? Does one of them represent you? Visit http://www.house.gov/ and https://www.senate.gov/ to find who your members are and learn more about them by visiting their website. #ACHACares

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What do you wish people understood about your CHD? The Mighty asked their followers what truths about chronic illness they wish others understood. Read more: http://bit.ly/2ltUzsj #ACHACares #1in100

“I live a double life.”
themighty.com

When Karla D. realized that her congenital heart disease (CHD) required lifelong care, she sought the support she needed from the Adult Congenital Heart Association (ACHA). Karla learned how to manage her CHD and found the hope she thought she lost:

"I found out about ACHA from my nurse during my first visit with an adult congenital cardiologist...it changed my life. I felt empowered as a patient. While we prepared for my second open heart surgery two years later, I was matched with an ACHA Heart to Heart Ambassador. That Ambassador filled me with hope and helped me prepare for it."

Tune in to our Facebook page during Heart Month to follow Karla's journey.

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Important: The Department of Homeland Security last week updated their alert on St. Jude Medical pacemakers to expand the warning of cybersecurity vulnerabilities to additional devices. In a recent article from Modern Healthcare, Justine Bone, CEO of MedSec, explains the vulnerability and associated risks. Please read more: http://bit.ly/2kyhdyG #ACHACares

Cybersecurity vulnerabilities in a St. Jude Medical cardiovascular device extend to a piece of equipment that is used within healthcare facilities,...
modernhealthcare.com

Share Your Story to Help Ensure Those with Congenital Heart Disease Retain Access to Health Insurance! The Adult Congenital Heart Association (ACHA) is collecting personal stories about how the Affordable Care Act has impacted you and any of your family members with CHD. Please share your story by completing our form. Learn more and help us today! http://svy.mk/2kRy6VD

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.
surveymonkey.com