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Thank you to all fantastic haematology nurses and CNS's. Not enough of you around, despite the fact that NHS England recognises that cancer patients who have a named nurse do much better generally. We thank and support you. Everyone - help us #thankanurse by adding their name below in a comment.
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Today in International Nurses Day. Thanking all #haematology nurses all over the UK and abroad - you are amazing. Thanks for all the dedication and extra hours you put in to make sure all patients are well cared for #thankanurse
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Evie goes to her hospital to get her "bloods" done
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Reviews
4.7
25 Reviews
Tell people what you think
Caitlin Limmer
· January 30, 2018
Always there to help when you need them whether it be for medical advice or just a supportive ear from others who understand. Thank you.
Elsa Hunter
· June 14, 2017
When I was diagnosed with MDS/AA in 2004 it is a secondary disease for me. I found it difficult to get information far less support for this disease
Sophie had just started this group. Oh, how it was ...needed.... good for Sophie, since then the group has become a life line for a lot of us.
I feel, since I was diagnosed it was relatively rare.
However, since scientist have been doing a lot more research into this disease, it's helping Medical staff to understand what is happening to us (the patient).
Sophie,her team and the patient support groups,the online closed MDS group, we,are all helping each other.
A big thank you to all!
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Elizabeth Watkins
· March 18, 2018
Always find advice and support when needed. You may feel isolated at times but you can always find someone will respond to your questions or just share your feelings. Holistic approach
George Clapperton
· June 15, 2017
An extended family for MDS patients and carers. It is a good place to go for those who are worried, want advice and support or just want to chat with a group of people who fully understand what they ...are going through. Dare I say you'll find more empathy and understanding here than you ever will from your doctors. See More
Linda Coultrup
· October 22, 2014
MDS is a sheep in wolfs clothing - I am so often told I look well but am usually pretty anaemic, have seriously low platelets and abnormally low white cell counts, but because I look well I am ok! Tak...e off the outer layer and you see transfusion dependent patients who could be on a variety of treatments not all nice or facing the significant risks of a bone marrow (stem cell transplant). It is with much thanks though to all you blood donors and those that have signed up to the Anthony Nolan Register that sufferers can continue with their lives See More
Kes Grant
· October 25, 2014
MDS is a rare illness which is why a patient support group is so important. You don't have to be alone in your battle with this disease. The patient support group provides good quality information as ...well as a supportive environment to ask all those questions and get support from others who share this journey. "I love the light for it lets me see the way. I love the dark because it lets me see the stars" See More
Keith Holland
· June 13, 2017
Keith's wife Barbara here. I had never heard of MDS until my diagnosis - I've been "watch and wait" since 2013 and began using epo and GCSF this year. I have learned so much from other people's Faceb...ook postings, it has put my own MDS symptoms in perspective, and I know that advice and support is readily available when I need it from people who understand the worries and complications of living with MDS. See More
Russell Cook
· April 14, 2014
MDS is a rare blood disorder that devastates lives and ends a good few. To me this Charity was instrumental in letting me understand what was happening to me. The Community has given me support and gu...idance to come through and I am absolutely determined that I will repay it. Keep up the good work. See More
Mark Adams
· June 9, 2017
A fantastic support group which helps ease the concerns of people who suffer from this terrible rare disease. Also promoting awareness of a disease that not many people know about.
Ally Boyle
· June 14, 2017
Absolutely fantastic organisation that has been there for me since I was first diagnosed in 2008. The Fb page is an excellent source of peer support and information and I'm very grateful for it.
Jane Lancaster
· June 15, 2017
Thank goodness for MDS Patient Support. They were a lifeline of positivity just after my totally unexpected and devastating diagnosis.
Martin Baker
· January 6, 2015
A Fantastic group. A dear friend of ours has just lost his life to MDS. Let's get behind the group and drive it forward R.I.P Steve.
Posts

MDS UK is delighted to announce that we have spaces available to participate in this year’s Prudential Ride London! This is one of the legacies of the 2012 London Olympic Games and will give us an opportunity to both raise awareness of the issue of MDS as well as a fantastic opportunity to raise money.
Prudential RideLondon provides a fantastic platform to help fulfil The Mayor of London and Transport for London’s goal of encouraging more people to cycle more safely, more of...ten. TfL anticipates tens of thousands of spectators and participants every year will take up regular cycling after each event. This will be achieved by creating massive engagement with participants, spectators and media alike.
There is no other closed-road event like it that combines the fun and accessible element of a free family ride in central London with the excitement of watching the world’s best professional cyclists race!

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JUL29
Sun 5:45 AM UTC+01MDS UK Patient Support GroupLondon, United Kingdom
3 people interested

So, who’s going to enter the ballot for next years London Marathon? We don’t get ballot places so running for us would be awesome!

Virgin Money London Marathon – How to Enter
virginmoneylondonmarathon.com