PO Box 907773
Gainesville, GA. 30501
Hawk had 3 seizures today and has been very sensitive to his right leg. We’re not sure why the change, but hoping it’s just an off day and tomorrow will be great for his day with Dada. He loves holding his new little brother and really tries to hold on to him and interact with his arms! I can’t wait to witness all the ways they help each other throughout life.
Here are my quick baby Updates pulled from my personal page. Sorry it’s taken so long to post but I know y’all un...derstand.
Lake life day 1:
James Lake O'Neal entered the world at 8am Friday morning weighing 8lb 10oz and measuring 20 1/2 in long.
He LOVES some boobies! Is very content to sleep on Hawk and thinks his daddy hung the moon. Lake definitely got daddy's gorgeous hair and lips.
C-section went just fine, despite me being a big wimp. Matt was so attentive and brave. He took a million pictures. I'm itching like crazy from the nerve block, but otherwise we are all just chillin. I'm still in disbelief that I have two kids!!! Wow! Praise and thanks to God Almighty.
Day 2 of Lake life:
Matt’s brother and sister in law, Daniel and Melissa visited.
Stacy (Tripp Halstead Updates) came and lived on Lake while I got a good nap and Matt got to escape the hospital for a nice shower and visit with Hawk. I’m jealous.
Nana came to meet Lake!
We got lots of skin time and Lake is clearly a Daddy’s boy.
Day 3 of Lake life:
Clotting tests and brain ultrasound all came back normal. Just done as a precaution because of Hawk’s history.
Daddy is striving to be the best at swaddling and burping.
Learning how to eat because mommy’s milk is here!
Visits from Matt’s sister Aunty Kole and Cooper, Gramma, Katie and Big brother, and cousin Kayla.
“Date night” in for mommy and daddy. Matt brought cereal, candy, and a movie.
Hopefully home tomorrow.
Lake life Day 4:
Home sweet home!
Daddy mastered the swaddle.
Hawk and Matt had a boys day out at Tender Ones Therapy Services.
Lake life day 5:
Oh, it was a long first night at home.
Early morning (10:30am lol) visit to the pediatrician for a weight check.
Back up to 8lbs 6oz thanks to lots of boob juice and begging the screaming monster to latch.
Hawk and Matt went to therapy again today.
My legs are swollen sausages and I’m dealing with a cellulitis infection on the skin above and below my c section incision, but other than that, I’m doing great.
Hawk has had a good day. No seizures! I never get tired of typing that. We are visiting baby brother now. Mommie is glad to see him and they are snuggling with Matt. Our friend Katie is staying today and tonight to provide the “muscle” in lifting Hawk. She took him for a long walk in the stroller and he enjoyed that. He is having less discomfort in his legs as time goes on and he will go to therapy tomorrow. Thank you all for your prayers and support.
James Lake O'Neal entered the world at 8am this morning weighing 8lb 10oz and measuring 20 1/2 in long.
He LOVES some boobies! Is very content to sleep on Hawk and thinks his daddy hung the moon. Lake definitely got daddy's gorgeous hair and lips.
C-section went just fine, despite me being a big wimp. I'm itching like crazy from the nerve block, but otherwise we are all just chillin. I'm still in disbelief that I have two kids!!! Wow! Praise and thanks to God Almighty. ...
It was brought to my attention tonight that people cannot see Hawk’s Amazon list or at least cannot see the complete list. I have talked with customer service and was advised that they are aware of the problem and are working diligently to correct it. Please be patient and I will keep checking with Amazon.
This time tomorrow we will have a baby! That's so crazy. (It's a planned c section this time since I had to have an emergency one with Hawk. Hawk was perfect, but my body just said NO). Nana (matts mom) sent over the family bassinet for us to use. All her children and grandchildren have used it so far, so it's very special. The cat instantly took an interest. Lol.
I'm happy to report that we still haven't had any seizures since Monday! Today we've been showing Jojo (Hawk...'s nurse) everything he's been working on in therapy. Of course this made him a little mad at me because I'm making him work hard at home, but he gets over it quickly.
Last night Matt surprised me with supper reservations at The Melting Pot - Atlanta Area for Valentine's Day/baby-moon. It's one of my favorite restaurants and he had never been. It's totally overpriced, so I usually just make my fondue at home, but it was super sweet that he made it a special night for us. It's all about the whole experience when you go out for fondue. We had a blast talking and laughing so much. I couldn't get close enough to the table so I dropped half my cheese and chocolate on my dress. Lol. Today we are packing hospital bags and spending a quiet evening at home together with Hawk.
