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NAIDW Awareness PSA
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845 Reviews
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Samantha Conn-Crall
· February 8, 2018
I have Lupus And no in my family believe how bad I feel!!!!!!!!!!
and yes i still smoke but my child can’t stand me for it.
this Should not be a reason for DISRESPECT,and yelling Like at BANCHIE at ...your mother..........!!!!!!!!!!!!!!
And at this point my life and helps my nerves sometimes........................... so back off until you can walk a mile in our skin
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Mark Fedziuk
· March 19, 2016
I don't know where to post this but I'm having trouble with my case.

I have a few question about I.M.E.s...

Has anyone ever heard of not being able to change your appointment?

The reason I ask that is the insurance company was told on February 8th, that after 8 years of battling for the smallest things, is finally starting the permanency process. WOO HOO!!!

So on March 3rd I received an IME for March 23 at an early time, not close to me and is in a bad neighborhood. So as I have done in the past, is that I would call the number on the IME paperwork, which states, that if for any reason you cannot make this appointment please call us as soon as possible to reschedule the appt. I called the day I received the IME paperwork, and for the first time I was told that they needed to call my adjuster to get permission. I get a call back and was told that because they put a "rush" on the appointment I have to see THIS doctor, at THIS time. So If it was a rush, why did they take their time to schedule an appointment. I even offered to go to a Dr. even earlier this month.

So my second question is for anyone in the Brooklyn/Queens area of NYC .
Has anyone ever heard of an orthopedic surgeon named Dr. Edward Toriello?
The only reason I ask is because I am leary of this appointment. It wouldn't be the first time I was sent to one of those "guns for hire" IME doctor his name was Dr. Sharma.
He saw me for less than 5 minutes and he didn't even touch me. When I received the report of the IME, he stated that he did a full physical and an in depth examination, if that wasn't bad enough 7 months later he wrote an addendum saying that I didn't need to be on any of the medications I was prescribed by my neurologist, because the ins. company was disputing my meds.
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Tina Louise Holley
· August 2, 2014
At long last ive found a group that will understand, i had a fall in 2012 and it has left me with spinal problems right at the base called the sacriillic joints. I also now have rheumatoid arthritis ...in my knees too. Ive had and still having countless battles with people saying im faking and because i use to be healthy they dont visible see my injury so they think im faking. Why would i put my family through hell and myself if i was faking. I hate people now, i shut myself away and dont bother anymore See More
Vellai Durai
· August 12, 2014
Great job brothers and sisters

...

