I am an ex nurse , which maybe helps , tho some days too much knowledge can be a sobering thing , then it's chocolate ,loud music ,dog walks and a hug from a friend which does the trick ......we have two amazing grown up kids ..and a home with dogs cats chickens and pets of various sizes ..
Family has and continues to be the most important thing and we are blessed along with fabulous friends ..
Aside that Parkinson'
Raising money for Parkinson'
I don't know who that gentleman was at the other end of the phone that day , but they were there and I thank them for listening and waiting and offering advice ..
We don't know for sure what is around the corner, but each corner is less daunting with the knowledge there are others in the same boat, that Parkinson'
We have other close friends now who we are blessed to have in our lives living with Parkinson'
It's a 'Parkinson
None of us are really alone ..
It's a fight and battle often on the front line in which all of us at some point take either the lead or feel a need to step back and allow others to step forward to take a bit of the pressure and shine the light for moving ahead ....but never alone
I have read many statements
I am just the wife of one who is directly living with Parkinson'
Wishing you all , wishing US all as a parkis family , the wonder of human determinat
"There are days when no matter what I do, my body won't work...that's Parkinson's for you. Do everything which is needed to make you stay strong." - Reg.
Yesterday, Aaron showed us the benefits of keeping up with your exercise regime. Today Reg shares how exercise helps him manage daily life and how easy it is to do at home.
Parkinson's doesn't have to stop you doing what you love. Aaron talked to BBC Radio 5 live about life with Parkinson's and keeping active.
"No I'm not drunk, I'm not on drugs, I've got Parkinson's." - Nicky.
1 in 4 people have had their Parkinson's confused for drunkenness, and 1 in 10 have been laughed at in public due to their symptoms. It's time to change.
Add your voice to our call for businesses to be Parkinson’s friendly. Sign the letter now.
"Where did we meet? It was a blind date. A mutual friend introduced us. We met outside a pub, I spilt a pint of water over him at the beginning of the date but he didn’t bat an eye. It was love at first sight.
"The secret to our happy relationship? It’s no secret, we love each other.
"For 40 minutes at the end of every day we walk the dog and talk about how each other’s day has gone, we share our worries our thoughts sometimes we talk non-stop for the whole 40 minutes. Other times we may need longer than the 40 minutes to debate an issue, but then the dog gets a longer walk." - Mark and Julia
"We met at secondary school at the age of 12. We've been married now for 40 years.
"The secret to our happy relationship is mutual respect and laughter, a strong sense of humour has held us together over the years. And in the face of Parkinson’s, we have educated ourselves about the condition and treatments, we are developing good relationships with the Parkinson’s professionals and together we form a team of volunteer research speakers for Parkinson’s UK and gain a lot from ...chatting with others.
"We talk about our problems and feelings, even when it is very difficult and stressful to do so, and we listen to each other but never take ourselves too seriously!
"Keep talking to one another, listening is key. Don’t ever bottle up your feelings and be adaptable, everyone changes so don’t dwell on what you have given up or can’t do. Enjoy everything that you can do. And remember to find time and space for yourselves as individuals too." - John and Sue.
"It's giving you confidence...it makes me feel better every time I do it." - Local group member.
It's never to late to start exercising - or push yourself to do a little more. If you don't want to start alone, a local group could be the perfect place to start. www.parkinsons.org.uk/localgroups
Join us on a journey across the Parkinson's universe in our latest blog.
"I want to tackle my Parkinson's head on.
"Going into the London Paralympic games I was probably as fit as I’ve ever been. I ran the London Marathon twice without training. I was suffering with physical symptoms, like tremor, but they were fairly controlled. I would choose when to run. I would make sure I got my exercise in before I started feeling worse. I was having side effects, like most people do when they’re on medication a long time. I was on pretty much the highest do...se and I started to experience addictive behaviour.
"I went to my consultant one day and said, ‘Can we try no meds – take a step backwards to go forwards?’
"He wasn’t surprised that I’d suggested stopping the meds. He kept reiterating, ‘You know your body best.’ But ultimately it was a joint decision – I would manage my symptoms using just diet and exercise.
"To start with he was a typical consultant, if you know what I mean! He had quite a fixed viewpoint and that was it. It’s a testament to him that we’ve learned together. Because of the relationship that’s developed between the two of us, he’s prepared to try things. That’s probably been the biggest way he could support me.
"Ultimately I’d like to never have to take any medication again. I think the longer I can avoid going down that route, the better. I feel more normal not having a reliance on them. I think of myself like a rechargeable battery now – as long as I stay within the charge, I’m OK!"
- Former British Paralympic footballer Matt Dimbylow.
Always discuss any changes to your medication, or diet or exercise regime, with your consultant or Parkinson’s nurse.
Chris shouldn't have had to deal with this, it's hard enough living with Parkinson's and even more challenging when the public don't understand.
Has this ever happened to you, or someone you know?
Do you know your PIP from your ESA? We've got the latest information on money, grants and benefits and advice to help you secure what you're entitled to.
Read our information online at: www.parkinsons.org.uk/information…/money-grants-and-benefits
Call our helpline to speak to a benefits adviser on 0808 800 0303
When it comes to exercise and Parkinson's, what does the research say? Find out at https://medium.com/parkinsons-uk/search?q=exercise
"I was diagnosed with Parkinson’s in 2012. For about three or four years before, I struggled with anxiety and I just couldn’t understand why I was feeling this way. I had a real constant feeling of panic. I had some movement and balance problems too and it was extremely challenging, especially at work as I was a teacher.
"For me, mental health is the least addressed part of my Parkinson’s. I understand even the term mental health is hard for so many to say, let alone discuss.
"People with Parkinson’s should feel that they can come forward. I hope that together we can raise awareness and express our fears and anxieties and for them to be heard." - Gary
Is this really part of a major U-turn or another wasted opportunity? We go behind the PIP headlines today.
For some people with Parkinson’s, freezing is a part of everyday life.
These researchers want to change that, read about the latest research at: medium.com/…/freezing-in-parkinsons-and-how-to-thaw-806d1bf….
"It builds your confidence, it really makes a difference...Parkinson's can be quite painful, my muscles can feel quite sore at times and this loosens my muscles up.
"Exercise is essential."
Look for local opportunities to meet others and stay active at the same time at: https://goo.gl/9is2Tm