March 17th 2018
Hanging out with the oldest NZ survivor of World War One.
When medic Stewart Little rescued a Greek tortoise that had been run over by a gun carriage, nursed her to health, and bought her back to New Zealand in 1916, I am sure he could not have imagined that over 100 years later she would still be going strong, and still being raised by his descendants....
I had the pleasure of meeting Torty when I was a little girl and now my kids have been able to share the same experience.
Torty may seem familiar – she was featured in the "Gallipoli: The scale of our war” exhibition at Te Papa, and is written about in the book “Torty and the Soldier” by Jennifer Beck and illustrated by Fifi Colston - Ro ♥
Ten days ago we got home from Auckland, and thanks to on-line groceries, a husband who does shift work, and school transport, I have not needed (or wanted) to leave the house once.
After spending half of February away from home with appointments for Quinn, I am now in mega crash-and-burn-hermit mode, and feel I have by default, morphed into a hard core introvert.
I am still processing all the new medical information, including that we will need to look at Quinn reducing school hours to pre-empt the fatigue she experiences, that she requires a referral to a hand surgeon, the possibility of a tendon-transfer operation on her leg in the future, and serial leg casting – Ro ♥
“My name is Quinn and these are my Beads of Courage...”
March is the appeal month for the Child Cancer Foundation so I thought I would re-share the TV commercial that Quinn did with the lovely Bernadine Oliver-Kerby in 2014.
The text number is no longer valid, but do look out for the the blue collection buckets around NZ on March 16th and 17th....
BOTOX – not just for faces...
Last week there was yet another appointment for Quinn in Auckland - Botox injections under a full anaesthetic. We travelled up there with my mum, who was visiting from Australia.
Botox treatment is used on Quinn to block some of the nerves in her right arm and leg. This immobilises the strong spastic muscles that give her pain, and gives the weaker ones, a chance to function. Botox has always been a successful treatment for Quinn, and within hour...s not only had her fingers visibly relaxed, but her wrist had some flexibility.
Anaesthetic never particularly agrees with Quinn, and this time was one of the worst - nausea, headaches, temperature fluctuations, falling in/out of sleep, flushing bright red then turning white, the need for a heated blanket, and finally – three hours later – she woke up fully, bright as a button. A very long and taxing day for us all.
We had a late flight home the next day, so took the opportunity to have lunch in the beautiful Auckland Domain with some of mum’s cousins, and see the start of the Auckland Lantern Festival being set up.
Going home we not only shared a flight with Kiwi rapper Savage, but were treated to the incredible sight of the crater on Mount Ruapehu (in photo) – Ro ♥
February 15th 2018
Quinn's 15 year old brother got to drive a Ferrari F430 on the Hampton Downs race track today!
Fairy Godparents in our lives gifted Fletcher Drive Supercars vouchers. It has taken many months to coordinate with dates and the weather so it was very exciting that this finally happened today!
February 13th 2018
Quinn's MRI was cancelled yesterday due to uncooperative veins. The Legend, Dr Tim, came to our rescue today, and successfully, painlessly, and rapidly, got an IV line into her arm, and she was able to go ahead with her rescheduled routine brain scan.
The Mighty have shared a piece of my writing...
If you know someone whose loved one has cancer, you need to read this.