May is Ichthyosis Awareness Month! We're supporting our friends at FIRST who are raising awareness of the challenges and hopes of the ichthyosis community.
Our inspiring friend Nelly features in the Mail and C5 - read the story of everything she has achieved here.
Congratulations to our friend Nelly on her new job as a sports coach with the Coventry Sport Foundation - what an inspiration! http://m.tbnn.it/M3fy9L
As part of Ichthyosis Awareness Month, we invite you to read the story of Mui Thomas. Mui is a 23-year-old living in Hong Kong. She also has Harlequin Ichthyosis, and in addition to the health challenges this has presented as she grew up, she also had to contend with bullying and cyberbullying. However, supported by her family, Mui has shown incredible determination to tackle the hurdles in her path. She now campaigns for greater awareness of visible differences and cyberbullying, while also finding the time to qualify as a rugby referee. Please take a moment to read Mui’s inspiring story.
May is Ichthyosis Awareness Month, and over the coming month we will be sharing some stories from people we've been lucky enough to meet, and information about Harlequin Ichthyosis. First though, a brief reminder of our own story. Please play a part in Ichthyosis Awareness Month and share it on! #IchthyosisAwarenessMonth
Unfortunately it seems we are one of the organisations who've fallen victim to this phishing scam as reported by the BBC.
We greatly sympathise with anyone who has received an email claiming to be from us requesting money - please be assured it is nothing to do with our charity.
The advice provided by the BBC is to delete the email and report it to Action Fraud....
Thank you and good luck to our friend Jane Blackford who is hosting a fashion show tomorrow evening to raise funds and awareness of SHHiRT and our colleagues at Ichthyosis Support Group.
Taking place at Newdigate Sports & Social Club, this is the 2nd year Jane has hosted the event, and we’re sure this year will be just as big a success as the first.
Have a fantastic evening and thank you for the support!
A huge thank you goes to Katherine and the team at A R Peet (http://www.arpeetstoves.co.uk/home/).
Katherine saw a TV programme about Harlequin Ichthyosis and was so moved that she and her colleagues decided they wanted to fundraise to help those affected by the condition.
They've raised £400 for SHHiRT - and we're enormously grateful. Thank you Katherine!