DEU 6:4-9 NIV

Hear, O Israel: The Lord our God, the Lord is one. Love the Lord your God with all your heart and with all your soul and with all your strength. These commandments that I give you today are to be on your hearts. Impress them on your children. Talk about them when you sit at home and when you walk along the road, when you lie down and when you get up. Tie them as symbols on your hands and bind them on your foreheads. Write them on the doorframes of your houses and on your gates.
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Jeremy Bowen
· August 13, 2014
Broke my back in 5 places 7 years ago and have been living with chronic pain ever since.
It's funny how the pain is the only constant in life.
At first the friends and relatives are all so relieved ...that you're not in a wheel chair and so supportive.
Time rolls on. The friends drop off.
The 'support' from you're loved ones now comes with dagger looks.
The money dried up long ago.
It's all your fault.
The pain stays the same.
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Cheryl Mate- Linsday
· August 2, 2014
I also have an Invisible Disease, it is hard to deal with some friends and all strangers. Especially when I get out of a car with a disabled plate. I have found so many good remarks on your site, and ...you will find many from me. I have been diagnosed for 7 years and learned to be my own advocate and an Advocate to others. See More
Lynne Ravignat
· August 2, 2014
In your message which appears on Facebook about different hidden conditions people suffer from you've left out one of the biggest. Hemochromatosis or HH (iron disorder) is the most common genetic dis...order and is the root cause of an endless list of conditions most of which are on your list. The problem is most doctors (and your list) treat the problem (ie: diabetes, ibs, ms, arthritis, heart problems, liver problems, cancer.....) without getting to the cause which is simple to treat (phlebotomy or blood draw). If the root cause is not treated, it leads to further problems or worse (death). Hemochromatosis should be identified in your message for the good of a lot who suffer from it unknowingly. See More
Erica Levi
· August 7, 2014
I have a disease called Ankylosing Spondylitis. Yeah say that fast 3x. I have been wheelchair bound for almost two years now. I was denied disability saying I could walk 3 hours a day. I can't walk... to the bathroom! My hearing is the first week of September. I hope it gets approved or I am really going to be in trouble. So happy there are people like you who try and help people like me. See More
Alba N Rivera
· August 2, 2014
I also have fibromyalgia now a days Doctors called Myalgia and it hurts a lot but I have to continue living and I always say my Lord is with me and he let me be strong I don't show any pain and try t...o live with it . One day I have faith that my Lord will heal me . See More
Becca Lynn
· December 2, 2014
This organization is just what injured and disabled persons and their families need. It is an excellent resource and has the ability to financially assist members! This organization is the platform fo...r your voices to be heard, discussions to be had, and for empowerment! Donate today to help others! This organization is a catalyst for the demographic and does its very best to assist and improve the quality of life that these individuals have encountered. NAIDW works tirelessly and endlessly to provide resources, outreach, and grants to those in need. Support NAIDW, spread the word, and provide donations to ensure that this organization can continue to provide the utmost of support! See More
Tony Tiny Doyle
· July 31, 2014
I had a fall at work back in September 2012 and since have loss the feeling to my right leg used to drive a lorry for work can't anymore can't even drive a car unless it's auto and has a flip controll...ed accelerator so I only us my left foot to drive with not got the money to do it with . See More
Colleen Goggin Hineman
· August 13, 2014
I was injured at work in July of 2007. I had herniated 2discs and have one bulging disc that ended up completely killing a nerve in my left leg. I was denied surgery for years from workmans comp due ...to age finally after exhusting all options (pt, aqua therapy, epidural injections, spinal decompression, pain pills, iDET, even accupuntior) in 2010 I found a doctor who was willing to do surgery. Go fogure, I was pregnant with my first child shortly after meeting with him and was unable to do surgery. After haveing a healthy baby girl in 2011 workmans comp sent me to a work program I excelled well in. Then I found out I had cervical cancer at a 6week follow up. Got that taken care of. Planned my wedding got married had a second child in 2012. Guess what had to close my workmans comp case. I am in daily pain. No one sees it. No one knows the feelings I have. I have to suck it up everyday to give my children what they need. Thank God my husband is able to support us even if he is gone m-f EVERY week. Because when you are only 29yrs old you will not get social security, and no one will give you a chance in another feild (ie office) when you have been a Chef/ BOH worker or bar maid your WHOLE working life. (I started at 14!) I felt lost and devastated. For a long long time. Im glad I am not alone. See More
Michael Di Pippo
· January 4, 2016
I think NAIDW is a great organization to help injured workers. WorkersCompensationSCAM dot com - Please sign my 2 petitions against the NY State workers compensation board to expose them for insurance... fraud, racketeering, discrimination, abuse, tampering with & removing evidence, ethics violations & then trying to cover it all up. I was discriminated against & verbally abused by a Judge for uncovering & blowing the whistle on an insurance fraud racket, linking the NY State workers compensation board, crooked IME doctors, crooked judges, crooked insurance companies & their crooked lawyers See More
Jimmy Wilson
· October 25, 2014
I think it's great to see that people are out there supporting each other! Wish I could meet a good group. If U'all know anyone to stand for us in Washington, I would like to ask for someone to push a...t the medical reformists that believe in Obama to question how come there is no incentives for doctors to try to help us get back to work rather than abandon us to the prescriptions and worthless pain management injections to pacify us till we just die! If U've noticed if U have Medicare attached to your insurance no matter how good a supplement U have, U'r just a junkie to them! I'd rather go back to work and be paying into the system rather than just barely living off it. I enjoy doing many things I can't do on disability, employment can bring in much more money to help live a happy life when it costs to do even the great things U used to do for free! See More
Ashley Klopfenstine Bolten
· September 12, 2014
I'm very interested in getting into a support group for fibromyalgia. I was just recently diagnosed with fm and also spinal arthritis. I have a hard time getting people to understand what I'm going ...through so it would be nice to have people to talk to that understand me. I'm still learning a lot about the disease and this support group will also teach me a lot. How do I join? ? See More
Carol Hillman Proffitt Walker
· August 10, 2014
Constant pain after a failed back surgery is a bitch to say the least. One moment I'm a nurse the next I'm barely able to survive on my ssa. And the dr.s hate giving out pain meds and look at me like ...I'm a junkie. A Junkie!
But I do need them because I help care for my mom with dementia and daughter who two yrs ago got a kidney transplant. And I do it alone. No one to help. But I do it with love for them and would not have it any other way.
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Jade Hawk
· March 19, 2016
this site steals the work of disabled people. at least one author who makes a living with their writing has had their work stolen, and that means stolen income. it also appears that requests for delet...ion of stolen articles are being ignored.

this site is a fraud harming disabled content creators.
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Remy Segura
· August 24, 2014
It's great I just read some of the comments right now I'm in too much damn pain but excuse my language but. so sick of doctors not being doctors course I live in an area where this is to couple of doc...tors and they think their gods. I'm not exaggerating on that part either. One has a needle fetish he like to stick everybody with needles in the nerves in the back and think is going to help you and I don't. thank you See More
Linda Keeler
· August 4, 2014
I have been dealing with such severe pain sometimes I can't even walk and there is no rhyme or reason to explain it. Finally a doctor went the extra mile and realized it was more than one issue. Docto...rs are so limited to what they are allowed to do as far as testing for this or that because insurance companies, that are not even doctors, won't let them prescribe treatments you need. They get paid by pharmaceutical companies to push medications instead. See More
J Edward Proveaux
· August 13, 2014
I had no choice but to get on disability after i fell through a ceiling at work. Being not able to do the physical work I had before no bending, pulling & limited to only picking up 25 pounds & limite...d education. People really don't understand what you go through, I've had back surgery after 5 years of excruciating pain in back & nerve damage to my neck. After my surgery the pain came back & the sciatic pain down my legs feel like hell & if I didn't take medication for nerve damage & especial my neck I have shaking tremors in my arms, constant pain in my back and sciatic pain down my legs. But I'm not going to let it take over my life. I really hate it when someone says you look fine to me. You can't judge a person by looks. Feel my pain for a day you'll scream for it to stop, but I don't anymore I survive & live. Now disability I thank god for not the Government, cause they can& do screw you over but if I didn't have it I couldn't live. There's to many people that have the wrong ideas about people on disability, they say we are lazy, want a free ride, why should we have to pay.l worked hard for a living & made good money & unfortunately through the same things, people that don't understand better hope it never happens to them Iike it did ME. One other thing if the US GOVERNMENT keeps going the way it is we are ALL going to suffer even worst than we do now.I thank GOD to wake up every day even if i'm in excruciating pain to live another day. I also have two mental ill & handicapped brothers i got to be there for. I THANK GOD. See More
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