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                        "text": "Cathy Glinski I got an ultrasound ONCE, but I had been in my wheelchair all day so they were pressed nearly flat. I got a proper diagnosis in the hospital, but the doctor said that they won't do anything about it unless I get bariatric surgery, which I can't get because I have a compromised immune system and problems eating and digesting already. They won't drain them, they won't surgically remove them, nothing.\nQinni The nurses and any pain management specialists I've seen are usually awesome, but doctors treat me like I'm a drug addict or exaggerating (even though I'm on a FRACTION of what I used to be on, and now have all sorts of open wounds that need daily cleaning and dressing changes). I actually had a doctor say \"don't you cry out now\" when they were doing a punch biopsy. I have autism and anxiety and panic disorders on top of everything, so just being touched pushes me over the edge let alone biopsies. In my experience, doctors don't give a shit...\n\nI actually don't have a GP right now because my last one nearly killed me TWICE. When my swab from my wounds came back as staph she said the test was wrong and I was just \"dirty\". When my nurses FINALLY convinced her to give me antibiotics the first one she prescribed me was one I'm allergic to, and the second one would have killed me because of the chemo (it exponentially increases the potency). Her response was \"why can't you just try it?\" because she didn't want to have to look up another antibiotic and fax another prescription. When I actually started responding to the new antibiotic my nurse asked her to extend my round since it wasn't fully cleared, but she refused. This gave the staph a chance to become antibiotic-resistant and landed me in the hospital, where I got three other infections because they didn't believe me that I had a compromised immune system and didn't bother checking their own test results. I was on antibiotics a LOT longer than I should have been because they started out treating me for cellulitus based ONLY on my weight. They also decreased my pain meds at the hospital because I was \"too pleasant\". I was polite and tried to be nice to those around me, even when I felt like shit, and got shit on in return..."
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                        "text": "Cathy Glinski I got an ultrasound ONCE, but I had been in my wheelchair all day so they were pressed nearly flat. I got a proper diagnosis in the hospital, but the doctor said that they won't do anything about it unless I get bariatric surgery, which I can't get because I have a compromised immune system and problems eating and digesting already. They won't drain them, they won't surgically remove them, nothing.\nQinni The nurses and any pain management specialists I've seen are usually awesome, but doctors treat me like I'm a drug addict or exaggerating (even though I'm on a FRACTION of what I used to be on, and now have all sorts of open wounds that need daily cleaning and dressing changes). I actually had a doctor say \"don't you cry out now\" when they were doing a punch biopsy. I have autism and anxiety and panic disorders on top of everything, so just being touched pushes me over the edge let alone biopsies. In my experience, doctors don't give a shit...\n\nI actually don't have a GP right now because my last one nearly killed me TWICE. When my swab from my wounds came back as staph she said the test was wrong and I was just \"dirty\". When my nurses FINALLY convinced her to give me antibiotics the first one she prescribed me was one I'm allergic to, and the second one would have killed me because of the chemo (it exponentially increases the potency). Her response was \"why can't you just try it?\" because she didn't want to have to look up another antibiotic and fax another prescription. When I actually started responding to the new antibiotic my nurse asked her to extend my round since it wasn't fully cleared, but she refused. This gave the staph a chance to become antibiotic-resistant and landed me in the hospital, where I got three other infections because they didn't believe me that I had a compromised immune system and didn't bother checking their own test results. I was on antibiotics a LOT longer than I should have been because they started out treating me for cellulitus based ONLY on my weight. They also decreased my pain meds at the hospital because I was \"too pleasant\". I was polite and tried to be nice to those around me, even when I felt like shit, and got shit on in return...",
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                        "text": "Rene Siracusa it seemed a condition that was easy treatable if found in time. She could stand talking and the next moment on the floor. Or she would say can\u2019t see mom, you turn her around and she has blue eyes they looked black from diluted eyes. It\u2019s scary but I had a habit to watch her facial color or eyes and get her in time. She hot medication, hart test and we where told she\u2019s gone grow out of it, still she has her moments if too tired or has been to hard on exercise but she knows now. Adult woman and her boyfriend checks her, they run together. We are lucky on that. It\u2019s something more common but often misdiagnosed like they tell parents oh it\u2019s because didn\u2019t eat or drink enough, epilepsie or some other reason. It\u2019s mainly because I\u2019m a nurse aid and had a nurse teaching me more than I should know and my own interest that makes me a troublemaker for doctors. I don\u2019t take a no for answer or we don\u2019t know. If they\u2019re not looking to find a reason than I tell them too. One doctor was rude to a patient of mine and I said later, did you get your degree and license of the internet? Left him godsmacked in the hallway. Later the nurse said never have I seen him so silent. I wasn\u2019t fired over it, but he admitted he was wrong to be rude."
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                        "text": "Qinni When I asked for my regular meds that I take at home when I was in the hospital, or asked for pain meds before they did the dressing changes, I'd get handed regular tylenol sometimes. I never got anything more than what I took at home, and then they decreased it, despite being in more pain. I started saving my pain meds for when I knew I was going to get dressing changes, leaving me in agony."
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                        "text": "Qinni When I asked for my regular meds that I take at home when I was in the hospital, or asked for pain meds before they did the dressing changes, I'd get handed regular tylenol sometimes. I never got anything more than what I took at home, and then they decreased it, despite being in more pain. I started saving my pain meds for when I knew I was going to get dressing changes, leaving me in agony.",
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