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This video of Eddie makes my heart smile. This was his first outfit, the day before RSV attacked his lungs. Look at his little legs sticking straight up in the air. He's so funny. Please pray for this little boy to be healed to his former self. We need this little miracle to keep getting better. Last night was quiet. Thank The Lord. They are watching a pocket of air outside his lung. We pray for it to go away so he may continue healing. Thank you all for your continued prayers. They mean so much to us.
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Baby Eddie had a good day today. He is risen and an angel with God.
For us, it was the worst day of our lives. Yet we realize how lucky we were to have had the short time to get to know Eddie, to be impacted in so many ways just by his being. We are so blessed.

It is going to be so hard without him. We miss him so much already. But knowing he will never have his heels stuck, or IVs, or chest tubes or xrays or a breathing machine ever again bring peace. He is at peace. An an...gel in Gods arms looking down on his family and two sisters.

We got to hold him one last time, and tell him we loved him and how thankful we were for him before he was lifted up. He knows we were there for him. It is now his job to watch over us.

Thank you all so very much for your support, prayers and positive energy over the last several weeks. They helped us get through these really trying times.

We remember little red head Eddie as healthy. Full of feistiness. Yelling at his nurses when they disturbed him. Pissed at any wire or tube that tied him down. He always had fight. Right to the end.

Eddie left a mark. On everyone. And we are all better for it.

God bless baby Eddie. You will be thought of and prayed to everyday.

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Happy Birthday baby. Your sisters insisted we bake a cake for you and celebrate your special day. We sang, ate and were reminded of your presence in our lives. We miss you. We love you. It was a tough day without you.

Addison reminded us to rejoice and be glad. For this is the day the Lord has made. We will rejoice and be glad in it.

Merry Christmas and a blessed New Year to all!

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Remembering baby Eddie's fight. Three years ago today he went to be with the Lord and changed all of our lives forever. God bless our boy and continue to bless us all.

MY very talented nephew wrote, composed and performed this song as a tribute to baby Eddie. Please listen. It is wonderful.

Thank you so much Sammy. Eddie and I love it! It plays in our minds over and over. It is so special.

http://www.youtube.com/watch?v=WfSL2nZOrcc

Happy birthday my dear boy. We miss you everyday.

We'd like to introduce our Addison, sent to us by baby Eddie. Born 3/28, a healthy little girl. Eddie is by her side all of the time and we feel incredibly blessed. God is good and we are thankful.

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A year ago today, we honored Eddie at his funeral. I feel this is closure as Ed and I look forward to the future. I wanted to share what I said that day. It was very personal and private; part of my grieving. Baby Eddie changed us forever...

'Not sure what is appropriate or what I'm supposed to say.

I'll start with my husband Ed and I. Ed was always ready to have more children after our girls. I was not. So when I found out I was pregnant, I was shocked. And i may have even g...

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A year ago today Eddie became our Saint Edward. I pray everyone is comforted today, and thank you for all of you love, prayers, and support during this journey.

Prayer After the Death of a Child

My life is upside down, loving God. The order of the world is out of place and I can’t do anything to right it again. Oh, Lord, you know the pain in my heart at all times and you know why: my child has died. How can it be that my beloved child is gone? The child I cared for with ...such concern in every illness, the one I held close to my heart and promised to take care of for a lifetime, is not here for me to care for anymore. It hurts deeply that I wasn’t able to protect this child I love with my whole being from a death that seems so unfair.

Let me feel calm. Let me breathe deeply. Be with me in this kind of deep and transformative pain. I now carry this darkness with me on my back and in my heart, always. It is my burden and my companion.

Lord, there is not a single minute of my life when this loss is not etched so keenly into my brain and heart, whether it is in the middle of a busy day or in those choking moments of grief in the solitary dark of night. Let me be grateful for every minute we had together. Let me treasure those memories and find joy in them.

Help me to deal with people better. They don’t know what to say. They stumble and look away when they see me. They pretend nothing has happened. I know they “don’t want to remind me” but they don’t understand it is with me always, always.

Teach me, Lord. Tell me what you want me to do with this. What am I supposed to learn from this kind of pain? What are you calling me to do?

Open my battered heart and lead me to comfort and peace. Only you can give me the peace I need. Let me feel your presence in my life.

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Prayers for Eddie added 2 new photos.

To our baby Eddie -

These past few months I've been tortured on what to say
That would even be adequate enough to wish you a happy first birthday.

...

