On the road with ACHA: Paula Miller, Member Outreach Manager at ACHA, is at Children's Hospital of Philadelphia Cardiology 2017 in Orlando this week along with a few of our members of the Medical Advisory Board who are speaking: Yuli Kim, Craig Broberg and Karen Stout. #1in100 #Cardiology2017
Quick Fact Friday: Fewer than 10% of adults with CHDs in the United States who need care from specialty adult CHD centers are receiving this recommended care. Learn more: http://bit.ly/29uoYG0 #ACHACares #1in100
Check out our 8th National Conference program overview to see all the reasons why you should join the CHD community in Orlando, FL on June 1-3. If you are already registered, you can get a free gift by referring a friend, loved one and/or patient. Register today! http://bit.ly/29eEHpL #ACHACares #1in100
Karla D. was lost to care until the age of 18. Now, she manages her congenital heart disease (CHD) by living a heart healthy lifestyle.
"It's affected myself, my husband, and our children the most. Our children are young, 9 and 6. We are quickly approaching an age where they will begin to understand more and we're preparing for those tougher questions."
Join the Adult Congenital Heart Association in raising awareness about CHD's lifelong commitment. Share your story and tag #1in100.
Wellness Wednesday: Today is Valve Disease Awareness Day which is calling attention to those diagnosed with heart valve disease, which can be deadly if left untreated. Learn more from Alliance for Aging Research at http://www.valvediseaseday.org/ #ACHACares #ValveDiseaseDay
Share Your Story to Help Ensure Those with Congenital Heart Disease Retain Access to Health Insurance! The Adult Congenital Heart Association (ACHA) is collecting personal stories about how the Affordable Care Act has impacted you and any of your family members with CHD. Please share your story by completing our form. Learn more and help us today! http://svy.mk/2kRy6VD #ACHACare #1in100
Amy F. came to the Adult Congenital Heart Association (ACHA) when doctors told her that her congenital heart disease (CHD) could affect her plans to start a family. Learn more about how ACHA has helped Amy and so many others like her:
If you or someone you love has been affected by congenital heart disease, you're not alone. Share your story with us using the hashtag #1in100 for a chance to be featured on our page in honor of Heart Month!
The Adult Congenital Heart Association is a community for support and education. Make your voice heard.
Check out another exciting topic at ACHA's 8th National Conference: Engaging and Empowering Patients and Families in Their Care
1. How to Find Care
2. Teach Your Providers What You Need
3. Becoming Involved in Research
Come and join us on June 1-3 in Orlando! Register today and find out more about our first-time attendee discounts as well as our refer a friend FREE gift. Learn more: http://bit.ly/29eEHpL #ACHACares
When Karla D. realized that her congenital heart disease (CHD) required lifelong care, she sought the support she needed from the Adult Congenital Heart Association (ACHA). Karla learned how to manage her CHD and found the hope she thought she lost:
"I found out about ACHA from my nurse during my first visit with an adult congenital cardiologist...it changed my life. I felt empowered as a patient. While we prepared for my second open heart surgery two years later, I was matched with an ACHA Heart to Heart Ambassador. That Ambassador filled me with hope and helped me prepare for it."
Tune in to our Facebook page during Heart Month to follow Karla's journey.
Important: The Department of Homeland Security last week updated their alert on St. Jude Medical pacemakers to expand the warning of cybersecurity vulnerabilities to additional devices. In a recent article from Modern Healthcare, Justine Bone, CEO of MedSec, explains the vulnerability and associated risks. Please read more: http://bit.ly/2kyhdyG #ACHACares
Share Your Story to Help Ensure Those with Congenital Heart Disease Retain Access to Health Insurance! The Adult Congenital Heart Association (ACHA) is collecting personal stories about how the Affordable Care Act has impacted you and any of your family members with CHD. Please share your story by completing our form. Learn more and help us today! http://svy.mk/2kRy6VD