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Parent to Parent of Colorado

Great transition information for families and self-advocates!

We need input from professionals who work with children with hearing loss. We are supporting a research project designed to identify practice patterns of profes...sionals when autism is suspected in a child with hearing loss. This survey is a LEND (Leadership in Neurodevelopmental Disabilities) project designed to improve knowledge that may lead to barriers in early diagnosis of children with hearing loss and ASD. In addition, we plan to use the information obtained from this survey to develop resources to support professionals providing services to children with hearing loss with potential secondary challenges. YOUR PARTICIPATION IS CRITICAL TO OUR SUCCESS!

Individual participant information is not stored in the database and results will remain anonymous. A summary of the information gathered will be distributed upon request and will be presented at EHDI 2018 and AAA 2018. It is estimated this survey will take less than 5 minutes to complete. The deadline for completion is February 20, 2018.

Click below to begin the survey, COMIRB Study #17-2239:
https://redcap.ucdenver.edu/surveys/?s=YDY9CYRPCP

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Thank you for your interest in participating in this survey. You have been identified as a professional who works with children with hearing loss. The goal of the survey is to identify practice patterns when autism is suspected in a child with hearing loss. The information in this survey will be use...
redcap.ucdenver.edu
Videos
Young Adults with ASD talk about Life Beyond HS
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Being Amy's Sister: On Having a Sibling with a Disability
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We don’t know enough about autism right now, but SPARK will change that. #WeAreSPARK bit.ly/jfkpartners
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Posts

Did you miss the premiere tonight? Here's a link to it. You don't want to miss it!

Encouraged by civil rights movements of the 1960s, the Disability Rights Movement gained momentum leading to the passage of the Americans with Disabilities A...
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Association of University Centers on Disabilities

Register Today! Preventing, Identifying, & Treating Fetal Alcohol Spectrum Disorders Webinar Series bit.ly/2o7KUL5

For all those who are Direct Support Providers or are trying to keep them aboard... here's a new report!

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Association of University Centers on Disabilities

"The direct support workforce crisis has been coming for decades. There is no issue more pressing for people with intellectual and developmental disabilities. C...orrecting the problems will require bold leadership and immediate action." http://bit.ly/2o1NbIt

A new report on the state of the direct support workforce is released by the President's Committee for People with Intellectual Disabilities (PCPID). The Committee is chaired by and includes several AUCD members.

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Join us in reviewing the important budget updates in this week's AUCD Disability Policy News In Brief.

Trainee Liaison Perspectives: 2011-2012 Center Updates
aucd.org

This aired in January 2018, but if you missed it, here's your chance to get caught up on the issues brought to light.

Who is making sure our state’s most vulnerable citizens are protected?
pbs.org

The Colorado SPARK for Autism team contributed to this new article. You should check it out!

We're thrilled to share our first published paper on SPARK featured in Neuron! Learn more on our website: https://goo.gl/WxjWq4

To understand the genetics of autism, scientists have to study a lot of people.
sparkforautism.org

Employment First is important for people with disabilities to become even more valued members of our world.

colorado.gov

John J. Conger Lectureship in Child Mental Health - 3/9/18 - 12:30-1:30 PM, Mt. Oxford Aud., Children's Hospital Colo - Lauren Brookman-Frazee, PhD to speak on, "Effectiveness & Implementation of an Autism Intervention in Publicly-Funded Mental Health Services." Children’s Hospital Colorado

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Dr. Tartaglia collaborates with JFK Partners on research.

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Children’s Hospital Colorado

Building relationships with patients with development disabilities and their families is at the heart of Dr. Nicole Tartaglia's work. Learn why.

Dr. Reynolds is also affiliated with JFK Partners, working on the SEED Study https://tinyurl.com/CoSEEDStudy.

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Children’s Hospital Colorado

Dr. Ann Reynolds understands how developmental disabilities can impact a family; her brother’s severe intellectual disability inspired her to become a doctor.

Important updates about another possible short-term Continuing Resolution for our 2018 budget.

Trainee Liaison Perspectives: 2011-2012 Center Updates
aucd.org

If you're in the Denver area, stop by Colorado Children's Hospital for a Parent Fragile X Support Group. It includes a talk by Fragile X superstar Dr. Nicole Tartaglia.

Join Children’s Colorado Fragile X Clinic and Colorado Fragile X for the next parent support group. Dr. Nicole Tartaglia will be discussing medication and upcoming drug trials for Fragile X. Free childcare is available at the Creative Play Center adjacent to the cafeteria. RSVP Include number of a...
fragilex.org

Save the date! More information about speakers and registration coming soon!

OCT12
Fri 8:30 AM MDTJFK PartnersAurora, CO
138 people interested

Parents and researchers alike wonder about the effects of everything from homework to screen time to stress to friendships on teenagers' brains. To understand m...ore, the National Institutes of Health (NIH) has launched the Adolescent Brain Cognitive Development (ABCD) Study tracking over 11,000 kids. New from the Today Show, AUCD member Dr. Susan Bookheimer, Director of the UCLA Friends of the Semel Institute for Neuroscience and Human BehaviorIDDRC, and the role she's playing in this study is highlighted in this piece from Maria Shriver.

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The federal government has launched the biggest study ever of teenagers’ brains, looking at everything from homework to screen time. As our Brain Power TODAY series continues, NBC special anchor Maria Shriver reports.
today.com