You were a fighter from the start
Making miraculous strides for your age
You accomplished so much
Doctors had nothing to say

But then things changed
And went horribly wrong
I don't understand it
I've pondered so long

You had to suffer
for some reason or another
I agonize over the events each day
Each day as your mother

Your nurses and therapists cared for you as their own
Your father and I held onto hope we'd bring you home

We prayed endlessly that you would pull through
But setback after setback, few knew what to do

You fought so hard and stayed strong for so long
We wished we could reverse, the things that went wrong

We held you one last time as we wished you farewell
From that moment on I've been too sad to tell

You made us appreciate life so much more
And your two older sisters you watch over as you soar

You touched lives around the globe
Many you never knew
And helped them appreciate life
A little more too

This was your path
And you helped many others so far
I just wish you a happy birthday
You are our shining star

Bring all of us comfort this day our dear angel Eddie above
And remember all of our everlasting love

66 days of life was your blessing upon us. I'm so thankful for what you've taught me. I hear you every day. I miss you Eddie. Thank you for being our son.

'The son we have but never had, and yet will have forever.'

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Baby Eddie enjoying the snow with us.

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To our baby Eddie -

These past few months I've been tortured on what to say
That would even be adequate enough to wish you a happy first birthday.

...

You were a fighter from the start
Making miraculous strides for your age
You accomplished so much
Doctors had nothing to say

But then things changed
And went horribly wrong
I don't understand it
I've pondered so long

You had to suffer
for some reason or another
I agonize over the events each day
Each day as your mother

Your nurses and therapists cared for you as their own
Your father and I held onto hope we'd bring you home

We prayed endlessly that you would pull through
But setback after setback, few knew what to do

You fought so hard and stayed strong for so long
We wished we could reverse, the things that went wrong

We held you one last time as we wished you farewell
From that moment on I've been too sad to tell

You made us appreciate life so much more
And your two older sisters you watch over as you soar

You touched lives around the globe
Many you never knew
And helped them appreciate life
A little more too

This was your path
And you helped many others so far
I just wish you a happy birthday
You are our shining star

Bring all of us comfort this day our dear angel Eddie above
And remember all of our everlasting love

66 days of life was your blessing upon us. I'm so thankful for what you've taught me. I hear you every day. I miss you Eddie. Thank you for being our son.

'The son we have but never had, and yet will have forever.'

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Mom & Dad... don't mourn for me
I'm still here, though you don't see
I'm right by your side each night and day
And within your heart I long to stay
My body is gone but I'm always near ...
I'm everything you feel, see or hear
My spirit is free, but I'll never depart
As long as you keep me alive in your heart
I'll never wander out of your sight
I'm the brightest star on a summer night
I'll never be beyond your reach
I'm the warm moist sand when you're at the beach
I'm the colorful leaves when fall comes around
And the pure white snow that blankets the ground
I'm the beautiful flowers of which you're so fond
The clear cool water in a quiet pond
I'm the first bright blossom you'll see in spring
The first warm raindrop that April will bring
I'm the first ray of light when the sun starts to shine
And you'll see that the face in the moon is mine
When you start thinking there's no one to love you
You can talk to me through the Lord above you
I'll whisper my answer through the leaves on the trees
And you'll feel my presence in the soft summer breeze
I'm the hot salty tears that flow when you weep
And the beautiful dreams that come while you sleep
I'm the smile you see on a baby's face
Just look for me,
I'm everyplace
~~our Eddie. Missing you so overwhelmingly much.
Love, Mommy.

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These last few months have been special. Surrounded by the family and friends we love, and the constant reminders of the boy we love.

Eddie likes to constantly tell me he is here... Thank you my precious baby. I found another feather this am and sat on the picnic table outside my house while two dragonflies landed by me. Not long thereafter, the smaller dragonfly landed on my hand where I wear the Team Eddie wristband. Eddie said hello to me in the most profound way. 😅 Like he likes to do. I cried. I have never had a dragonfly land on me. Ever. I feel so blessed today. And each day. Every day really is a blessing. So thankful for yet one more.

Prayers for Eddie added 3 new photos to the album: March for Babies Awards Ceremony.
June 27, 2013

Thank you once again to everyone for all of their support, prayers, and love for our family and for baby Eddie. Last night I attended a beautiful awards ceremony, to honor Team Eddie in memory of baby Eddie. Team Eddie won two awards from the March to Help Babies walk this year. One was the Bronze Award for Family Team, and one was for Top Adult Walker. Together, we raised funds to help other premature infants and their families. Baby Eddie is smiling down on all of us. He let me know he was present at the ceremony. My angel baby. Team Eddie for life! Thank you all for being a part of baby Eddie’s journey. This was his mission. To help other babies and their families. God bless.

Balloons to baby Eddie

When the local ice cream stand opened this spring, they were giving out balloons. The girls were thrilled as balloons are one of their favorite things. When they are accidentally released, you would think the world has come to an end.

So my oldest daughter looks at me as we are eating our ice cream cones and says, "If I let this balloon go, will baby Eddie get it?"

...

