A photo from the Epilepsy Foundation of Minnesota's recent Family Event in the metro area. Families with children with epilepsy got together to visit, chat, and make art with colorful oven-baked clay.
Find out more about our Family Events and other Connect Group Events all around Minnesota and Eastern North Dakota here: http://bit.ly/2tOXdBW
If you're in the Fergus Falls, Minnesota area - join us this Thursday at the Fergus Falls Public Library for an open house with two of the Epilepsy Foundation of Minnesotas regional coordinators. Learn more about EFMN & meet other people in your area affected by epilepsy.
Thanks to Valley News Live for helping us get the word out:
In 2016, the Epilepsy Foundation of America asked the epilepsy community if they were interested in participating in a clinical trial, what concerned them about participating, and what motivated them to get involved. See the survey results here: http://bit.ly/2CVt82L
Based on this survey, EFA launched the clinical trials portal in April 2017. Visit the Clinical Trials Portal here: http://bit.ly/2DlTz3r
Thanks again to the senators and representatives who joined us at our Day at the Capitol event:
Senator Jim Abeler SD 35, Senator Melisa Franzen, Senator John Hoffman, Senator John Marty, Rep. Kelly Fenton
The Epilepsy Foundation of Minnesota provides a wide range of epilepsy-related employment resources.
We offer one-on-one support for currently employed individuals with epilepsy, or help in seeking new employment; hands-on workshops to learn more about employment and epilepsy; resources for both individuals and employers to help ensure a safe and informed work place; on-site seizure training for organizations and places of employment; and more!
Check out our new employment webpage & request services here: http://bit.ly/2tRa0ns
The Epilepsy Foundation of Minnesota is at the Minnesota State Capitol today for our annual Day at the Capitol advocacy event! Over 100 epilepsy advocates will be talking to their legislators about how they can help improve the lives of people impacted by epilepsy.
Tune it at about 10:30am for a live update!
Learn more about EFMN's 2018 legislative priorities at efmn.org/advocacy. If you can't join us in person tomorrow, make sure you tune in virtually - we'll be LIVE on facebook around 10:30am!
Thank you, MN lawmakers for meeting with the @MNStepTherapy coalition. #steptherapy can delay those with chronic diseases from receiving the meds their doctor ordered. #SF2897 and #HF3196 @SenUtke @kellyfentonmn http://www.brainerddispatch.com/…/4416198-guest-opinion-pat…
New legislation in Minnesota will put important guardrails on current insurer policy of Step Therapy that makes it difficult for Minnesotans to access needed medications by creating appropriate exemptions for those who are ill and will return prescription decision-making back to doctors who know what is best for their patients.
Did you see our latest blog post? Clinician's Corner: Neurostimulation Treatments for Epilepsy by Professional Advisory Board Member, Patricia Penovich, MD.
"Roughly 30% of people with epilepsy fail to achieve adequate seizure control through medication. If you fall into this category, neurostimulation may be an option. The treatments discussed in this month's Clinician's Corner are Vagus Nerve Stimulator (VNS), Deep Brain Stimulation (DBS), and Response Neural Stimulation (RNS).
It should be noted that none of these treatments act as a quick fix. The benefits of neurostimulation are instead realized over time, and even increase in effectiveness as time passes."
This event is geared towards those working in the older adult field. Hear from expert speakers on a variety of topics to enhance working with older adults.
2018 Topic: Get Stroke Smart! Learn from the Minnesota Stroke Association how to act fast and what to look for, as well as the after effects of stroke. The Parkinson's Foundation will be sharing pertinent information about Parkinson's and how you can work with those diagnosed with it. There will also be great local resources. Light breakfast provided.
Cost: Free, 2.5 CEUs Awarded
The International Wolf Center is a worthy opponent, but Round 1 isn't over yet! Help the Epilepsy Foundation of Minnesota advance in the Brackets For Good tournament by making a contribution here: http://bit.ly/2G0qOel
Any amount helps, and all donations (whether we advance or not) will go towards providing vital resources for people with seizures across Minnesota and North Dakota. Thank you for your support!
This month on our Thriving with Epilepsy Blog, read about Ben's transformative experience at Camp Oz:
Camp Oz is not just a place for kids to enjoy traditional camp activities; it allows youth with epilepsy to meet others like them and gain a sense of independence in a physically and emotionally safe environment. Ben Stowell, a long-time camper, enjoyed these benefits and has carried both friendships and memories from camp into his adult life. It helped him become more comfortable with his epilepsy, and as he puts it, "Camp Oz taught me the only job I have is to be myself, and that's the best thing there is."
Read Ben's story here: http://bit.ly/2D21WQa
This Wednesday, March 7th at 8pm join the Epilepsy Foundation of America for a Facebook Live event to hear about new updates in epilepsy research:
Our next “Talk About It Live” on Facebook will be on March 7 at 8:00 PM ET. Join the conversation when Ryan Kohalmy & Dr. Jacqueline French, chief scientific officer, go over highlights from last week’s Epilepsy Foundation Pipeline Conference. join at: http://bit.ly/2tdEBeG
Brackets For Good Round 1 starts today! Now through March 9th, every dollar donated is a vote for EFMN to advance. Contributions come back to support people with seizures through the Epilepsy Foundation of Minnesota vital programs and services. Thank you for your support!
Do you know a student who has shown courage in dealing with epilepsy, commitment to their education, and perseverance in eliminating the obstacles that epilepsy may present? Encourage them to apply for the Elam Baer & Janis Clay Educational Scholarship! Ten $1,000 scholarships are awarded to students each year. For more info & to apply, visit our website: