Our Q&A/AMA session with filmmaker and Crohn's advocate Ryan Nesbitt. Thanks to everyone who took part and asked questions.

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Be sure to check this space at 2 p.m. (EST) as we go live with a broadcast of Ryan Nesbitt's Ask Me Anything. He'll be taking questions on #Crohns, his documentary about living with the disease, and anything else the internet is curious about.

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Have a question or 12 about #Crohns? Ask filmmaker and IBD advocate Ryan Nesbitt whatever's on your mind as he hosts a Reddit #AMA tomorrow at 2 p.m. EDT. We'll be streaming it live here on our Facebook page, so tune in!

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Filmmaker and #Crohns advocate Ryan Nesbitt never shies away from questions about #IBD. So go ahead, ask him anything. Ryan hosts a Reddit AMA this Thursday at 2 p.m. EDT (username "ryanesbitt"), and we'll be streaming it live here on our Facebook page. Tune in Thursday, and get a taste of Ryan's documentary here: http://bit.ly/2be2jMO

Gutsy is a documentary exploring what Crohn's disease is and shedding light on how it affects people. Stay tuned for the official release date coming Fall…
vimeo.com|By RyanNesbitt

Michelle has been been battling #Crohns Disease for over 15 years and endured major surgery in 2013. Now she's Cycling Across Canada for Crohn's, and closing in on the finish line in Dartmouth, Nova Scotia after 10+ weeks on the road. Show her some love as she nears the end of an epic ride: http://bit.ly/2bfUV2p

crohnsandcolitiscanada.akaraisin.com
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Lacy Brandt supporting Crohn's and Colitis Canada.

How to balance it all: Life, Work, School and IBD

Some people can easily manage living with IBD, but trying to balance it with staying active on top of a full w...ork and school schedule can seem next to impossible.

I currently work at a hospital and I’m using the AbbVie IBD Scholarship I just received to complete my Acupuncture and Chinese Medicine studies at Pacific Rim College in Victoria, BC. I love living in beautiful British Columbia and go camping and hiking as often as I can. Years after being diagnosed with Crohn’s disease I can happily say that I’ve found that balance, but it was no easy task.

I suffered for over six years before being diagnosed and missed a lot of college being sick at home or in a hospital bed. I even stopped participating in the dance team I loved so much. While travelling at the age of 22, my months-long plans were cut short when I became painfully ill on the beaches of Malaysia. I cancelled the rest of my trip and flew home to Breton, Alberta, where I was diagnosed with Crohn’s disease and rushed into emergency surgery.

Four months later I returned to my job so I could continue saving money for school. I was between degrees and working as a Physio assistant at an Acute Care Hospital. Admittedly, it was too soon and my body suffered. It was a humbling experience. I learned to be honest with my limitations and myself. Crohn’s helped me to realize what is truly important in my life and what I should be making time for.

No longer was I embarrassed to ask to use the bathroom or tell my employer I was not feeling well enough to work. And neither should you. Overcoming the awkwardness and embarrassing traits of this disease takes courage and is essential to managing this illness.

Trips and physical activities aren’t always possible during flare-ups but they are vital to living a happy and healthy life. Don’t be discouraged or use your disease as an excuse to miss out on what you really want to do with your life.

Work and school are necessary to attain the career you want, and eating right, being physical and group activities are necessary to attain a full and healthy life.

I didn’t do it alone. I got a lot of support and reassurance from getting involved with Crohn’s and Colitis Canada, and so should you.

How do you balance it all?
Lacy

#IBD #Crohns #colitis #MakeItStopForLife @getgutsycanada @abbviecanada

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What does accessibility mean to you as someone with Crohn's or colitis? Raise your voice and your concerns at a national forum this November in Ottawa for youth with disabilities – travel and accommodations will be covered for those selected to participate! The event is part of the Government of Canada’s consultation process as it develops accessibility legislation. Find out more about the forum and how to apply below. �#�AccessibleCanada #IBD http://bit.ly/2brz4Ij

This fall, the Honourable Carla Qualtrough, Minister of Sport and Persons with Disabilities, will host a one-day national forum for youth with...
esdc.gc.ca
Crohn's and Colitis Canada updated their cover photo.
Crohn's and Colitis Canada's photo.
Antoine Lapointe's photo.
Antoine Lapointe's photo.
Antoine Lapointe added 2 new photossupporting Cru.

Crohn et Colite Canada
Comment la maladie de Crohn m’a aidé à équilibrer mon budget d’étudiant

À seize ans, j’avais une vie normale. J’aimais faire du sport, me... nourrir sainement et passer du temps avec mes amis. J’économisais pour mon avenir, car je savais que mes parents n’étaient pas très riches. À cet âge là, je ne m’imaginais pas que ma santé pouvait être si fragile.