I was taken by surprise and replied that I didn't know, but I thought so. Samantha chewed on my response for a bit and quietly ate her ice cream. We piled back into the car with the remainder of our cones and new balloons. We got home, parked and I went inside while the girls got out of the car at their leisure.
Typical for them to refuse to get out of the car right away. Don't ask me why.

My younger daughter comes in the house first. All full of smiles, balloon in hand. Samantha follows shortly thereafter. I look up and notice her balloon is gone. "Oh no!" I panic. She has lost the balloon! I was sure drama was about to follow. I asked her what
happened to her balloon. In the sweetest, most angelic voice I've ever heard, she says, "I gave it to baby Eddie."

My heart melted and tears formed immediately. So this has become part of our therapy, grieving, and healing process. Eddie has given us many signs that he knows we are sending him our balloons of love.

We just got back from a very special, much needed vacation at Disney World. We are fortunate to have been able to take the girls for a second trip there. The day we got to Florida, we met a couple who asked us if we wanted their Mickey balloon. It was a blue Mickey balloon head inside a clear, round balloon. The girls were overjoyed! A giant, double balloon of Mickey! We came to refer to it as baby Eddie's balloon. It went everywhere with us - to every park, restaurant and store. On our last day there, the huge balloon hadn't deflated a bit, and short of stuffing it under my shirt and looking like I was pregnant with triplets, we realized we couldn't take it back on the plane with us. The girls decided we should give it to baby Eddie. So sweet. We wrote a message on
it for him, the girls kissed it, and we continued our prayers to Eddie through the balloons filled with love.

I’m so sad that baby Eddie isn't here. He would have been 4 1/2 months old now. And it's okay to be sad. But I have to remind myself daily about what I was blessed with, what I am currently blessed with and to be thankful for it all. Look not at what I don't have or what I won't have in future moments. Stop the self-torture.

"Live daily in His Presence, remember the past for only a moment, look towards the goal of the future, and then live in the present and enjoy what this day will bring! LIVE TODAY!! Amen."

I am blessed and will continue keep my eyes on the future. I will continue to send balloons to baby Eddie because I now know he does get them. God bless us Saint Edward. Amen!

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4/24/13 TEAM EDDIE UPDATE - The walk starts at 8:30. Allow yourself enough time to park in the massive lot and get into the park. This can take up to 20 minutes. Several of us will be in the park before 7:30 for registration.

You are going to come in as you normally would to visit the park on any other day, however parking is free. They are going to filter all walkers around through a back entrance into the picnic area just to the right of the main entrance, so that every...one goes through the metal detectors. Originally it was the main entrance, but they will be blocking that off for safety reasons. There will be enough signs to direct you where you need to go. The walk takes place inside the park.

So once you park, you will walk up and go past the large Bugs Bunny round bush sculpture and proceed through the metal detectors. There will be tons of signs before the gates on where to enter. TEAM EDDIE will be meeting in the picnic area which is after the metal detectors. Look for the white balloons. We will have balloons for the kids, temporary tattoos, and Team Eddie wristbands for all.

If you are registered, remember to print out your Sponsor Form and bring it with you. It can be found on your personal page under "View Sponsor Form".

This is for you baby boy. Thank you for guiding us and helping others! Love you angel Eddie. 333

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Eddie's big sister wanted me to post this with her in his "fighter" hat and to sing his song. "I love you Eddie, Oh yes I do. And I always, can count on you. When I'm not with you, I am blue. Oh Eddie I love you!"

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Eddie would have had the biggest attendance at his first birthday ever! Since we can't do that, we want to invite you over to celebrate his life after our walk for other preemies and their families on the 28th. Directions to our house will be given at the walk. We welcome you to Eddie's house to celebrate his gift of his presence to all of us. God bless Eddie. God bless all of you. Don't forget to wear your white for angel Eddie. We will have temp tattoos and wristbands for ...you to wear as well! Team Eddie. Love you baby boy.

The walk is at Great Adventure in Jackson, NJ. Parking is in the lot to your right before entrance to the park parking lot. I am told it will be well marked. The walk is at 8:30, and registration opens at 7:30am. If you are registered with our team, print out your Sponsor Form from your personal page under http://m.marchforbabies.org/s_team_page.asp?SeId=2042772&si=. If you are not registered, you can simply show up! And if you are not walking, feel free to come to our house and keep big Eddie company while he gets everything ready.

Thank you all so much for your faith in our boy and in God. We love you so much.

With love,
Eddie and Laurie

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Every day, thousands of babies are born too soon, too small and often very sick. Darling baby Eddie was born at 29 weeks gestation, after Laurie's water broke at 27 weeks. He fought to stay in another 2 weeks. A fighter from the beginning! He was thriving. A ''feeder-grower'' as the doctors terme...
m.marchforbabies.org