5 years ago today we found out Hawk had infection in his CSF. This was my post a year after that. So much has changed but my feelings are the same.
This day last year we were in the rehab unit at Scottish Rite Children's Healthcare of Atlanta. John and I had some friends come and sit with Hawk while we too...k a big date night all the way downstairs in the hospital, woohoo! We felt like we were really doing something big by leaving him for a few hours. The hospital had organized a nice meal and a painting activity for parents for Valentine's Day. I remember how nice it was to break routine, we painted hearts and brought them back to the room for Hawk. On the way back we ran into Tripp Halstead Updates Mimi in the hallway and she told us that Tripp's CSF came back positive for infection. I remember going back to the room and just crying and being so scared for them. She told us the plan was to transfer him to PICU and take all the man made stuff out of his body, go on antibiotics, and then once it cleared up you would have to put all the stuff back in. Hawk had just had his shunt tapped and whenever they do that, they always send off the CSF to test for infection as a precautionary measure. Hawk had this done this times before and had always been fine, and he had not seemed sick or had a fever or anything but, it's still something we were always on edge about until the 5-7 days passed and nothing grew out. So of course I had our nurse go check that night and nothing had grown out yet, it was day 3 so we were probably in the clear. The next morning the doctors were rounding and all of them came in our room with the nurse. In rehab this is unusual and I knew something was up. Sure enough, the words come out of her mouth, "Hawk's CSF has come back positive for staph". I knew all to well what the plan would be... surgery to take out the shunt, put in external drains, go to PICU, 10 days of antibiotics at the least, PIC line, IV, restricted to holding him for 45 min a day, no more therapy, no bathroom in the room, no food in the room, monitors all the time, lights flashing on all night, and worse, pain for my baby and the possibility of further brain damage, then taking the drains out and another surgery to place a new shunt, which could get infected again. All I could do was fall into a puddle on the cold tile floor. I'll never forget feeling so numb, so limp, so set back. Our nurses and therapists were amazing, they packed us up, brought us lunch, took down all our pictures and decorations and put them up on the door in the PICU. I still regret, to this day, that I did not look through Hawk's Valentine box that we had on the door. We don't have any of the little cards from him rehab mates. His best nurse had given him a Whoopie Cushion to tease the lab ladies when they came to draw blood. How great would that have been! I love our staff so much.
Well we made it through, thank God! Hawk responded well to the antibiotics and we were transferred out from PICU to neuro floor after about two weeks.
I guess I just had to get that all out tonight. It's crazy how I can now tell you exactly what I was doing this time last year. I've never had that before and I doubt I will again but, I can do it for the whole first 5 months of Hawk's life. Tonight as John and I sat in a restaurant, having a nice supper, the evening seemed so trivial, so materialistic, surface level somehow. People just spending money on mediocre food, ignoring their screaming baby, texting while sitting across from a date, clearly worrying about what they are wearing or what gift they might receive. I just can't go back to a life like that. Please, take it from me, don't worry about getting presents for Valentine's Day, don't wait and hour to eat chain restaurant food and then complain about the service, don't ignore your screaming kid because you are used to hearing it and you know they are not really hurting. Give love for Valentine's Day, eat good food and be grateful, spend that hour bonding with loved ones, and be happy your kid is there to scream and that it's over nothing.
I love you all and I never take it for granted that you are all here to care about us. You make this journey so much better! Love, Katie
Y'all know me, gotta catch up on pictures from the past few days. So captions under each.
Seizures have been low but Hawk did have 2 on Monday. They were very mild and short and had no identifiable trigger. The combination of cannabis oil and a low dose of Onfi has given us the best control I can remember over the years. I just ordered a new bottle of oil, should be here any day now, and it's worth every penny and every risk. I wish Governor Nathan Deal felt like making i...t accessible here in Georgia, but he has blocked legislation again this year. For a republican who is all about state's rights, he sure is hiding behind the Feds. Well, we are taking up the fight there too. Tomorrow in New York, a judge will decide if the class action law suit against US Attorney General Jeff Sessions, that includes our friend Moves Like Jagger, will go forward.