J’ai commencé à éprouver des douleurs si intenses que j’avais de la difficulté à respirer. Ça m’est même arrivé en public. Mon médecin de famille n’y croyait pas. J’ai consulté des experts et j’ai manqué plusieurs journées d’école. Quand on est absent du travail, les chèques de paye sont eux aussi absents. Cela a vraiment affecté mon budget pour l’école. Cette situation a duré pendant cinq ans, jusqu’au jour où j’ai finalement eu un diagnostic de maladie de Crohn.

La maladie de Crohn et la colite ulcéreuse sont les deux formes les plus courantes de maladies inflammatoires de l’intestin (MII). Recevoir un diagnostic de l’une ou l’autre de ces maladies n’est pas facile. Cela n’a rien d’amusant, mais mes parents m’ont appris à toujours voir le bon côté de la vie. Ainsi, j’apprécie les belles choses que cette épreuve m’a apportées, par exemple une communauté de nouveaux amis et – croyez le ou non – un budget équilibré.

Apprendre à composer avec ma maladie consistait à apprendre à organiser mon temps entre, d’une part, mes rendez vous chez le médecin et, d’autre part, mes horaires à l’école et au travail. Après tout cela, il ne reste plus beaucoup de temps libre, plus particulièrement pour être actif, ce qui est très important pour moi. J’ai décidé d’étudier en urbanisme à l’Université du Québec à Montréal. Les aptitudes à la planification que j’ai acquises en classe m’aident à bien gérer mon argent.

Voici les principaux conseils que j’ai à vous donner pour vous aider à équilibrer votre budget d’étudiant :

• Faites vous un lunch : Les aliments vendus sur les campus peuvent être chers. De plus, ces aliments sont rarement sains, ce qui peut provoquer une poussée active de votre maladie. J’économise de l’argent en faisant une épicerie et en me préparant des lunchs que j’apporte à l’école. Essayez d’acheter en vrac pour préparer des repas pour une semaine que vous mettrez au congélateur.

• Faites des demandes de bourses d’études : Il existe de nombreuses possibilités de bourses d’études et de subventions qui n’attendent que vous. Dans la plupart des cas, la procédure à suivre est assez simple, et une bourse peut vraiment vous aider à défrayer vos droits de scolarité. Même si la réponse est négative, vous aurez vécu une belle expérience de rédaction. J’ai récemment obtenu une bourse d’études AbbVie sur les MII, qui m’aide à payer mes frais de scolarité pour cette année.

• Achetez usagé : Vous n’avez pas besoin d’acheter de nouveaux manuels qui ne serviront que durant un semestre. Certes, les livres constituent une excellente ressource, mais il existe différentes manières de se les procurer. Allez fouiner dans les boutiques de livres usagés ou magasinez en ligne pour trouver les meilleurs prix. Et bien sûr, les livres sont toujours gratuits à la bibliothèque.

• Ne passez pas tout votre argent dans l’alcool : Ce n’est pas nécessaire de faire de se livrer à des abus au bar local pour être cool ou se faire des amis. Il faut surtout se rappeler que l’alcool peut nuire à votre corps ou causer des poussées actives de votre maladie. Il existe plein d’autres manières de s’amuser entre amis qui n’impliquent pas d’alcool, ou qui ne coûtent rien. Envisagez de vous joindre à un club ou de pratiquer des sports intramuraux.

N’oubliez jamais que chaque dollar compte. Et vous, comment économisez vous de l’argent en disposant d’un budget d’étudiant? Dites le moi dans la section des commentaires ci dessous.

Antoine

How Crohn’s disease helped me to balance my student budget

When I was sixteen, I was normal. I loved playing sports, eating healthy and spending time with my friends. I was saving for my future, because I knew that my parents were not very wealthy. At that age I couldn’t imagine my health could be so fragile.

I began to have pain so intense that I had trouble breathing. It even happened in public. My own family doctor did not believe what I was experiencing. I consulted with experts and missed many days of work. Missed work meant missed paycheques, which really affected my budget for school. This went on for five years before I was finally diagnosed with Crohn's disease.

Crohn’s disease and ulcerative colitis are the two most common forms of inflammatory bowel disease (IBD), and it is one tough diagnosis. There is nothing fun about it, but I’ve been raised to always look for the silver lining. For me, that means appreciating the good things it has brought me, like a community of new friends and - believe it or not - a balanced budget.

Learning to cope with the disease meant learning to balance medical appointments with my school and work schedules. That does not leave much free time, especially for being active, which is very important to me. I decided to study urban planning at the University of Quebec in Montreal. The planning skills I have learned in the classroom are also useful for managing my money.

Here are my top tips to help you learn to balance your student budget:

• Pack a lunch: Buying food on campus can be expensive. It’s often unhealthy too, which can lead to flare-ups. I save money by doing my grocery shopping and making lunch to bring to class. Try buying in bulk and preparing a week’s worth of meals and tossing them in the freezer.

