There does, however, appear to be an area of interest on the triangle part of her 4th ventricle that looks like tumor. They said it is not new and that it has not grown - or shrunk. It’s just not moving. They have suggested that we have a procedure which places an ommaya reservoir in her head/skull which has a catheter directly to the ventricle so that they may administer the chemotherapy drugs to that area. The current treatments they do, intrathecal and inter-arterial, focus on the inside of the ventricles and arteries, but this new treatment would focus on the outside walls. Ultimately, the docs will approach this monster with all 3 treatments.

So, we’re talking to our other doctors in San Diego and more with the docs in Mexico to try to figure out next steps, who should do it and how we re going to pay for it. If we decide to go through with this surgery, it is not certain we would be able to convince our US doctors to perform it - even though that would be ideal for us logistically. And even if they do, it is highly unlikely that insurance would cover it so we may be back to the fundraising drawing board.

We are encouraged that the Mexico doctors are being aggressive with their desire to treat this. Being able to supplement current treatments with other efforts are exactly why we like Mexico. These docs are passionate about this and about helping Kira. They want to move asap on this procedure so we’re back to making quick decisions with no guarantees and not enough information.

I’m so tired. I’ve had to erase multiple conglomerations of words in this post as I nod off half dream typing. Kira is resting.

Thank you for your continued support. For those who are interested in supporting financially, please visit

We’re leaving in the morning for home. Hoping for smooth travels and quick recovery and clarity in direction over the next few days.