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Cadasil Twhh
November 18, 2012
Please don't forget to sign the registry. Www.cadasilfoundation.org

CADASIL Together We Have Hope (CTWHH) was established on May 10, 2005, as a non-profit organization, which continues to work coll...egial with various CADASIL organizations, doctors, researchers, and groups to ensure the channels of communication are kept open among all stakeholders to find a treatment or cure for all CADASIL patients and their families.
The registry is a database (collection of information) to which people with this rare condition from around the world can contribute their information.
Within the website, you will find a wealth of information about the characteristics associated with CADASIL and will be able to educate yourself, family members, and the medical community. We are here for you and “Together We Have Hope."

Please go to the "What is CADASIL" and "Educational Materials" buttons to learn about CADASIL. Print out a color brochure, emergency cards and much more

As a registry participant, you will be afforded the most up-to-date information on CADASIL by receiving e-mail alerts and newsletters. If you have more than one family member with CADASIL, please complete a separate form as this will provide accurate statistical data. All personal information provided to us is kept strictly confidential!

Please remember you are not alone
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Suely Costa
· June 8, 2014
So porque nao entendo ingles. Mas tenho essa doença e nao encontro brasileiro para conversar. Obrigada
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Just published from CADASIL France Association; details from the Annual CADASIL General Meeting and Scientific Conference, April 2016.
Presentations were made by various members of the research teams.
http://cadasilfoundation.org/PDF/Cadasil_Assembly-2016.pdf

cadasilfoundation.org

Just published from CADASIL France Association; details from the Annual CADASIL General Meeting and Scientific Conference, April 2016.
Presentations were made by various members of the research teams.
http://cadasilfoundation.org/PDF/Cadasil_Assembly-2016.pdf

Posts