• Apply for Scholarships: There are so many scholarship and grant opportunities out there ripe for the picking. Most applications are fairly straightforward and they can really help towards tuition. Even if you don’t receive one the applications are great writing experience. I recently received an AbbVie IBD Scholarship, which is helping me pay for school this year.

• Buy used: You don’t need to spend money on brand new textbooks that you will only use for one semester. Books are a great resource and are available in several ways. Look to buy used books or shop around online for competitive prices. And of course, they are always free at the library.

• Don’t blow it on booze: You don’t need to make it rain at the bar to be cool or make friends. Especially when alcohol can harm your body or cause flare-ups. There are plenty of other ways to have fun with friends that don’t require alcohol or money. Try joining a club or playing intramural sports.

Remember that every dollar adds up. How do you save money living on a student budget? Let me know in the comments below.

Antoine

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A tremendous effort to support those living with #Crohns or #colitis. Show these two amazing riders some support here: http://bit.ly/2bfUV2p

Cycling Across Canada for Crohn's

Our last day cycling will be Tuesday, we're heading into Dartmouth that afternoon/evening. Our finishing point is the boat slip next to the Dartmouth Ferry term...inal arriving via Waverly Road, Prince Albert Road and Octerloney Street. We'll be posting a link to a live tracker on Tuesday so you can see where we are.

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Our Camp Got2Go in Bragg Creek, Alberta brought youth with Crohn's and colitis together for a week of fun and friendship. Our thanks to Janssen and all of our supporters and donors for helping to make this wonderful experience possible.

Larry Nance Jr. is a forward with the LA Lakers. He also happens to have #Crohns, and he uses his time receiving Remicade infusions to speak with other people who have #IBD. | via ESPN http://es.pn/2bzch9E

Every two months, the Lakers' Larry Nance Jr. needs treatment for Crohn's disease. He uses the sessions to inspire others with similar afflictions.
espn.com

Different medications, different surgeries, and different stories show how #IBD impacts each person uniquely | via Metro http://bit.ly/2b39VmN

IBD is a life-long, incurable condition that can be debilitating, life-changing and often results in surgery.
metro.co.uk|By Hattie Gladwell

"I worry that the earliest memory my daughter will have of me is on the toilet. And I almost always feel guilty about the slack my wife has to pick up because any number of my various Crohn's symptoms are flaring."

A look at the impact of #Crohns on being a partner and a parent. | via Romper http://bit.ly/2bmcD54

I have Crohn's disease. It's not something I'm embarrassed to talk about, but it's not something I like to put out there because, frankly, once I...
romper.com|By Lacey Vorrasi-Banis

If you've ever wondered what you can eat with an #ostomy (plenty) and if there's one special #diet for ostomates (there isn't), ANA sets the record straight. #IBD http://bit.ly/2bkYnYb

I'll share the general notions I have to popularise when I talk about IBDs or ostomy. Obviously the information won't be custom-made for you, but I...
alternativeana.com

Here's what you need to know if you're leaving home for the first time to attend college or university, courtesy of AbbVie IBD Scholarship winner, Jack Kerr. #Crohns #colitis http://bit.ly/2aZ4Vhj

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One of our AbbVie IBD Scholarship winners shares tips on managing stress, studying, and #IBD. #Crohns #colitis http://bit.ly/2bvvZDq

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Have you ever dealt with one (or more) of these fears? Any others that you would add to the list? #Crohns #colitis #IBD | via Metro http://bit.ly/2atXiR2

IBD is a lifelong illness and is incurable and even with surgery, you still face physical and psychological side effects. Here are 12 fears every...
metro.co.uk|By Hattie Gladwell

Help us help you - take part in a focus group

Are you 18 years of age or older and taking a biologic medication for #Crohns disease or ulcerative #colitis? If you have changed or are facing a possible change in your biologic medication, please consider participating in an upcoming focus group this September.

Crohn’s and Colitis Canada is participating in a joint project with other Canadian health charities and patient groups to conduct a series of focus groups asking Canadian...s about their experience taking and switching #biologics for their chronic disease. This project will help us better understand the needs of Canadians in an ever-changing treatment landscape for chronic disease.

There will be four in-person focus groups held in participating cities - Vancouver, Toronto, Montreal (French only) and Halifax. Also, one focus group will be conducted online in English with people from across Canada. Each focus group will be approximately 1.5 hours long. If you are selected to participate, you will receive a honourarium, plus reimbursement for reasonable out-of-pocket expenses.

If you wish to be considered as a focus group participant, please take the survey at http://svy.mk/2b411ot. The Survey closes on August 19.

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Are you are taking a biologic medication? We need your help to better understand the impact of changes to the biologic medication you take.
surveymonkey.com