Hawk has been happy, working hard at therapy, and getting better every day. I've been getting bigger every day. lol. Today was my last obgyn appointment and pre-op at the hospital. Everything went well. Tomorrow and Thursday will be our last days with Hawk as an only child. It's such a strange feeling... the excitement to have 2 kids, happy to give a brother and best friend, scared that I won't know what to do, a little sadness that I will miss him so much for a few days, but very ready to meet Lake... it's all mixed up. I'm making sure to spend as much one on one time with Hawk as possible.
Now to try to sleep. I've got so much going through my head, I just want to go eat something instead. Sad but true. Lol.
Just a reminder to everybody who mails things to Hawk. We have a new PO Box but we are still getting mail with the old Box number and the post office is not doing a very good job of forwarding things to us. The new information is pinned to the top of his page. The new Box number is 907773.
One of my friends crochets and she made a sleep sack for Lake and said she couldn’t send something to Lake and nothing to Hawk so she made the hat for him. It just fits and looks super cute. Thank you Linda!
I have updated the Amazon list for anybody who wants to send something for Hawk. We appreciate all your prayers and good wishes and are so grateful for anything anybody sends.
Little playboy twinkle toes says "Good morning everyone"!
Ps. Our awesome jammies were a gift from Tripp Halstead Updates to Lake but we figured we might go ahead a break them in 😍
Another seizure free day! I never get tired of typing that, thank you Lord!
My pictures tonight are from the iBaby Labs monitor that we finally get to use now that we live in a place with good internet vs the boonies. At night after I'm in bed, I can hear Hawk and see his pulse ox monitor from my bed, but this monitor allows me to see him on my phone from anywhere. It's great. It will afford me a lot more freedom to be with Lake at night and still keep eyes on Hawk. Or s...it on the porch and have a glass of wine at night. You know, which ever. Lol.
Mom and I got to go watch the movie The Post today and then I got my pedicure. We watched some Olympics and Big Brother tonight. Great activities for a rainy Saturday and I enjoyed spending some quality time with Mama before we go into baby mode.
I'm increasing miserable but forever grateful to be pregnant again and having Lake. Only 6 days to go!
No seizures again today! Hawk seems to be over the flu symptoms completely. He's still guarding his right hip from the surgery but otherwise tolerates leg movement pretty well. No more crying, just fussing now. He had a very active and happy day with his nurse Jojo. They got in the "nap cave" (hyperbaric oxygen chamber) and true to its name, it put Hawk right to sleep. He doesn't generally nap anymore but the chamber usually puts him out.
I've gotten to that point at th...e end of pregnancy where just about all I can do is sit around. It's so frustrating and frankly, is having a very emotional effect on me. I'm heavy, my feet are swollen and hurt from the extra weight, and I've started having what I guess are back contractions. We had an obgyn appointment yesterday and they checked my cervix, which freaked Matt out real good. He hasn't missed a single appointment but I thought he might step out after that. Lol. Anyway, same as with Hawk, I'm not thinned/dilated/soft or any of that, still high and closed. Baby Lake is still high up in my ribs and I feel that. Reflux and shortness of breath are at an all time high. Hawk's nurse handed him to me a few times today so we could get some good snuggles, but otherwise it's hard for me to get him into what little lap I have left. Not sure if you can tell, but in the third picture I was trying to capture a good angle to show that baby Lake had moved all the way over to the right and balled up so Hawk could have my left side. Already sharing. It was so sweet. (And yes, I stayed in those elephant pajamas all day because that's just where I am with life right now. Lol). Tomorrow mom and I are going to do something. I would really love a pedicure with a good foot massage since I cant reach my feet anymore. That would be a nice escape. Thank goodness I have my dependable awesome mom! God is good to me.
*captions with photos
We're at therapy and doing great! Ill post a video from the pool later. He stood up in the pool and was so happy about it. We have therapy later on Mondays now so we can take our mornings nice and slow. We watched cartoons and did some stretching in bed. He stayed up late last night to watch the super bowl and enjoyed the halftime show.
We had Lake's baby shower yesterday. The flu kept some friends at home but we had a great group, wonderful food, and... got some super cute gifts. Hawk enjoyed the visitors and helping to open gifts.
Hawk would like to wish a very Happy Birthday to his Dada! Dada has to work today (he sells cars at Jim Ellis Buick GMC - Mall of Georgia in case you need a car) so they will be celebrating later,but I got some super cute pictures from Dada's sweet girlfriend so we could surprise him.