[UPDATE: We surpassed our goal in 20 hours. No further donations are needed. Thank you so much. My community is beyond incredible. We changed Marc’s life! I’m ordering the wheelchair and lift this week and will take photos of the items once they arrive.]
My mentee Marc was born with Epidermolysis Bullosa (RDEB).
RDEB is a rare and non-contagious skin disorder that causes recurring and painful wounds and blisters on his body. They mostly occur as open sores on his legs, arms..., and back. So severe is his RDEB that he is has disfigurement, is unable to walk, has little use of his arms, and other serious medical problems.
At birth, because of the severity of his RDEB, Marc's mother was told he wouldn’t live past 4-years-old.
Today, he is 31-years-old!
Marc's father passed away before he was born and his mother, who is nearing 70 years of age, no longer has the strength to lift him out of bed. That combined with a broken wheelchair has resulted in Marc not being able to leave his bedroom for months.
He is such a humble person that when I talked to him yesterday on Skype, he didn’t want to mention he was stuck in his bed. Instead, he wanted to make sure I was okay. If I hadn't pried as to why he was laying in a similar position to the last time we talked, I would never have known Marc and his mother needed serious help.
That’s why I’ve created this campaign: https://www.gofundme.com/liftandwheelchairformarc
I’m asking for your help to raise enough money so that we can purchase an electronic wheelchair and electronic lift.
With these two items, Marc will be able to leave his bedroom.
When I asked Marc what he wanted to do when he gets out of his home, he said simply "to go to church with my mom."
Please help me change his life.